I was sucessfully treated with IV for over a year and oral to follow-up by Dr. J. I have been back to work as an ultrasound tech again fulltime for about 3 years. I finished my treatment in 2004.
All of a sudden some old symptoms are creeping back. I am in a lot of pain and very tired all the time again.
Anyone else out there sucessfully treated then relapse after all this time?? I am scared. It is as if the walls are closing in again. I figured only fellow lymies would know what I mean!
Dr. J is around again but fee for service now-uggggggggg!!
Talk to me
Cathy
***Webmaster Note: The doctor's last name has been removed.***
[ 06-29-2009, 06:40 PM: Message edited by: Jenifer ]
Posted by bettyg (Member # 6147) on :
cathy, so sorry to read all about this.
please delete drs. LAST name; show initial only and state ok; just click on pencil to right of your name to open up subject line & text.
sorry have no advise, but UP for morning shift of folks...
Posted by tdtid (Member # 10276) on :
Cathy,
I'm sorry you are going through this. I haven't gotten to the point you have, so I can't speak from first hand experience.
I do know that when I was on the oral protocol for 21 months, I did get well enough that my husband and I took a three week cruise to South America.
A few months later though, I seemed to fall down the tubes and referred to a more aggressive LLMD. I've been on IV since Aug. 1 of last year.
With that said, they were trying to figue out why I fell even in that SHORT amount of time and one speculation is...is there any way you could have gotten RE-infected?
I do hope someone will come along that has experience in what you are going through and offer some guidance. Good luck to you.
![[group hug]](graemlins/grouphug.gif)
![[kiss]](graemlins/kissing.gif)
so sorry to read all about this.