posted
I payed a visit to the old MS specialist that was taken care of me a few months back to bring the doc up to date as to what y igenex findings were and how my LLMD was going about treating it.
The doctor openly admitted that their knowledge about lyme was limited but did however state that most neuro lyme cases have white blood cells in their spinal fluid during examination.
My spinal tap results that i had in December of last year showed no white blood cells in the fluid.
The question i have is; can someone still have neuro lyme without having white blood cells in their spinal fluid??
IGG 30+,39+,41+++ Posts: 80 | From Chicago IL | Registered: Jan 2011
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TF
Frequent Contributor (5K+ posts)
Member # 14183
posted
Since the doc openly admittted that his knowledge of lyme is limited, I wouldn't put much stock in what he said.
This is as close as Dr. Burrascano gets to discussing this question in his Lyme Treatment Guidelines:
"Spinal taps are not routinely recommended, as a negative tap does not rule out Lyme. Antibodies to Bb are mostly found in Lyme meningitis, and are rarely seen in non-meningitic CNS infection, including advanced encephalopathy. Even in meningitis, antibodies are detected in the CSF in less than 13% of patients with late disease!...It is especially important to look for elevated protein and white cells, which would dictate the need for more aggressive therapy." (page 8)
My spinal tap was normal, yet I had 2 UBOs (unidentified bright objects) show up on my brain scan. So, I suspect that many others have completely normal spinal taps also.
Anyone with white blood cells (a sign of infection) in their spinal fluid is in big trouble in my opinion.
Posts: 9931 | From Maryland | Registered: Dec 2007
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-------------------- 3 months Doxy 8 months of Tetra 7 months of Biaxin/Plaq. 4 months Doxy/Biaxin/Plaq. 5 months Biaxin/Plaq. Back on Doxy/Biax/Plaq On the road to recovery. Trying to make people Lyme Aware....... Posts: 289 | From R.I. | Registered: Jun 2009
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scorpiogirl
Frequent Contributor (1K+ posts)
Member # 31907
posted
I have severe NeuroLyme w/ brain lesions and my spinal tap was "pristine". That's the Neurologist's word choice not mine. So yeah they don't anything about Lyme and co-infections. They told me I would die w/in 6-9 months from my brain lesions b/c they said Lyme does NOT cause brain lesions!
-------------------- Posts: 1391 | From Lyme Land | Registered: May 2011
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