I have been through this lyme disease process, treatment referral before.
I would seriously suggest you consider how likely you have lyme disease and if you think there is a test that can prove it. Also, I would be cautious in any antibiotics or medications you take.
I was given 4 antibiotics and developed a neurological condition called paresthesias I feel all over like cold water, burning and stinging.
I took them for 6 months and did not improve and talked to so many people I decided there was no proof of this and that people were not being cured.
I decided people were just being told they had to take antibiotics forever. I was told 2 years by my doctor.
I would ask your doctor if they could use a test from some more reputable labs like stoney brook just in case. Also if you get the igenx ask about band 31 confirmation tests for cross-reactivity.
Also, you may want to wait until you can get the new antigen test coming out this summer. That may be more reliable. It will be updated next year with even more markers added.
Consider what problems you have and realize you don't want to experiment on yourself.
I heard of one person who took a certain antibiotic IV and lost their gull bladder. I want to keep mine.
For me I'm waiting for proof of infection and a cure before I even consider lyme disease again.
Also I suggest you avoid Bactrim as it can cause some nastry psychological as well as dermological side effects. Many people are allergic. I also get red blood spots on my skin which may have been from Bactrim.
Perhaps doxycycline may be the safest thing to take. I was prescribed minocycline, azithromycin, bactrim and rifampin.
Also even for doxy look up all side effects. I remember something about black thyroid or something. I'd just make sure you know what you are getting into.
Posts: 136 | From arlington, VA | Registered: Jun 2010
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posted
I too am wondering why you're here, Applewine, if you're questioning whether you have Lyme - ??
Plenty others of us have tested positive and are responding to treatments. Everyone has the right to see a Lyme-treating doctor if they'd like to for a work-up.
Posts: 13116 | From San Francisco | Registered: May 2006
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I can appreciate all view points that can lead to productive debates.
I have a positive diagnoses of Lyme.
Your commit on "a cure for Lyme" has me wondering. Do you have privy to information that the rest of us don't?
If you know of something regarding a "cure" coming down the road in the near future, would be so kind as to share that information?
IMHO, waiting for a cure to seek treatment is not logical. If you were diagnosed with Diabetes, would you wait for a cure before beginning treatment? (Not trying to offend anyone with Diabetes:))
Did you have a bad experience with treatment?
Posts: 29 | From 42.782745, -71.280301 | Registered: Apr 2014
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