Topic: Thinking of Switching to Byron White Protocol
tricia386
Frequent Contributor (1K+ posts)
Member # 29623
posted
I am having a really hard time with abx. Between the herxing and them messing up my stomach so bad. I am okay with Bicillan injections. But the antibiotcs are really destroying my gut.
I have an appt with my LLMD on Jan 19th. They wanted me to try Byron White before and I said know because I felt they would not get me well.
Can Byron white herbs be used as a stand alone treatment? Can Byron Whites alone get you into remission??
I am so confused on what to do. I just pray to god to point me in the right direction.
-------------------- Lyme activated in April 2010 by gardasil vaccine. DX: Lyme,Babs,Myco,Bart 11/10 Treatment Started: 3/28/11 Posts: 1752 | From Albany, NY | Registered: Dec 2010
| IP: Logged |
richedie
Frequent Contributor (1K+ posts)
Member # 14689
posted
I would save your money. I have tried ABX and other meds for years and then herbs for for another year or two with no impreovement. I think the companies pushing these herbs are just out to make a buck off of people suffering. I am not even sure I believe in the Lyme dyagnosis any longer. I gave up on treatment.
-------------------- Mepron/Zith/Ceftin Doxy/Biaxin/Flagyl pulse. Artemisinin with Doxy/Biaxin. Period of Levaquin and Ceftin. Then Levaquin, Bactrim and Biaxin. Bactrim/Augmentin/Rifampin. Mepron/Biaxin/Artemisinin/Cat's Claw Rifampin/Bactrim/Alinia Plaquenil/Biaxin Posts: 1949 | From Pennsylvania | Registered: Feb 2008
| IP: Logged |
tricia386
Frequent Contributor (1K+ posts)
Member # 29623
posted
Oh richedie-
Do you have LLMD? Why have you given up on treatment??
-------------------- Lyme activated in April 2010 by gardasil vaccine. DX: Lyme,Babs,Myco,Bart 11/10 Treatment Started: 3/28/11 Posts: 1752 | From Albany, NY | Registered: Dec 2010
| IP: Logged |
posted
Hi Tricia, I have used the combination of Byron White herbs and Bicillin Injections and it has helped tremendously.
Byron White herbs are very potent and do take the infections down in layers in a very subtle but powerful way.
I don't think you can take more than 2 or 3 formulas at once so with the injections you might just take the A-L formula and A- Bart and switch out to different formulas later on.
You will herx though with the same intensity as with antibiotics. Its part of the package as you know.
Good luck. With a few more years or Lyme treatment than I would have liked I can honestly say that whatever route you go requires lots of time. There is no quick fix for this disease unfortunately...
-------------------- unsure445 Posts: 824 | From northeast | Registered: Jun 2008
| IP: Logged |
tricia386
Frequent Contributor (1K+ posts)
Member # 29623
posted
I just think Herbs are a safe way to go for long term treatment.
-------------------- Lyme activated in April 2010 by gardasil vaccine. DX: Lyme,Babs,Myco,Bart 11/10 Treatment Started: 3/28/11 Posts: 1752 | From Albany, NY | Registered: Dec 2010
| IP: Logged |
richedie
Frequent Contributor (1K+ posts)
Member # 14689
posted
Nope, I no longer see an LLMD. I don't know how people can see an LLMD long term. People must be millionaires or take donations. I knew it had to end sooner or later. I now just have gone back to living normal, eating like I used too, exercising, etc. I live with pain everyday and burning tingling but I find ways to manage. I just chaulk it up to auto immune disease or MGUS and happily take my pain meds.
-------------------- Mepron/Zith/Ceftin Doxy/Biaxin/Flagyl pulse. Artemisinin with Doxy/Biaxin. Period of Levaquin and Ceftin. Then Levaquin, Bactrim and Biaxin. Bactrim/Augmentin/Rifampin. Mepron/Biaxin/Artemisinin/Cat's Claw Rifampin/Bactrim/Alinia Plaquenil/Biaxin Posts: 1949 | From Pennsylvania | Registered: Feb 2008
| IP: Logged |
surprise
Frequent Contributor (1K+ posts)
Member # 34987
posted
I have also found the Byron White drops powerful.
