posted
If you have any brain inflammation or disconnect it can make things 100x worse. Not for neuro Lyme or Bart ime
Posts: 501 | From Cleveland Ohio | Registered: Apr 2009
| IP: Logged |
Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- Also to consider: the MUNCHIES. I've only tried marijuana a couple times but, as I recall, I was foraging the entire neighborhood for hours and that didn't even begin to quell the munchies.
Weight gain is common with lyme (as it is with several infections). Anything that can push us over the edge and lower our inhibitions, impair our usual common sense / self-monitoring "food guard" could work against us.
Now, I don't know if by using a water pipe, the munchies may not be an issue but it is a very serious consideration, indeed. -
Posts: 48021 | From Tree House | Registered: Jul 2007
| IP: Logged |
mojo
Frequent Contributor (1K+ posts)
Member # 9309
posted
When I was a teen ager I LOVED it. Now I can't tolerate it at all.
Make me very anxious and I can't use my muscles well if at all.
Posts: 1761 | From USA | Registered: May 2006
| IP: Logged |
seekhelp
Frequent Contributor (5K+ posts)
Member # 15067
posted
It cured one person here. I can't remember their name.
Posts: 7545 | From The 5th Dimension - The Twilight Zone | Registered: Mar 2008
| IP: Logged |
feelfit
Frequent Contributor (1K+ posts)
Member # 12770
posted
that's right Seek....he had an 'epiphany' though, turns out he thinks that he never had lyme, just emotional issues?????
4seasons has posted that it helped her daughters pain when nothing else touched it.....and her daughter IS doing very well now after having been in the bowels of hell.
I would consider a vaporizer to minimize the negative effects of smoking....also, marijuana can be made into oils as well.
No personal experience, but have researched A Lot....and have considered it myself. Legal in MI for medicinal use.
Posts: 3975 | From usa | Registered: Aug 2007
| IP: Logged |
seekhelp
Frequent Contributor (5K+ posts)
Member # 15067
posted
Yes, that was the person Feelfit. Nice to see you post too. I've been wondering how you've been!
Posts: 7545 | From The 5th Dimension - The Twilight Zone | Registered: Mar 2008
| IP: Logged |
nefferdun
Frequent Contributor (1K+ posts)
Member # 20157
posted
There are a lot of negative things about marijuana. If you are trying to recapture your mind, forget it with marijuana! Where do you think the word "spacey" comes from?
You will have no motivation so if there is anything you need to get done you will probably not do it. "In the great scheme of things, it does't really matter". When you smoke marijuana your mind is on mars, in the great cosmos, not concerned with paying bills or taking care of your children or graduating from school.
If you tend to have problems with depression or anxiety marijuana is not for you. Your perceptions can become very skewed.
If you are a moral person, throw your beliefs out the window. "If it feels good, do it". You will eat everything that looks good including sugar, lots of it.
Your inhibitions and boundaries are dropped . You may be alarmed at who you wake up with. Where do you think "free LOVE" came from?
I am totally opposed to marijuana. I have seen what it does to people and it is just as bad as lyme disease.
-------------------- old joke: idiopathic means the patient is pathological and the the doctor is an idiot Posts: 4676 | From western Montana | Registered: Apr 2009
| IP: Logged |
Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- People can have different reactions and I think when taken for pain the reactions may be different than when used just for "recreational" purposes.
They have found that to be true of heroin that is used in the U.K. for cancer (or was in the early '80's. I recall a news network's feature in autumn of '84 as my mother was suffering from severe chorea at that time and they would give her nothing beside tylenol #3 for horrible pain).
It was as if the drug's sole purpose was to deal with the pain and the patients got few of the side effects as those who abused it for no need. Those who beat the cancer did not become addicted, either and were able to easily titrate off of it as they recovered from cancer.
My best friend relied on pot to manage severe pain from breast cancer. She was able to keep her wits about her, hold down a job until 4 months before her death and still make very sound decisions.
