I payed a visit to the old MS specialist that was taken care of me a few months back to bring the doc up to date as to what y igenex findings were and how my LLMD was going about treating it.
The doctor openly admitted that their knowledge about lyme was limited but did however state that most neuro lyme cases have white blood cells in their spinal fluid during examination.
My spinal tap results that i had in December of last year showed no white blood cells in the fluid.
The question i have is; can someone still have neuro lyme without having white blood cells in their spinal fluid??
Posted by TF (Member # 14183) on :
Since the doc openly admittted that his knowledge of lyme is limited, I wouldn't put much stock in what he said.
This is as close as Dr. Burrascano gets to discussing this question in his Lyme Treatment Guidelines:
"Spinal taps are not routinely recommended, as a negative tap does not rule out Lyme. Antibodies to Bb are mostly found in Lyme meningitis, and are rarely seen in non-meningitic CNS infection, including advanced encephalopathy. Even in meningitis, antibodies are detected in the CSF in less than 13% of patients with late disease!...It is especially important to look for elevated protein and white cells, which would dictate the need for more aggressive therapy." (page 8)
My spinal tap was normal, yet I had 2 UBOs (unidentified bright objects) show up on my brain scan. So, I suspect that many others have completely normal spinal taps also.
Anyone with white blood cells (a sign of infection) in their spinal fluid is in big trouble in my opinion.
Posted by Lymetoo (Member # 743) on :
I wouldn't listen either. Wouldn't give that guy the time of day. But then I really dislike neurologists who know nothing about Lyme.
Posted by erikjh1972 (Member # 20964) on :
im with Lymetoo
Posted by scorpiogirl (Member # 31907) on :
I have severe NeuroLyme w/ brain lesions and my spinal tap was "pristine". That's the Neurologist's word choice not mine. So yeah they don't anything about Lyme and co-infections. They told me I would die w/in 6-9 months from my brain lesions b/c they said Lyme does NOT cause brain lesions!