-------------------- Lyme positive PCR blood, and positive Bartonella henselae Igenex, 2011. low positive Fry biofilm test, 2012. Update 7/16- After extensive treatments, doing okay! Posts: 2518 | From USA | Registered: Nov 2011
| IP: Logged |
tricia386
Frequent Contributor (1K+ posts)
Member # 29623
posted
Suprise-
Did you feel like they can get you better alone?
-------------------- Lyme activated in April 2010 by gardasil vaccine. DX: Lyme,Babs,Myco,Bart 11/10 Treatment Started: 3/28/11 Posts: 1752 | From Albany, NY | Registered: Dec 2010
| IP: Logged |
If you have hit the wall with the antibiotics, then take a break and give it a try.
But make sure you research.
This is a long thread, but worth your time in getting an idea of the protocol, the formulas as well as dosing, herxing and taking dosage down when getting a full on herx.
posted
I love Byron White protocols. I am taking A-BABS,A-BART and AV antiviral.
I have not done ABX at all. I have been ill with Lyme and co for at least 30 yrs.
I have had some positive shifts
They r very strong herbals. Got to go slow and ramp up. I am glad my md is into them and he has the BW testing vials that r great at watching progress.
Posts: 905 | From Santa Cruz,Calif | Registered: Aug 2005
| IP: Logged |
What are the testing vials? Have not heard of them...
Thanks & Happy New Year
Posts: 164 | From California | Registered: Aug 2009
| IP: Logged |
MichaelTampa
Frequent Contributor (1K+ posts)
Member # 24868
posted
I have found them fairly strong and good stuff and helpful, relatively speaking. I haven't found them to be the thing to get me over the hump, though. Of course, neither abx nor anything else I have done to this point has done that either.
Posts: 1927 | From se usa | Registered: Mar 2010
| IP: Logged |
posted
I have been taking solely A-Bart the past month, and have been happy with the results (no abx regime is always a plus, stuff barely works and trashes your body).
Be extremely careful and take the full 7 days before upping the dosage. I got careless around the 4-5 drop mark and moved up too quick, and spent 3 days laying in bed in extreme pain.
Now I'm off and have to ramp up again. This isn't Cumanda or something you are going to be taking teaspoon fulls at a time.
Posts: 501 | From Cleveland Ohio | Registered: Apr 2009
| IP: Logged |
posted
I agree with Toppers --- they can mess you up badly if you aren't careful--partially why I have great respect for them.
But there is I believe some validity, too, with MichaelTampa's observation about it not being the be all and end all -- thus far nothing has truly proven to be --
But I think that a host of people, such as Byron White, as one example, are coming up with better and better means of treatment and greater realizations overall on just how much bigger the true picture is in how exactly we became ill, aside from Lyme Disease alone.
Posts: 192 | From New England | Registered: May 2011
| IP: Logged |
tricia386
Frequent Contributor (1K+ posts)
Member # 29623
posted
I just feel like antibiotics cause side effects and do more damage to the body. I mean I know lyme is a long treatment and I would like to be as gentle on my body as possibble.
-------------------- Lyme activated in April 2010 by gardasil vaccine. DX: Lyme,Babs,Myco,Bart 11/10 Treatment Started: 3/28/11 Posts: 1752 | From Albany, NY | Registered: Dec 2010
| IP: Logged |
posted
Pooldog My Md went to a Byron White seminar and he bought Byrons testing vials. The have all kinds of bacterias,viruses,metals and more in them.
My Doc then energy tests me with them.Muscle tests.He has a chart to write where my levels r each time I see him.