She would have never made it otherwise. I'm glad it was an option for her. -
Posts: 48021 | From Tree House | Registered: Jul 2007
| IP: Logged |
littlebit27
Frequent Contributor (1K+ posts)
Member # 24477
posted
I tried marijuana before I found my wonderful LLMD, because my PCP just thought I was seeking drugs since he doesn't believe in Lyme.
I tried all kinds of different herbs and remedies and everything else, nothing helped.
I hate marijuana, makes me feel dumber than I already feel on a day to day basis...do not like it at all.
Hoosiers51
Frequent Contributor (1K+ posts)
Member # 15759
posted
Keebler,
"Easily titrate off" (your quote)...heroin??? When speaking of the cancer patients above.
I find that very hard to believe. Though I have never used it (nor will I ever), from what I hear, it's terribly addictive. Not as addictive as meth, but still, very addictive. I can't imagine going off heroin as being "easy."
So please, don't anybody get any ideas about using that for pain!
Never tried marijuana because I already feel out of touch with reality. I need something that will bring me back to reality, not pull me away from it. Though I am not judging anyone who takes it for a medical condition.
I have also seen similar experiences with what nefferdun describes....people's lives really going down the tubes because all they did was smoke weed. They slowly withdrew from family, obligations, bills, etc, to where they did nothing but get high. I guess it depends on the person, how much you use, how much you are able to control yourself, etc.
All the Lymies I have spoken with that smoke marijuana recreationally, also had to take antibotics (and other things like Rife, Lyme herbals, etc) to get better.....so don't think marijuana is going to cure your Lyme. I know plenty of examples where that was not the case.
Posts: 4590 | From Midwest | Registered: Jun 2008
| IP: Logged |
posted
Absolutely relieves muscle stiffness and spasms for a couple of hours. I use it at bedtime.
Posts: 252 | From NJ USA | Registered: Mar 2004
| IP: Logged |
Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- Yes, cancer patients were easily weaned off when they no longer needed it.
The news feature was from England in autumn of '84. It was amazing. Now, in no way am I saying heroin is good - however - certain drugs that are destructive for "recreational" use DO seem to have some sort of place in medicine.
The cancer patients all had very different reactions than typical in the "street" users. The form and dosage was strictly managed. But some received VERY high doses and did splendidly.
If you want to search that, it was on one of the 3 major U.S. networks in autumn of '84 (I'm thinking November). I remember so clearly as my mother's condition escalated then and the documentary footage made a huge impression.
These patients could ENJOY life, read, take a walk or be taken in a chair to be next to their grandchildren playing on a swing set.
They could TALK, even carry on a meaningful conversation. They were not at all "high" or "strung out" -- one doctor I recall suggested that the kind of pain and demands of their bodies USED the drug very differently. As if this particular medicine was the key, the scientific key to pain relief with alertness for those in pain. For others "street users", the medicine would be toxic and produce toxic results (as being "strung out").
The cancer patients in the heroin program did NOT have the devastated lung problems, sedation that basically ended the ability to function and communicate - or the toxic, painful constipation -- all those side-effects from morphine Rx. Heroin was clearly a life-sustaining gift for this group.
To see the light in their eyes and the ease in which they could laugh with family was amazing. I will always remember that and it saddens me to recall the intense pain and lack of pain management from my mother at that time. I'd call that criminal negligence. I knew that across the ocean, there was one group getting real pain management.
A few years ago, when my father's cancer progressed, it was not the cancer but the morphine that killed him. The morphine caused pneumonia and also bowel blockages. He should have had a better choice.
I'm sure the film could be located, though that was before the web was even invented. Surely, written works could be located.
It was amazing to see the patients who had advanced cancer and the difference in their pain and alertness level with the very control and careful use of heroin in THAT particular documentary.
And, yes, they titrated down and addiction was not a problem for any of those in the study. Now, in this group, all were in the advanced stages of cancer. Still, many got better.
. . . I have seen cancer patients in London, England being prescribed huge doses of heroin for pain. They could be weaned off these massive doses in a few weeks once their pain subsided. . . .
. . . It's ludicrous that year after year thousands of people still see loved ones dying in agony from cancer without the benefit of heroin as a painkiller. . . .
