I pre-registered with a deposit for the Stephen Buhner Seminar on Lyme and Co-infections in Sturbridge, MA on Saturday, June 15th.. I would still like to go---at least in the ideal! I'm not 100% sure about my capability physically.
Is anyone else going, or might you go, to share a room? Or, are you definitely going, and do you think a that you, or someone you know, will take notes and share them?
I should reserve a room ASAP, I think, to stay over on Friday night. I have some place else to stay on Saturday night.
[Mods, could you please leave this in Medical, just as a stub, to let people know to go to General Support to respond? Thank you!].
This was not well-publicized at all, so, actually, maybe it should stay here(?).
[ 05-29-2013, 06:02 PM: Message edited by: Rumigirl ]
Posted by seibertneurolyme (Member # 6416) on :
Is there a link to the schedule for the seminar?
Thanks. Bea Seibert
Posted by Keebler (Member # 12673) on :
- I sure wish I could go this. How fabulous that would be! I'll just click my ruby slippers, eh?
I wish he could put this on DVD for purchase later -- or run a live feed? But all that costs a lot, I imagine.
They should set up massage tables, bring in massage therapists during the talks. THAT would be great idea for any seminars, I think.
Iced Green Tea with tiny umbrellas and sprig of fresh mint, too. I can set a scene even from 3,000 miles away. -
Posted by dbpei (Member # 33574) on :
I already registered for this and am disappointed that now I will not be able to go. I am scheduled for oral surgery that week for a bad dental infection. I was told I could get my $50 deposit back if I can find someone to go in my place. Please PM me if you are interested! Thank you in advance.
Posted by Rumigirl (Member # 15091) on :
quote:Originally posted by dbpei: I already registered for this and am disappointed that now I will not be able to go. I am scheduled for oral surgery that week for a bad dental infection. I was told I could get my $50 deposit back if I can find someone to go in my place. Please PM me if you are interested! Thank you in advance.
Oh, poopy!! What a shame. I just pray that I am physically able to go.
Posted by Rumigirl (Member # 15091) on :
quote:Originally posted by seibertneurolyme: Is there a link to the schedule for the seminar?
I was really thinking about you and this, as I figured that it was right up your alley. I hope that you can go!
If you want to share a room, let me know. That would be an honor!
Posted by Rumigirl (Member # 15091) on :
quote:Originally posted by Keebler: - I sure wish I could go this. How fabulous that would be! I'll just click my ruby slippers, eh?
I wish he could put this on DVD for purchase later -- or run a live feed? But all that costs a lot, I imagine. -
Oh, Keebler, I wish that you could go. Hopefully, one of us will go and take notes and share them. A DVD would be fabulous; it would seem surprising, if they don't have it. But I am not sure if they will or not.
Posted by Catgirl (Member # 31149) on :
This looks like it will be interesting (thanks for posting)!
Posted by seibertneurolyme (Member # 6416) on :
Rumigirl.
I would love to go, but since I am going to the LDA conference this weekend in Minnesota I am not sure if I will be up for another road trip so soon. I will wait and see how the car holds up and how worn out I am before deciding.
Bea Seibert
Posted by Rumigirl (Member # 15091) on :
I emailed S. B., and was told that there are no plans for a CD or DVD of the event. He also said that he will go over material not in any of his books, including the new one.
This will be the last seminar on Lyme that he will ever give, according to him. (And the last seminars that he will give period).
If anyone wants to share a room on Friday, 6/14, please PM me.
Posted by seibertneurolyme (Member # 6416) on :
Rumigirl,
Thanks so much for the update. If I survive this weekend then I will definitely be attending.
Bea Seibert
Posted by Tracy9 (Member # 7521) on :
Rumigirl, I was not even aware of this and I only live 15 minutes from Sturbridge. You are more than welcome to stay at my messy house if you like.
Posted by seibertneurolyme (Member # 6416) on :
Bringing this back to the top.
Called about the conference today. They said about 150 people have registered so far and it will be held in an auditorium that seats 300. You can pay the registration fee by cash or check only (no credit cards) at the door if not yet registered.
Bea Seibert
Posted by Rumigirl (Member # 15091) on :
It was not well publicized. He is brilliant! ANd it will be his last Lyme seminar, and his last few seminars ever.
He just came out with a new book on Mycoplasmas and Bart. You can read parts of it on Amazon. He's coming out with a few more soon.
Don't forget to order through LN, when you order on Amazon.