Bart,Babs,Lyme,metals,Powassan virus,mold and more r down for me. Posts: 905 | From Santa Cruz,Calif | Registered: Aug 2005
| IP: Logged |
tricia386
Frequent Contributor (1K+ posts)
Member # 29623
posted
Healing...how were teh herxs. I cant seem to handle herxs that well...
-------------------- Lyme activated in April 2010 by gardasil vaccine. DX: Lyme,Babs,Myco,Bart 11/10 Treatment Started: 3/28/11 Posts: 1752 | From Albany, NY | Registered: Dec 2010
| IP: Logged |
richedie
Frequent Contributor (1K+ posts)
Member # 14689
posted
Maybe if I can afford them next summer, I will try the Byron White herbs. Symptoms right now are left arm pain, right foot pain, sore soles at times. Oh, and floaters. I have MGUS so my doctor says that alone can cause my symptoms and I see a pain management team at Fox Chase in Philly. Unfortunately I can't afford to see an LLMD any longer. I only see docs that take insurance. One thing I am thankful for is that no matter what this that I have, it is not stopping me physically. I have gotten back into bodybuilding and am lifting very heavy.
-------------------- Mepron/Zith/Ceftin Doxy/Biaxin/Flagyl pulse. Artemisinin with Doxy/Biaxin. Period of Levaquin and Ceftin. Then Levaquin, Bactrim and Biaxin. Bactrim/Augmentin/Rifampin. Mepron/Biaxin/Artemisinin/Cat's Claw Rifampin/Bactrim/Alinia Plaquenil/Biaxin Posts: 1949 | From Pennsylvania | Registered: Feb 2008
| IP: Logged |
jackie51
Frequent Contributor (1K+ posts)
Member # 14233
posted
BWH herxes are gentle if you are ramping slowly. They are gawdawful if you ramp too fast. I would suggest you make a chart/spreadsheet to track your dosage. A column for comments is helpful so you know how your reacted. After you see you've gone a few days without any real change, up it a drop.
Best to go slow. I recently restarted at too high a dose and had a frightful night of bart herxes. First time I ever had the striae lines show up. If I ever doubted I had bart, I certainly don't now.
Posts: 1374 | From Crazy Town | Registered: Dec 2007
| IP: Logged |
randibear
Honored Contributor (10K+ posts)
Member # 11290
posted
if somebody has Bart what would you start with?
-------------------- do not look back when the only course is forward Posts: 12262 | From texas | Registered: Mar 2007
| IP: Logged |
canefan17
Frequent Contributor (5K+ posts)
Member # 22149
posted
Why not use both abxs and herbs?
Buhner says many herbs (e.g. Knotweed) help the abxs become much more effective.
Usually through 1 of these 3 methods..
1) P-glycoprotein inhibitor � this allows more of a substance into the body
2) Deactivates bacterial defense mechanisms, usually efflux inhibitors
3) Acts as a carrier
Posts: 5394 | From Houston, Tx | Registered: Aug 2009
| IP: Logged |
richedie
Frequent Contributor (1K+ posts)
Member # 14689
posted
Well I am done with ABX. They destroy your immune system, your gut and gave me candida issues. Never again.
-------------------- Mepron/Zith/Ceftin Doxy/Biaxin/Flagyl pulse. Artemisinin with Doxy/Biaxin. Period of Levaquin and Ceftin. Then Levaquin, Bactrim and Biaxin. Bactrim/Augmentin/Rifampin. Mepron/Biaxin/Artemisinin/Cat's Claw Rifampin/Bactrim/Alinia Plaquenil/Biaxin Posts: 1949 | From Pennsylvania | Registered: Feb 2008
| IP: Logged |
RZR
Frequent Contributor (1K+ posts)
Member # 20953
posted
Do BW Formulas also cause candida?
-------------------- Tick bite May 2009 Diagnosed June 2009 Posts: 2329 | From SouthEast | Registered: Jun 2009
| IP: Logged |
quote:Originally posted by randibear: if somebody has Bart what would you start with?
