This is topic Seeking LLMD in Austin, TX in forum Seeking a Doctor at LymeNet Flash.


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Posted by mm57553 (Member # 49608) on :
 
Or nearby areas. Preferably one that doesn't cost an arm and a leg and one that someone has personal experience with.

Thank you!
 
Posted by momintexas (Member # 23391) on :
 
PM sent
 
Posted by Tincup (Member # 5829) on :
 
I'm sure MOM in TX will fix uyou up, but this is some additional info you may find handy.

You can go to www.VirginiaLyme.org and look at the menu on your left you will see DOCTOR REFERRALS. It has listings for all states that have Lyme docs.

It also has links to help find alternative doctors, chiropractors, specialists in Morgellons and MTHFR.

It has a listing for good labs (including IGeneX), links to find a naturopathic doctor, acupuncturists, oriental medicine doctors, holistic dentists, experts in mold and places to avoid are listed there.

Here is a "Help For You" page in the event it is needed.

https://sites.google.com/site/marylandlyme/help-for-you

Good luck! Feel better soon!
 
Posted by hopingandpraying (Member # 9256) on :
 
Welcome to Lymenet! PM sent for TX & MD.

You need to be evaluated and treated by a Lyme-literate doctor (LLMD). Non LLMDs have no clue about this horrible disease or its complex treatment!

A LLMD is one who has treated Lyme disease and the co-infections which come with it for many years and has gotten patients well. A good one will follow Dr. B's Guidelines, the "gold standard" for Lyme treatment.

Here is a link for them:

http://www.lymenet.org/BurrGuide200810.pdf

LLMDs are far and few between, unfortunately. You need to go where they are. At least half of all Lyme patients travel out of state for their care.

Also, most LLMDs do not accept insurance due to the politics surrounding this horrible disease. Read poster TF's explanation, "Why Lyme Doctors Don't Take Insurance":
http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic;f=2;t=025539;p=0

Please read the following about LLMDs and Texas which was recently posted about TX:

"Texas is not a great place to find a good Lyme doctor. Texas threatens its Lyme doctors and gets them to move or stop practicing without notice.

Then, if they start up again a year or so later, they do it to them again. So, there really are few Lyme doctors there and no top notch ones.

Because of the sorry state of affairs in Texas, many folks from Texas are coming to the East Coast for testing and treatment for Lyme disease and it's co-infections.

Read what other Texans wrote in this thread about trying to get proper care in Texas:

http://flash.lymenet.org/scripts/ultimatebb.cgi/topic/1/132642?#000018

Check the online state Lyme groups at:
https://groups.yahoo.com/neo/groups/TexasLyme/info

Maybe they can help.

Some more resources for you (including Support Groups info):
http://whatislyme.com/websites-and-support-groups-by-state/

www.txlda.org

http://www.lymenet.org/SupportGroups/UnitedStates/Texas/

The top LLMD, Dr. H, has written a book entitled, "Why Can't I Get Better?". It is an excellent source of information.

Read "Cure Unknown" by Pamela Weintraub. Get it at your local library or buy it used on Amazon.

View "Under Our Skin" for free on http://www.veoh.com/m/watch.php?v=v21055812yWtmpgB8
 
Posted by SickSam (Member # 45330) on :
 
Actually, there's one good one in Texas, he's one of the best I've seen. The dude wanted me to take 4 abx at once + plaquenil, I think he's plenty aggressive with his treatment. I strongly regret not sticking with him in the beginning of my treatment. And I've been to Maryland, Missouri, and Louisiana too.

He "got in trouble" several years ago but he's been back to treating Lyme for a long time now. To my knowledge he's the only one who has ever been disciplined for properly treating Lyme in Texas.
 
Posted by koo (Member # 30462) on :
 
I second that SickSam. I treated elsewhere for 15 months and got "stuck". I went to "the dude" and only needed to be treated for 8 months to get it right. I don't understand why this LLMD doesn't get the credit he deserves. Very big on collecting data, analyzing, and always looking for the ideal treatment. Constantly researching and attending seminars.
 
Posted by TF (Member # 14183) on :
 
Wow! I would like to know the name of this doc. How about giving us the first letter of the last name.

Thanks.

The top notch lyme doc I know who used to practice in Texas was forced to leave Texas when the state medical board began to threaten the doctor she worked with.

This was many years ago. At least 10 years ago. So, I think many respond to the threat so the board doesn't even have to go all the way to the disciplining stage.

People see the handwriting on the wall and just leave or quit treating lyme in Texas.
 
Posted by SickSam (Member # 45330) on :
 
Sure thing, Dr. W is who it is. He's the one that the medical board came after. I'll PM you too!
 
Posted by desertflower (Member # 49973) on :
 
Hi, can someone please PM with the name of Dr. in Texas treating Lyme?
 
Posted by hopingandpraying (Member # 9256) on :
 
desertflower - Welcome to Lymenet!

PM sent for TX.
 
Posted by TexasYogi (Member # 50507) on :
 
I would also like the the name of the Texas Doc treating lyme please. PM is okay. Thank-you. Or other LLMD in Texas. Thank-you.
 
Posted by hopingandpraying (Member # 9256) on :
 
TexasYogi - Welcome to Lymenet!

I was going to suggest you write a new post instead of adding on to an existing one because most don't re-read old posts, but I see you have already done that.

PM sent for TX & MO.
 
Posted by Tincup (Member # 5829) on :
 
Please go to www.VirginiaLyme.org and look at the menu to your left you will see "DOCTOR REFERRALS".

Click there to find the names and contact information for health care professionals treating Lyme & TBD's in all of the states.

Here is a list of tick borne diseases with how to diagnose (testing), a list of symptoms for each disease and treatment information.

https://sites.google.com/site/marylandlyme/tick-borne-diseases

Hope that helps! Good luck to you!
 


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