posted
Minocycline: 50mg every other day Azithromycine: 600mg every other day
Supplements every day: vitamin d, probiotic, lumbrokinase
Been on it for one week. How long until I could notice any change in muscle pain going away? Four months maybe? Doc said less than a year probably.
Posts: 136 | From arlington, VA | Registered: Jun 2010
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seekhelp
Frequent Contributor (5K+ posts)
Member # 15067
posted
That's an extremely weak minocycline dose!!!
Posts: 7545 | From The 5th Dimension - The Twilight Zone | Registered: Mar 2008
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posted
This is my first prescription which only lasts like three weeks. I expect it to be very low. Additionally, the doctor told me he treats at lower doses for long periods so you don't get bad side effects so you can continue to work etc. I don't know how high a dose he will go, I'll ask at my next appointment. I don't know if its coincidence or not, but I have that taste in my mouth like when you get a cold for the past week.
Posts: 136 | From arlington, VA | Registered: Jun 2010
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bcb1200
Frequent Contributor (1K+ posts)
Member # 25745
posted
Previously: 200 mg Doxy 2x / day 2 Nystatin pills 2x / day Pulse 500mg of Flagyl 2x / day for 3 days every 2 weeks
Now:
500mg Biaxin 2x / day 100mg Amantadine 2x / day 2 Nystatin pills 2x / day 4.5 mg LDN at Bedtime Pulse 500mg of Flagyl 2x / day for 3 days every 2 weeks
Supplements: Alpha Lipoic Acid 2x / day Grapefruit Seed Extract pills 2x / day Oil of Oregano pills 2x / day Multivitamin Fish Oil Super B Complex Magnesium SR tabs Milk Thistle 1x / day
Probiotics: Theralac 1x/day PB8 2x / day
Im feeilng almost normal. 90-99% most days. Some minor symptoms remaining, but a far cry from where I was in March. Brain / neuro stuff is gone! Anxiety is gone!
-------------------- Bite date ? 2/10 symptoms began 5/10 dx'd, after 3 months numerous test and doctors
IgM Igenex +/CDC + + 23/25, 30, 31, 34, 41, 83/93
Currently on:
Currently at around 95% +/- most days. Posts: 3134 | From Massachusetts | Registered: May 2010
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nefferdun
Frequent Contributor (1K+ posts)
Member # 20157
posted
Bactrim DS 2X day 500 mg zithro 1X day Nystantin every other day (4 times week) 500 mg Tindamax pulsed two days, one tablet each day
I had cut back to 4 days on and 3 days off but starting getting symptoms so went back to every day. But this morning I am very dizzy and I am afraid it is one of the drugs doing this to me, so I am taking the day off to see what happens. Before I cut back I felt pretty well but was having a lot of trouble sleeping. It is always one thing or another.
-------------------- old joke: idiopathic means the patient is pathological and the the doctor is an idiot Posts: 4676 | From western Montana | Registered: Apr 2009
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posted
Rocephin 3gm IV 4days each week zithromycin 500mg MWF flagyl 1500-2000mg/day pulse 4 days on 3 offx2weeks.
Supplements: MVI alpha lipoic 2xday vit D 5000IU daily omega 3 2xday Nac 600mg 2Xday VSL #3 (probiotic) daily flaxseed oil daily starting transfer factor soon grapefruit seed extract 15 drops 2-3 times day when off flagyl pulse
Posts: 747 | From Utah | Registered: Apr 2010
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TF
Frequent Contributor (5K+ posts)
Member # 14183
posted
Is your doctor Dr. F in Maryland by any chance?
Posts: 9931 | From Maryland | Registered: Dec 2007
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seekhelp
Frequent Contributor (5K+ posts)
Member # 15067
posted
Everyone may want to be a bit careful before rattling off everything they take publicly and connecting it with a doc.
Posts: 7545 | From The 5th Dimension - The Twilight Zone | Registered: Mar 2008
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'Kete-tracker
Frequent Contributor (1K+ posts)
Member # 17189
posted
Quote: "he treats at lower doses for long periods so you don't get bad side effects so you can continue to work..." MY PCP *used* to have that view... until he found his patients, incl. me, fared Much better in the long run when treated at "ILADS" dosing levels. The hypothesis is that ANY invasive bacteria will develop a tolerance to the antbibiotic if exposed at too low a level.
And the tetracyclines, incl. "mino", are Known to only be "bacteriostatic" at lower serum levels. You want to maintain a higher, continuous "bactericidal" level. BTW, I'm surprised your doc isn't combining that minocycline with some Other abx. Both of those (that you listed) Are good in drug combos. I just haven't seen them together by themselves. hmmm
Posts: 1233 | From Dover, NH | Registered: Sep 2008
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posted
Just as an FYI, my LLND said that vitamin d shouldn't be taken with chronic infections...I'm not exactly sure why.
Has anyone else heard this?
-------------------- College Student Suspected tick bite: 07/2007 Diagnosed and started treatment: 01/10 Posts: 33 | From Ohio | Registered: Nov 2009
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