Here's the thing, if you study up on these things, it depends on what you test positive for first.
Although you have Bart and are aiming to treat it, Byron's entire protocol is based on starting on the top layer of what the body wants and would benefit from having addressed first.
As an example: My LLMD was targeting Babesia -- so went with the formula, A-Babs.
The herx was so over the top that I was retested with the use of the mini vials, and tested positive for the parasite & candida protocol.
This method, B. White feels, cuts to the chase, so that the patient's body is directly able to have things addressed in the most productive order --- that way there isn't as much of a chance doubling back 2-3 or more times again and again to the same formulas to target the identical pathogens to be treated.
By far, learning self kinesology is highly recommended
It has and will continue to save me many times over.
Not letting your fears or skepticism get in the way and taking the short amount of time it takes to actually learn to test through any available means is highly beneficial.
There are many valuable resources out there that offer a variety of different ways to actually do it on yourself -- it's all entirely a matter of choice.
Posts: 192 | From New England | Registered: May 2011
| IP: Logged |
tricia386
Frequent Contributor (1K+ posts)
Member # 29623
posted
I would love to learn how to test. Could you pm me?
-------------------- Lyme activated in April 2010 by gardasil vaccine. DX: Lyme,Babs,Myco,Bart 11/10 Treatment Started: 3/28/11 Posts: 1752 | From Albany, NY | Registered: Dec 2010
| IP: Logged |
tricia386
Frequent Contributor (1K+ posts)
Member # 29623
posted
I would love to learn how to test. Could you pm me?
-------------------- Lyme activated in April 2010 by gardasil vaccine. DX: Lyme,Babs,Myco,Bart 11/10 Treatment Started: 3/28/11 Posts: 1752 | From Albany, NY | Registered: Dec 2010
| IP: Logged |
randibear
Honored Contributor (10K+ posts)
Member # 11290
posted
Me too
-------------------- do not look back when the only course is forward Posts: 12262 | From texas | Registered: Mar 2007
| IP: Logged |
posted
Tricia Herxs were rough for me,but I herx hard with everything mainly do to detox problems
Better since KPU protocol though.
Some people even start with 1/2 drop or less and ramp up slowly.
I am glad I am doing them.
Buhner and Byron say u can do them with ABX. My Doc and I choose not to do so.
Many people here use a Biotensor http://www.self-health.net to self test. You can also use a Pendulum. There r many ways and if u do a google search for energy testing,muscle testing,sway test,Kinesology etc.
Some do it with their fingers. I use a Biotensor and a Pendy. I run neck and neck with my Md
Posts: 905 | From Santa Cruz,Calif | Registered: Aug 2005
| IP: Logged |
RZR
Frequent Contributor (1K+ posts)
Member # 20953
posted
I would also love to learn self testing.
Is the Biotensor easy to use?
Do directions come with any methods?
-------------------- Tick bite May 2009 Diagnosed June 2009 Posts: 2329 | From SouthEast | Registered: Jun 2009
| IP: Logged |
tricia386
Frequent Contributor (1K+ posts)
Member # 29623
posted
Thank you so much robbiem I cant wait to try.
-------------------- Lyme activated in April 2010 by gardasil vaccine. DX: Lyme,Babs,Myco,Bart 11/10 Treatment Started: 3/28/11 Posts: 1752 | From Albany, NY | Registered: Dec 2010
| IP: Logged |
RZR
Frequent Contributor (1K+ posts)
Member # 20953
posted
This is so amazing!
Thank you robbiem.
-------------------- Tick bite May 2009 Diagnosed June 2009 Posts: 2329 | From SouthEast | Registered: Jun 2009
| IP: Logged |
If it seems sort of unbelievable or "out there" still keep at it and practice alot -- you'll be amazed at how well it actually works.
