I am having a really hard time with abx. Between the herxing and them messing up my stomach so bad. I am okay with Bicillan injections. But the antibiotcs are really destroying my gut.
I have an appt with my LLMD on Jan 19th. They wanted me to try Byron White before and I said know because I felt they would not get me well.
Can Byron white herbs be used as a stand alone treatment? Can Byron Whites alone get you into remission??
I am so confused on what to do. I just pray to god to point me in the right direction.
Posted by richedie (Member # 14689) on :
I would save your money. I have tried ABX and other meds for years and then herbs for for another year or two with no impreovement. I think the companies pushing these herbs are just out to make a buck off of people suffering. I am not even sure I believe in the Lyme dyagnosis any longer. I gave up on treatment.
Posted by tricia386 (Member # 29623) on :
Oh richedie-
Do you have LLMD? Why have you given up on treatment??
Posted by unsure445 (Member # 15962) on :
Hi Tricia, I have used the combination of Byron White herbs and Bicillin Injections and it has helped tremendously.
Byron White herbs are very potent and do take the infections down in layers in a very subtle but powerful way.
I don't think you can take more than 2 or 3 formulas at once so with the injections you might just take the A-L formula and A- Bart and switch out to different formulas later on.
You will herx though with the same intensity as with antibiotics. Its part of the package as you know.
Good luck. With a few more years or Lyme treatment than I would have liked I can honestly say that whatever route you go requires lots of time. There is no quick fix for this disease unfortunately...
Posted by tricia386 (Member # 29623) on :
I just think Herbs are a safe way to go for long term treatment.
Posted by richedie (Member # 14689) on :
Nope, I no longer see an LLMD. I don't know how people can see an LLMD long term. People must be millionaires or take donations. I knew it had to end sooner or later. I now just have gone back to living normal, eating like I used too, exercising, etc. I live with pain everyday and burning tingling but I find ways to manage. I just chaulk it up to auto immune disease or MGUS and happily take my pain meds.
Posted by surprise (Member # 34987) on :
I have also found the Byron White drops powerful.
Posted by tricia386 (Member # 29623) on :
Suprise-
Did you feel like they can get you better alone?
Posted by robbiem (Member # 32092) on :
Tricia
They are nothing short of miraculous, imo.
If you have hit the wall with the antibiotics, then take a break and give it a try.
But make sure you research.
This is a long thread, but worth your time in getting an idea of the protocol, the formulas as well as dosing, herxing and taking dosage down when getting a full on herx.
I love Byron White protocols. I am taking A-BABS,A-BART and AV antiviral.
I have not done ABX at all. I have been ill with Lyme and co for at least 30 yrs.
I have had some positive shifts
They r very strong herbals. Got to go slow and ramp up. I am glad my md is into them and he has the BW testing vials that r great at watching progress.
Posted by pooldog71 (Member # 21722) on :
Santa Cruz
What are the testing vials? Have not heard of them...
Thanks & Happy New Year
Posted by MichaelTampa (Member # 24868) on :
I have found them fairly strong and good stuff and helpful, relatively speaking. I haven't found them to be the thing to get me over the hump, though. Of course, neither abx nor anything else I have done to this point has done that either.
Posted by Toppers (Member # 20083) on :
I have been taking solely A-Bart the past month, and have been happy with the results (no abx regime is always a plus, stuff barely works and trashes your body).
Be extremely careful and take the full 7 days before upping the dosage. I got careless around the 4-5 drop mark and moved up too quick, and spent 3 days laying in bed in extreme pain.
Now I'm off and have to ramp up again. This isn't Cumanda or something you are going to be taking teaspoon fulls at a time.
Posted by robbiem (Member # 32092) on :
I agree with Toppers --- they can mess you up badly if you aren't careful--partially why I have great respect for them.
But there is I believe some validity, too, with MichaelTampa's observation about it not being the be all and end all -- thus far nothing has truly proven to be --
But I think that a host of people, such as Byron White, as one example, are coming up with better and better means of treatment and greater realizations overall on just how much bigger the true picture is in how exactly we became ill, aside from Lyme Disease alone.
Posted by tricia386 (Member # 29623) on :
I just feel like antibiotics cause side effects and do more damage to the body. I mean I know lyme is a long treatment and I would like to be as gentle on my body as possibble.
Posted by Healing in Santa Cruz (Member # 7798) on :
Pooldog My Md went to a Byron White seminar and he bought Byrons testing vials. The have all kinds of bacterias,viruses,metals and more in them.
My Doc then energy tests me with them.Muscle tests.He has a chart to write where my levels r each time I see him.
Bart,Babs,Lyme,metals,Powassan virus,mold and more r down for me. Posted by tricia386 (Member # 29623) on :
Healing...how were teh herxs. I cant seem to handle herxs that well...
Posted by richedie (Member # 14689) on :
Maybe if I can afford them next summer, I will try the Byron White herbs. Symptoms right now are left arm pain, right foot pain, sore soles at times. Oh, and floaters. I have MGUS so my doctor says that alone can cause my symptoms and I see a pain management team at Fox Chase in Philly. Unfortunately I can't afford to see an LLMD any longer. I only see docs that take insurance. One thing I am thankful for is that no matter what this that I have, it is not stopping me physically. I have gotten back into bodybuilding and am lifting very heavy.
Posted by jackie51 (Member # 14233) on :
BWH herxes are gentle if you are ramping slowly. They are gawdawful if you ramp too fast. I would suggest you make a chart/spreadsheet to track your dosage. A column for comments is helpful so you know how your reacted. After you see you've gone a few days without any real change, up it a drop.
Best to go slow. I recently restarted at too high a dose and had a frightful night of bart herxes. First time I ever had the striae lines show up. If I ever doubted I had bart, I certainly don't now.