Posted by Catgirl (Member # 31149) on :
This seminar was really good! I'm trying to absorb it all now. I ended up buying some of his books.
Posted by Rumigirl (Member # 15091) on :
quote:Originally posted by Catgirl: This seminar was really good! I'm trying to absorb it all now. I ended up buying some of his books.
Sadly, I wasn't able to go after all---I am not doing so well. So, if you, and anyone else who went, can share notes, etc., that would be great! I was really disappointed not to go.
Did he answer questions?
Posted by dbpei (Member # 33574) on :
Sorry you are not doing well Rumigirl. I was so sad that I could not be there as well.
I bought his last 2 books recently. Trying to absorb the info is challenging for me, just having had my oral surgery. The stuff on mycoplasma is amazing. Scary, though...
It will be good to hear from those who attended. I am sure there was so much information to digest. Glad you were able to make it there, Catgirl!
Posted by seibertneurolyme (Member # 6416) on :
Just got home -- drove the 700 miles all in one day. But since I got an early start at a quarter til 6 in the morning I missed all the traffic tieups I encountered on the way to the conference on Friday. I think it took an additional 2 or 3 hours for the trip up but I did split that into 2 days.
I really didn't get much new from the info on lyme. But lots of new info on babs, bart, mycoplasma and even ehrlichia.
Graciously Buhner allowed people to record the conference. He sat in a chair on stage and just talked into a microphone from his notes -- no handouts or powerpoint visuals.
Yes, lots of time devoted to questions and he even stayed afterwards to sign books and answer more questions.
I will post info tomorrow from my notes and then later see if I need to add anything after I listen to the recording.
Buhner is planning to release a book on antiviral herbs this fall, followed by a book on babesia (I think he said he was half way thru writing that one) and then in maybe 2014 an updated lyme book.
I sat next to an herbalist from Quebec and saw at least one ILADS doc that I knew. I would say the audience was maybe 30 percent herbalists, 20 percent other physicians and 50 percent patients. That is just a guess.
Bea Seibert
Posted by Catgirl (Member # 31149) on :
Rumi and dbpei, so sorry you couldn't make it. My notes are in bits and pieces. I was also late to the seminar and missed the first hour and a half, so if anyone has something to add, it would be great. Please ignore spelling errors, it was all I could do to take notes. Also his books have more detail (dosages, etc).
Stephen Buhner's way of looking at lyme (and everything else) is fascinating. He quoted Lynn Margulis viewpoint on spirochetes: "They have more important things to do than kill us". Then Stephen said that everything starts with a tremendous respect for what they are. "They are intelligent and aware."
He said that it's best to let the microbes not care about what they're doing by loving them.
He said to support the body itself, and that the immune system is essential (this was a major point of his). He said that every research paper he has read has noted that the severity of the symptoms are directly related to immune health. Immune status has to be addressed.
There is no one right way to treat the disease. They adapt to fit everybody's body. Lyme pathogens should be thought of as a swarm. Each single bacteria is only one part of the whole. You will know your health better than anyone else ever will.
You can�t take people�s suffering away from them. It�s really important that they ask. They have to want the help.
He also said that a minimum of one hour is needed for lyme patients.
Buhner also made a strong point "Don't take your eye off of energy levels". He basically said we need to watch and manage our energy (don't do too much to wear yourself out). You can get well and find your way!
Straight abx won�t work for some people. There is a massive relapse rate on abx. He thinks that abx work for about 60% of people.
He stressed several times that it is very important to stop the cytokine cascade. If you stop it, the disease process is stopped. He said that some people started on Japanese knotweed, and two weeks later they were fine. Japanese knotweed stops the cytokine cascade. Then cellular breakdown stops and the organism can�t get nutrients and they stop. You can use abx with this protocol, and herbs work really well to get there.
His basic protocol is 1) inhibit cytokine cascade 2) enhance immune function 3) relieve specific symptoms 4) antibacterials as need 5) supportive human contact
He said that protocols need to be regularly moderated. As bacteria alter, you need to see what�s going on and alter the protocol. He sees about a 75% cure rate. With this protocol, or version there of, 15% no longer have any symptoms, but if they quit, they come back. 5% have little help, and 5% have no help at all. (you gotta respect the man for saying this).
He said that the dosages are the maximum amount. Some people get well on one drop of tincture 3x a day. Start slow and work up. If you start to feel bad, back off and go back to the dose you didn�t feel bad at.