Posts: 192 | From New England | Registered: May 2011
| IP: Logged |
Catgirl
Frequent Contributor (5K+ posts)
Member # 31149
posted
Great thread!
-------------------- --Keep an open mind about everything. Also, remember to visit ACTIVISM (we can change things together). Posts: 5418 | From earth | Registered: Mar 2011
| IP: Logged |
posted
Thank you RobbieM. I just found out Bacardi isn't good for me and water is I thought, well that will be a good (definitive) test. Thank you...
On a more serious note... this will help me when I get back from Germany in particular as it isn't practical (at all) to have to go to my holistic chiro at any whim.
Posts: 859 | From Southeast | Registered: Mar 2011
| IP: Logged |
Catgirl
Frequent Contributor (5K+ posts)
Member # 31149
posted
How long did you stay on one formula before you added another formula? I'm ramping slowly, but not sure when to add the next one in.
-------------------- --Keep an open mind about everything. Also, remember to visit ACTIVISM (we can change things together). Posts: 5418 | From earth | Registered: Mar 2011
| IP: Logged |
Catgirl
Frequent Contributor (5K+ posts)
Member # 31149
posted
Robbie, thank you for the self testing info. I am so clueless, though, I don't know what to do with it? I did the finger thing, but what does that mean? How does that apply to what I should be on? Or does it measure if it's working?
My doc didn't do any testing on me. He just knew what I needed based upon my symptoms.
-------------------- --Keep an open mind about everything. Also, remember to visit ACTIVISM (we can change things together). Posts: 5418 | From earth | Registered: Mar 2011
| IP: Logged |
posted
Tried them last year - what a huge waste of money. My LLMD believes in them- not only did i herx worse than on abx, I didn't have any good days at all, though I started off with one little drop and ramped up.
I think BW stuff is waaay hyped up, sometimes when the docs don't know what to do with you that's what they recommend. Many pts I talked to could walk, talk, drive, etc. so their immune systems weren't too bad... THEN maybe herbs can help. I'd take my chances with abx anyday over this stuff. Expensive and a waste of my time and $$!
Posts: 72 | From out there.. | Registered: Sep 2011
| IP: Logged |
posted
this is an old thread-I wonder how tricia did on the BW herbs. To edit what i said earlier, I don't discount *any* form of tx. I just think that a lot of people here need the 'boost' from herbs and supps and not necessary abx... wow-weightlifting! I'm lucky I can get from my bed to the bathrm..! someday maybe!!
Posts: 72 | From out there.. | Registered: Sep 2011
| IP: Logged |
posted
I credit BWF's for helping to put my child into remission. Been in remission for 6 months now.
Of course Rifampin, Cednifer, Septra, Plaquenil and Tindamax helped too.
He will continue the max pediatric dose of A-Bart and A-L for another 6 months.
Posts: 74 | From NEPA | Registered: Mar 2012
| IP: Logged |
tricia386
Frequent Contributor (1K+ posts)
Member # 29623
posted
Hey is me. I am doing Abart and it is kicking my butt from here to China. I have been on it about 3 weeks now. I do herx and I do have to take a break here and there. I am only up to 2 drops a day. Must start out very slow. I am also on antibiotics as well and other herbs.
-------------------- Lyme activated in April 2010 by gardasil vaccine. DX: Lyme,Babs,Myco,Bart 11/10 Treatment Started: 3/28/11 Posts: 1752 | From Albany, NY | Registered: Dec 2010
| IP: Logged |
posted
Nothing wrong with going up 1/2 drop per week, or even 1/4. My child started at 1/8 drop per day. Took months to get him to 7 drops.
Posts: 74 | From NEPA | Registered: Mar 2012
| IP: Logged |
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/
UBBFriend: Email this page to someone!
![[Frown]](frown.gif)
![[Smile]](smile.gif)
![[Wink]](wink.gif)
I thought, well that will be a good (definitive) test. Thank you...
Printer-friendly view of this topic