This is topic What to ask LLMD? in forum Medical Questions at LymeNet Flash.


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Posted by NH_Hiker (Member # 43676) on :
 
For newbies like me. Is there a thread for what to ask your LLMD on the first appointment? It would be extremely helpful:)

Also what to do and what not to do or ask.

My head is still spinning from all the info I'm trying to absorb.

Thank you
 

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Posted by Lymetoo (Member # 743) on :
 
Yes, there is! Glad you asked!!

Making the most of your LLMD visit
http://flash.lymenet.org/ubb/Forum1/HTML/020605.html

That thread is located here, with lots of other good info:

http://flash.lymenet.org/ubb/ultimatebb.php/topic/1/88555
 

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Posted by NH_Hiker (Member # 43676) on :
 
Thank you!! There is a wealth of info there:)
 

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Posted by Lymetoo (Member # 743) on :
 
Yepper!! We aim to please around here!
 

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Posted by applewine (Member # 26220) on :
 
NH_Hiker,

Before you ask your doctor I have some advice.

I have been through this lyme disease process, treatment referral before.

I would seriously suggest you consider how likely you have lyme disease and if you think there is a test that can prove it. Also, I would be cautious in any antibiotics or medications you take.

I was given 4 antibiotics and developed a neurological condition called paresthesias I feel all over like cold water, burning and stinging.

I took them for 6 months and did not improve and talked to so many people I decided there was no proof of this and that people were not being cured.

I decided people were just being told they had to take antibiotics forever. I was told 2 years by my doctor.

I would ask your doctor if they could use a test from some more reputable labs like stoney brook just in case. Also if you get the igenx ask about band 31 confirmation tests for cross-reactivity.

Also, you may want to wait until you can get the new antigen test coming out this summer. That may be more reliable. It will be updated next year with even more markers added.

Consider what problems you have and realize you don't want to experiment on yourself.

I heard of one person who took a certain antibiotic IV and lost their gull bladder. I want to keep mine.

For me I'm waiting for proof of infection and a cure before I even consider lyme disease again.

Also I suggest you avoid Bactrim as it can cause some nastry psychological as well as dermological side effects. Many people are allergic. I also get red blood spots on my skin which may have been from Bactrim.

Perhaps doxycycline may be the safest thing to take. I was prescribed minocycline, azithromycin, bactrim and rifampin.

Also even for doxy look up all side effects. I remember something about black thyroid or something. I'd just make sure you know what you are getting into.
 

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Posted by Lymetoo (Member # 743) on :
 

quote:

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Originally posted by applewine:

I would ask your doctor if they could use a test from some more reputable labs like stoney brook just in case.

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For me I'm waiting for proof of infection and a cure before I even consider lyme disease again.

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