Core plan, Japanese knotweed root, cats claw. His original core was andro, smilax andro. Andrographis only works for 60%of people. He looks at it more as adjunct than core. 1% of people who take andrographis get hives (takes a couple of weeks to resolve).
Knotweed is primary for lyme. Some will feel support in a few weeks. It�s a cytokine inhibitor and angeogenisis modulator. It crosses the BBB. Cats claw is good for raising cd57, lyme arthritis.
Adaptogens increase overall resistance to disease (rhodiola, eleuthrococcus (Siberian ginsing). Astragalus helps some people get better (worth trying). It�s great if you don�t have lyme and don�t want to get it.
Pulsing�Buhner doesn�t like to pulse herbs except for art (7 days on 7 days off), and eleuthero, 10 days on, 5 days off). As a general rule, they see bad outcomes with pulsing. You want to bathe the body in herbs to reduce the cytokine cascade (knotweed). Do not pulse Japanese knotweed.
Lyme scavenges collagen. A collegen support protocol makes sense. He usese glucosamine with msm. 1500 mg of each (amazon). 2 tablets in am and pm (bedtime).
Stephania is good for bells palsey and collagen. So is soloman, vit c, pregnenolone, zinc, silicone.
Neuro lyme- inflammation in the brain affects the symptoms you have. i.e amigdula-mood swings, hypocampus-can�t remember things, memory. Nuxvomica helps reduce inflammation in the brain.
Another fascinating thing he said was that babs kills bart!
Chinese skullcap also lowers anxiety.
He views kineseology as a tool that is only as good as its user. Variable responses to its accuracy depend on the person doing it.
Anxiety and panic, vervain quite helpful (blue vervain). Also homeopathic pulsatilla hepful too. Pasque flower tincture is his favorite (10 drops every hour as needed).
Sleeplessness: Homeopathic sleep forte, rescue sleep (30c or dosage on label). Also homeopathic coffeea is good for a racing mind. He likes liquid melatonin before bed. Also ashwagahanda is good for some people (1000 mg just before bed).
Brain fog: Phospholipids and serine (100mg 3x day) Choline (450-500mg 3x day). Bacopa helps memory (200mg 3x day for 30 days or so).
Parasites: there is a synergistic effect /impact on parasites. He said basically, all coinfections are parasites. He thinks eye floaters are lyme.
Lymph infection drainage issues: red root. He said a massive dose will lower inflammation and lymph nodes and cells but didn�t say the dose (read book or his website). Red root is phenomenal for spleen, lungs.
Stephen believes plants move into the ares where they are most needed. For instance, Japanese knotweed is an invasive plant where lyme is endemic. He says you can harvest your own.
Resveritrol can turn on estrogen receptors. It can inhibit cytokine cascade, septic shock, and it�s an immune function regulator, adaptogenic.
There are at least 25 million people with asymptomatic bart. When their immune system drops, then it shows itself. It�s everywhere. Even whales and dolphins get it too, all dogs and cats. Every mammal harbors at least one species. You can get bart and myco from at least 15 different biting bugs. There are 30 different species, 19 infect people. Fevers of unknown origin: 20% are bart. Bart likes bone marrow, lymph system, brain, endothelio tissue. Liver and spleen abscesses, eye problems, photo phobia, muscle pain, severe fatigue, skin lesions, encephalopathy, homicidal rage, brain fog. IFA PCR best test.
Bart affects the lymp system almost immediately. It gets most of its nutrients from the red blood cells. Symptoms: anemia, recurring fever of unexplained origin, recurring headaches and up to migraine levels, photo phobia, unexplained cough, bone pain in foot especially, neuro, homicidal rage or incidents of anger (hits amigdula) tingling/burning extremities, fatigue and memory impairment. He says there is so much info in peer review journals. Arithromycin and telethromycin are best bet for bart.
Bart is kind of like a suburb in the blood vessels (overgrowth of endothelial), then it changes all organ function. It is common to see abscesses in bone marrow. Shin bone fever is all bart. Protect endothelial integrity, spleen, liver, brain, heart, blood vessels. The primary herbs protect and affect cytokine cascade: Japanese knotweed root, EGCG with quercetin (isolated constituent). Cordyceps is good too, and Chinese skullcap, American skullcap if you use the roots.
