Minocycline: 50mg every other day Azithromycine: 600mg every other day
Supplements every day: vitamin d, probiotic, lumbrokinase
Been on it for one week. How long until I could notice any change in muscle pain going away? Four months maybe? Doc said less than a year probably.
Posted by seekhelp (Member # 15067) on :
That's an extremely weak minocycline dose!!!
Posted by applewine (Member # 26220) on :
This is my first prescription which only lasts like three weeks. I expect it to be very low. Additionally, the doctor told me he treats at lower doses for long periods so you don't get bad side effects so you can continue to work etc. I don't know how high a dose he will go, I'll ask at my next appointment. I don't know if its coincidence or not, but I have that taste in my mouth like when you get a cold for the past week.
Posted by bcb1200 (Member # 25745) on :
Previously: 200 mg Doxy 2x / day 2 Nystatin pills 2x / day Pulse 500mg of Flagyl 2x / day for 3 days every 2 weeks
Now:
500mg Biaxin 2x / day 100mg Amantadine 2x / day 2 Nystatin pills 2x / day 4.5 mg LDN at Bedtime Pulse 500mg of Flagyl 2x / day for 3 days every 2 weeks
Supplements: Alpha Lipoic Acid 2x / day Grapefruit Seed Extract pills 2x / day Oil of Oregano pills 2x / day Multivitamin Fish Oil Super B Complex Magnesium SR tabs Milk Thistle 1x / day
Probiotics: Theralac 1x/day PB8 2x / day
Im feeilng almost normal. 90-99% most days. Some minor symptoms remaining, but a far cry from where I was in March. Brain / neuro stuff is gone! Anxiety is gone!
Posted by nefferdun (Member # 20157) on :
Bactrim DS 2X day 500 mg zithro 1X day Nystantin every other day (4 times week) 500 mg Tindamax pulsed two days, one tablet each day
I had cut back to 4 days on and 3 days off but starting getting symptoms so went back to every day. But this morning I am very dizzy and I am afraid it is one of the drugs doing this to me, so I am taking the day off to see what happens. Before I cut back I felt pretty well but was having a lot of trouble sleeping. It is always one thing or another.
Posted by kimmie (Member # 25547) on :
Rocephin 3gm IV 4days each week zithromycin 500mg MWF flagyl 1500-2000mg/day pulse 4 days on 3 offx2weeks.
Supplements: MVI alpha lipoic 2xday vit D 5000IU daily omega 3 2xday Nac 600mg 2Xday VSL #3 (probiotic) daily flaxseed oil daily starting transfer factor soon grapefruit seed extract 15 drops 2-3 times day when off flagyl pulse
Posted by TF (Member # 14183) on :
Is your doctor Dr. F in Maryland by any chance?
Posted by seekhelp (Member # 15067) on :
Everyone may want to be a bit careful before rattling off everything they take publicly and connecting it with a doc.
Posted by 'Kete-tracker (Member # 17189) on :
Quote: "he treats at lower doses for long periods so you don't get bad side effects so you can continue to work..." MY PCP *used* to have that view... until he found his patients, incl. me, fared Much better in the long run when treated at "ILADS" dosing levels. The hypothesis is that ANY invasive bacteria will develop a tolerance to the antbibiotic if exposed at too low a level.
And the tetracyclines, incl. "mino", are Known to only be "bacteriostatic" at lower serum levels. You want to maintain a higher, continuous "bactericidal" level. BTW, I'm surprised your doc isn't combining that minocycline with some Other abx. Both of those (that you listed) Are good in drug combos. I just haven't seen them together by themselves. hmmm
Posted by mallory (Member # 23364) on :
Just as an FYI, my LLND said that vitamin d shouldn't be taken with chronic infections...I'm not exactly sure why.
Has anyone else heard this?
Posted by kimmie (Member # 25547) on :
no, actually my GI doc said 5000IU daily of vitamin D is liver protectant (coffee too!)
With chronic lyme, most already have low vit d so supplementing it should be a good thing
Posted by Remember to Smile (Member # 25481) on :
Odd thread in that some members have shared Rx dosing and nutritional supplementation, yet not TBI diagnoses.
Not of value, since each Lyme patient is a unique individual that acquired a unique "toxic soup" upon infection.