=====================================
This study was ONLY for that patient population, those in the controlled program. I don't know if this program is still going on or not but it was truly impressive in the results. Far different reaction than from "street" use. Far different. And they may have had a combination treatment. Good medicine often involves combinations.
Now, all that said, so many pain meds are very hard on the liver. I never take any pharmaceutical pain med or even OTC as they are so hard on my liver. In many cases, there are much easier and safer ways to address pain. Some are discussed below.
Corydalis (an herb) is especially helpful but magnesium is always the first choice for pain management. ---------------
posted
Nefferdun, I think you are confusing marijuana with alcohol!
Marijuana is nothing like alcohol-- its medicinal benefits FAR outweigh any adverse effects. It may not be for everyone, and I haven't personally tried it yet for my Lyme symptoms (though I've considered it!) but it has been shown to be effective in treating HIV/AIDS, glaucoma, Alzheimer's, arthritis, hepatitis, migraines, nausea, MS, and general pain.
It has been used for thousands of years, because it works!
In the US, alcohol kills 76,000 people every year-- tobacco kills another 440,000-- whereas there has NEVER been a recorded death due to marijuana (these are CDC stats).
quote:Originally posted by nefferdun: There are a lot of negative things about marijuana. If you are trying to recapture your mind, forget it with marijuana! Where do you think the word "spacey" comes from?
You will have no motivation so if there is anything you need to get done you will probably not do it. "In the great scheme of things, it does't really matter". When you smoke marijuana your mind is on mars, in the great cosmos, not concerned with paying bills or taking care of your children or graduating from school.
If you tend to have problems with depression or anxiety marijuana is not for you. Your perceptions can become very skewed.
If you are a moral person, throw your beliefs out the window. "If it feels good, do it". You will eat everything that looks good including sugar, lots of it.
Your inhibitions and boundaries are dropped . You may be alarmed at who you wake up with. Where do you think "free LOVE" came from?
I am totally opposed to marijuana. I have seen what it does to people and it is just as bad as lyme disease.
-------------------- Currently infected with Lyme, Babesia, Ehrlichiosis, Rocky Mountain Spotted Fever, Mycoplasma, & Q-fever.
10 months into treatment, currently on Bicillin, Rocephin, Doxy, Biaxin, and Mepron. Posts: 87 | From USA | Registered: Sep 2010
| IP: Logged |
posted
Nefferdun you are dating yourself and sounding straight out of the 50s with Reefer Madness mania. Medical marijuana is invaluable for those it helps, and it has many benefits. Get with the times and drop the propoganda, yeesh. You sound like a crystal meth commercial.
nefferdun
Frequent Contributor (1K+ posts)
Member # 20157
posted
I am actually talking right out of the 60's because I was in the midst of it in my college years. I know what it does.
I really hate the argument that it has been around hundreds of years or that it is "natural". So is arsenic.
Presently the GP I get my abx from is busy prescribing marijuana to every pothead in the state. You can get it for any reason and he has tried to persuade me to get a medical card twice. He sees marijuana "patients" on a cash only basis and the "dispensary" is right next door.
He must be stoned himself because he has done absolutely nothing to learn about lyme in three years. I gave him Burrascano's guidelines and underlined the drugs I wanted, pointing it out to him. The last time I saw him he gave me a years supply of drugs telling me to get a liver test ONCE A YEAR.
He cannot fathom the idea of co-infections. "in the great scheme of things, what does it matter". He also cannot wrap his mind around the same drugs not working forever. Marijuana does!
He believes I am the only person in the county with this disease. Imagine how many people left his office with marijuana cards rather than a diagnosis!
That is typical of the apathy that marijuana produces. Another favorite expression from that era. "Who gives a #@$%".
Corydallis root is fantastic for sleep and is supposed to be 40% as effective against pain as morphine. It is in the same family as heroine but it has no side effects, is completely non- addictive and does not lose it's effectiveness.
DL Methionine also helps with pain. It is the precursor to SAM-e and glutathione. It repairs damage. After suffering from tendonitis pain for 8 months I got almost instant relief from this amino acid with lysine, magnesium and B12.