L argenine can reverse most of affects of bart. Rat study completely reversed bart. Sida acuta turns bart around nicely (red blood cell protectant) invasive botanical. For some poisonous snake bites, sida completely stops that process. It turns anemia around fast too. If you take too much though your symptoms worsen.
He thinks sida could be interferon stimulant or breaking up biofilms. Good antibacterial for bart, L cornia, cortifolia, isatis (invasive botanical) houtadia. Teasel flower essence good for bart. You can put herbs in pomegranate juice (incredibly good synergist)!
Cordycepes good for energy and brain.
Red root tincture important for protecting spleen and lymph system. Its an ornamental in peoples yard all over Europe. Unfortunately you can�t buy it in Europe, but people need to get it from their yards.
Milk thistle standardized 1200 mg 2x/ day. Hawthorn tincture normalizes function in the heart.
Rhodiola and ashwaganda combined are good for bart.
Herxing: use castor oil packs, milk thistle, powdered zeolite (1 tsp to 1 tablespoon 3x day), same with chlorella (powdered?), Epsom salt bath, green clay (internally) 1 Tablespoon with water.
Protecting mitochondria: motherwort, L-arginine. For muscle tissue: pine pollen increases testosterone and helps musculature and strength return (for men). Women can use a little pine pollen, orellia and American ginsing.
GI tract issuces: Nuxvomica.
Restless leg syndrome: devils claw (can upset stomach though). Foot tingling: ashwaghanda (1000mg at night before bed�will help you sleep).
Weight loss: fermented wheat germ is really good here. It�s also good for myco.
Stephen looks at homeopathics like vaccines: good for preventing things.
Anemia: sida, NAC, chlorella.
Protomyxzoa. Treat for babs (infects red blood cells). Sida acuta.
Stephen said babs is easy to treat (he doesn't know me). 110 species found 10 infect people. Pretty prevalent in US. Alters genetic structure-endemic in NE, northern CA, Wisconsin (epicenters), also in VA. 10% of US is infected, most asymptomatic, relapsing like malarial. Very hard on people without spleens and people over 50 or low immune system extremely at risk.
Artemesia annuae also works for some people (can have neruo impacts if you use it for a long time). If you have recalcitrant babs use it for 7 days on and 7 days off. Bidens pelosa good and sida acuta protects the red blood cells. Also, alconia, homeopathic sepia for people with recalcitrant babs (really helps). You can do artemesia annua (plant) indefinitely with top 1/3 of plant and make a strong infusion and take daily. Prototrypsin from metagenix (4 tabs 3x day) counteracts babs symptoms.
Herbs to protect red blood cells: bible skullcap, cordycepes, kudzu, houtinia. If you have low platelets, salvia miltlohirzza and angelica ciniccis (dong quai). These two in large doses will shut off septic shock and kudzu. Boneset tea good for relapsing symptoms of babs. Good for massive sweats too.
Resistance to herbs? Larger doses. MDs are starting to believe plant dynamics in their treatments.
Crypto, sida acuta, alconia and bidens are highly protective of red blood cells. Take herbs before bed and when you wake up. You can do herbs with abx. Most abx are helpful in origin (derived from fungi or plants). Symbiotic relationship. Within 15 years, there will be no abx that will work, period!
Erlichia anaplasma, white and some red blood cells. Presents similar to flue with low white blood count, with liver and spleen enlargement. Liver inflammation. 4 different speceies affect people. Erlichia causes more neuro than anaplasma. Fever, chills, rash, upsets gi tract, meningitis, encephalitis, sepsis, septic shock. Liver protection essential. Bone marrow heavily affected. A lot of times the flu is erlichia. Doxy most effective if not able to get use rifampin. It develops resistance to a lot of abx quickly.
Chronic fatigue syndrome (not assimilating nutrients efficiently): Make a mixture of equal parts (he uses a lb of each): knotweed (whole herb), ashwagahnda (whole herb), astragalus, Siberian ginsing (eleuthero), dandelion, burdock, licorice root, chlorella, spirolina, dried wheat grass juice?, dried barely (gluten?), dried nettle. Mix together and take 1/4cup in a.m. and 1/4 cup in 12-16 oz liquid in evening and you will start to turn around. You can also add maca and bladderack.
75-80% of symptoms caused by pharmaceuticals. 90% of who we are is unconscious (heart, GI system, lungs, etc).
Myco causes wasting of the body. There is almost always a psychological component to it. Myco is tremendously tiny. It�s 400x smaller than bartonella. It causes nutrient depletion in the host. There are 30 different kinds of it. It infects any organ. 75% of population is asymptomatic, then immune system goes down and it blooms.