Posted by randibear (Member # 11290) on :
if somebody has Bart what would you start with?
Posted by canefan17 (Member # 22149) on :
Why not use both abxs and herbs?
Buhner says many herbs (e.g. Knotweed) help the abxs become much more effective.
Usually through 1 of these 3 methods..
1) P-glycoprotein inhibitor � this allows more of a substance into the body
2) Deactivates bacterial defense mechanisms, usually efflux inhibitors
3) Acts as a carrier
Posted by richedie (Member # 14689) on :
Well I am done with ABX. They destroy your immune system, your gut and gave me candida issues. Never again.
Posted by RZR (Member # 20953) on :
Do BW Formulas also cause candida?
Posted by robbiem (Member # 32092) on :
quote:Originally posted by randibear: if somebody has Bart what would you start with?
Here's the thing, if you study up on these things, it depends on what you test positive for first.
Although you have Bart and are aiming to treat it, Byron's entire protocol is based on starting on the top layer of what the body wants and would benefit from having addressed first.
As an example: My LLMD was targeting Babesia -- so went with the formula, A-Babs.
The herx was so over the top that I was retested with the use of the mini vials, and tested positive for the parasite & candida protocol.
This method, B. White feels, cuts to the chase, so that the patient's body is directly able to have things addressed in the most productive order --- that way there isn't as much of a chance doubling back 2-3 or more times again and again to the same formulas to target the identical pathogens to be treated.
By far, learning self kinesology is highly recommended
It has and will continue to save me many times over.
Not letting your fears or skepticism get in the way and taking the short amount of time it takes to actually learn to test through any available means is highly beneficial.
There are many valuable resources out there that offer a variety of different ways to actually do it on yourself -- it's all entirely a matter of choice.
Posted by tricia386 (Member # 29623) on :
I would love to learn how to test. Could you pm me?
Posted by tricia386 (Member # 29623) on :
I would love to learn how to test. Could you pm me?
Posted by randibear (Member # 11290) on :
Me too
Posted by Healing in Santa Cruz (Member # 7798) on :
Tricia Herxs were rough for me,but I herx hard with everything mainly do to detox problems
Better since KPU protocol though.
Some people even start with 1/2 drop or less and ramp up slowly.
I am glad I am doing them.
Buhner and Byron say u can do them with ABX. My Doc and I choose not to do so.
Many people here use a Biotensor http://www.self-health.net to self test. You can also use a Pendulum. There r many ways and if u do a google search for energy testing,muscle testing,sway test,Kinesology etc.
Some do it with their fingers. I use a Biotensor and a Pendy. I run neck and neck with my Md
Posted by robbiem (Member # 32092) on :
Bobbers can be worked with, too and are very easy to learn to use:
Do directions come with any methods?
Posted by tricia386 (Member # 29623) on :
Thank you so much robbiem I cant wait to try.
Posted by RZR (Member # 20953) on :
This is so amazing!
Thank you robbiem.
Posted by robbiem (Member # 32092) on :
You are welcome!
If it seems sort of unbelievable or "out there" still keep at it and practice alot -- you'll be amazed at how well it actually works.
Posted by Catgirl (Member # 31149) on :
Great thread!
Posted by willbeatthis (Member # 31111) on :
Thank you RobbieM. I just found out Bacardi isn't good for me and water is I thought, well that will be a good (definitive) test. Thank you...
On a more serious note... this will help me when I get back from Germany in particular as it isn't practical (at all) to have to go to my holistic chiro at any whim.
Posted by Catgirl (Member # 31149) on :
How long did you stay on one formula before you added another formula? I'm ramping slowly, but not sure when to add the next one in.
Posted by Catgirl (Member # 31149) on :
Robbie, thank you for the self testing info. I am so clueless, though, I don't know what to do with it? I did the finger thing, but what does that mean? How does that apply to what I should be on? Or does it measure if it's working?
My doc didn't do any testing on me. He just knew what I needed based upon my symptoms.
Posted by horsefly (Member # 34232) on :
Tried them last year - what a huge waste of money. My LLMD believes in them- not only did i herx worse than on abx, I didn't have any good days at all, though I started off with one little drop and ramped up.
I think BW stuff is waaay hyped up, sometimes when the docs don't know what to do with you that's what they recommend. Many pts I talked to could walk, talk, drive, etc. so their immune systems weren't too bad... THEN maybe herbs can help. I'd take my chances with abx anyday over this stuff. Expensive and a waste of my time and $$!
Posted by horsefly (Member # 34232) on :
this is an old thread-I wonder how tricia did on the BW herbs. To edit what i said earlier, I don't discount *any* form of tx. I just think that a lot of people here need the 'boost' from herbs and supps and not necessary abx... wow-weightlifting! I'm lucky I can get from my bed to the bathrm..! someday maybe!!
Posted by LymeLogged (Member # 36494) on :
I credit BWF's for helping to put my child into remission. Been in remission for 6 months now.
Of course Rifampin, Cednifer, Septra, Plaquenil and Tindamax helped too.
He will continue the max pediatric dose of A-Bart and A-L for another 6 months.
Posted by tricia386 (Member # 29623) on :
Hey is me. I am doing Abart and it is kicking my butt from here to China. I have been on it about 3 weeks now. I do herx and I do have to take a break here and there. I am only up to 2 drops a day. Must start out very slow. I am also on antibiotics as well and other herbs.
Posted by LymeLogged (Member # 36494) on :
Nothing wrong with going up 1/2 drop per week, or even 1/4. My child started at 1/8 drop per day. Took months to get him to 7 drops.
![[Frown]](frown.gif)
![[Smile]](smile.gif)
![[Wink]](wink.gif)
I thought, well that will be a good (definitive) test. Thank you...