-------------------- old joke: idiopathic means the patient is pathological and the the doctor is an idiot Posts: 4676 | From western Montana | Registered: Apr 2009
| IP: Logged |
posted
You're mad at your lame doctor and the potheads he hands prescriptions out to, so you're generalizing the entire medical marijuana movement? Makes no sense. Step outside your little box and find a new LLMD.
Posts: 501 | From Cleveland Ohio | Registered: Apr 2009
| IP: Logged |
posted
Medicinal marijuana is legal where I live. In states like this, there are more options than just smoking. There are tinctures, lozenges, brownies, etc. They all have different dosages in them which is nice cuz you can moniter how much you are getting.
My advice if you try it would be to GO SLOW! I think it's a great option. I believe pain meds like advil, etc. are much more dangerous than marijuana.
I tried some of the tincture. No effect. Added some lozenges. No effect. Then the brownie (supposedly the strongest). Big effect. I completely freaked out and pretty much had a panic attack for the next few hours. It was awful and I've been scared to try it since. So go slow -- don't overdo it like I did.
Posts: 707 | From Colorado | Registered: Jul 2010
| IP: Logged |
Tricky Tickey
Frequent Contributor (1K+ posts)
Member # 26546
posted
There is a synthetic form of marijuana; marinol. My 80 year old mom took it when she was dying of cancer. She really liked it because it helped her sleep at night. But it wasn't the natural herb.
I wouldn't recommend pot in excess for Lyme treatment. I was a chronic pot smoker in the 70's & it really lowered my immune system, took away my ambition, & distorted my thought patterns. Also affects the memory function....
However, I would recommend it in limited amounts for pain or appetite. Plus it calms & relaxes if in the right environment. But not in smoke form. You can eat it....the effects last a lot longer, for real! Marijuana brownies kept me high for hours.
I have seen marijuana make my schizoprhenic clients act normal....and I've also seen it make them worse. It's a toss-up. If I was really bad sick, I may ask for it. But it does cause paranoia in some people.
-------------------- Early Disseminated LD- 2010. Currently doing acupuncture and yoga. Negative Igenex (IND & Pos Bands) ISSUES AFTER: Tendonitis, letter reversal, Low immune system. PREVENTION:SaltC,Iodine,Humaworm, Chiropractic. Posts: 1013 | From In a van down by the river. | Registered: Jun 2010
| IP: Logged |
nefferdun
Frequent Contributor (1K+ posts)
Member # 20157
posted
yes I am getting another doctor even though I have to travel 2 thousand miles to do so.
I suppose some people are more functional than others but most of my friends in college who used it dropped out. As I told the GP, when I am worried about my lyme brain fog and my depersonalization from bart, why would I want to add marijuana to the mix, making me feel like I have landed on Mars?
I knew two people that became schizoprhenic from LSD and marijuana exacerbated it. It certainly did not make them act more normal except perhaps to the skewed minds of those making them high.
One of them was institutionalized because he would not take his medication under the influence of marijuana. It often causes paranoia. Where does the expression "bad vibes" come from?
It causes confusion, memory loss, and inability to focus. Consider the hippie expressions used to describe life while high such as "far out, spacey, free love, if it feels good do it. . . " Marijuana decreases responsibility and motivation. It promotes a false sense of intimacy and spirituality.
Most of us are trying to regain who we used to be, not lose ourselves in some other way.
-------------------- old joke: idiopathic means the patient is pathological and the the doctor is an idiot Posts: 4676 | From western Montana | Registered: Apr 2009
| IP: Logged |
posted
It helped me with pain, nausea and other lymie symptoms but like others have said if something that is a problem for you is anixety, it can exacerbate things.
It also can help anxiety though too, I think it depends on the blend etc.
As others have said taking it slow is key! :-)
-------------------- When the going gets tough. . . I'll keep fighting! Ms. Geet3721
New LLMD, New abx, New life coming right up!!!! Posts: 714 | From La La Lyme Land | Registered: Jun 2008
| IP: Logged |
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/
UBBFriend: Email this page to someone!
![[Smile]](smile.gif)
Nice to see you post too. I've been wondering how you've been!
Printer-friendly view of this topic