Doxy and zith are best abx. It can infect the whole inner ear dynamic, balance issue, tinnitus, eyes, respiratory system. They really like sillia (specialize in infecting that). Has severe effects on fetus and reproductive health.
You have to replace nutrients they are scavenging from the body. Bacteria are already feeding themselves quite nicely on your body (even without you giving them more nutrients). Nutrient depletion happens to everyone in this group. Figure out what they need. Reduce the cytokine cascade (inflammation ) and it will start to starve the organism.
Protect red blood cells, endothelial tissues, mucus membrane systems, sillia, brain, spinal, collagen, spleen, lymph, CNS, synovial tissues. Antibacterials and enhance immune fuction. Primary nutrient deficiency disease combined with what ever sillia system they are hitting. You need amino acids. Eat your way to health. Correcting this takes time and focus. Mycos depend on host micro environment for biosyntisis of micro molecules. They also deplete choline. They need a lot of cholesterol for cell membranes.
Cholesterol is building block for steroid hormones, essential for cell and cell wall integrity. Diet alteration. Eat every other day eggs, liver, oysters, brazil nuts (just one), sesame seeds, tahini, avocado, chlorella, sprulinia seaweed green drink, RNA DNA complex. Olive oil is very systemic.
Cover dried olive leaves with olive oil (infuse). Take one tablespoon in am, and 1 tablespoon in pm.
Japanese knotweed will reduce inflammation. Hawthorne.
Someone asked about severe constipation. He said that anxiety is a huge piece of it. He suggested flower essence to release tension. People in audience suggested milk of magnesia, Mag 07, effervescent vitamin C, raw crunch foods, and eliminate wheat.
Raise immune system with amino acids.
Don�t be afraid. Develop awareness. Be in balance with that system and your own body--you really start to know yourself well.
Posted by Keebler (Member # 12673) on :
See post: Caution: Aspartate; Glutamine; and Phenylalanine -
Posted by Keebler (Member # 12673) on :
- Catgirl: Thanks so much for your extensive notes.
Rumigirl: thanks for your asking questions and his replies. So sorry to hear he won't be doing any more workshops.
Bea, and others: thanks for all your notes, too.
I try to learn all I can from him. -
Posted by dbpei (Member # 33574) on :
Catgirl thank you so much for your incredible notes! Wondering about the role mycoplasma might be playing in my ear issues. I have his books, so I am going to delve into them. You took so much from the conference. Glad you went.
Bea, I can't believe you did that drive all by yourself in one day! You are one strong woman! I look forward to your notes after you have had some time to rest and listen to the recording.
Posted by Catgirl (Member # 31149) on :
You're welcome (everyone). It's the least I could do for everyone who has provided info on this board. This is a condensed version of my notes (25 pages). I'm sure I missed stuff, and was really late to the meeting. Hopefully others will post too. Formulas are in his book (worth getting).
I forgot to mention that Buhner takes astragalus. You can see it in his CFS mixture above. He said it's worth trying in his opinion (even if you have lyme). Discontinue if it makes you worse.
Also, the part about kineseology above was Buhner's response to a question someone asked him about it. It was a fair response. That said, I've previously chatted with a doc who I highly respect (no not Dr. K even though I respect him a great deal), and the doc said that kineseology is the best tool in our arsenal. I use it daily (energy/muscle test), and find it quite valuable. It helped me to prevent overdosing (blood tests confirmed it). I am amazed how well it works.
[ 06-17-2013, 10:14 AM: Message edited by: Catgirl ]
Posted by n.northernlights (Member # 17934) on :
Redroot Ceanothus velutinus , snowbrush ceanothus, is from America, but what is it called in europe?
here above they say it is used as an ornamental plant in europe
Posted by Catgirl (Member # 31149) on :
I'm not sure. Maybe it's in his book. You could always email him. He said he gets about 300 emails a month though, so it may take some time. I'd check the book out too. Hopefully someone else will chime in here.
Posted by canefan17 (Member # 22149) on :
Wow can't believed I missed this.
Should be bumped... and...
"L argenine can reverse most of affects of bart. Rat study completely reversed bart."
So what from above has helped everyone? Houttuynia, Knotweed, and adaptogens have helped me with Bart.
Interesting Buhner says "Arithromycin and telethromycin are best bet for bart."