Topic: Would you continue to treat if mild Tinnitus was your only remaining symptom?
bcb1200
Frequent Contributor (1K+ posts)
Member # 25745
posted
Just curious what others feel.
This is one of 3 remaining symptoms. The other being eye floaters (no biggie) and mild calf twitching, which appears to be getting better with Bart treatment.
I never really had tinnitus before I crashed in March. Sure..I remember times where one ear or the other would ring. And I remember, when I was in a dead quiet room, hearding some noise (not really ringing.)
But this is something I've had ever since my dx. It is better, but still there. I usually don't hear it.
Problem is...I don't know if it is due to jaw / TMJ, lyme & co, or other. It got much worse in March after my jaw was "adjusted" by a Chiropractor. Since then I've been undergoing TMJ therapy with a splint. Jaw feels pretty good now, almost back to normal. But mild tinnitus remains.
I can deal with it, but worry it is an indication of something "lingering."
B
-------------------- Bite date ? 2/10 symptoms began 5/10 dx'd, after 3 months numerous test and doctors
IgM Igenex +/CDC + + 23/25, 30, 31, 34, 41, 83/93
Currently on:
Currently at around 95% +/- most days. Posts: 3134 | From Massachusetts | Registered: May 2010
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posted
My eye floaters didn't go away. I have mild ear ringing which could be from being in band when I was younger or even concerts .... I don't know that it's from the Lyme necessarily. I've had lyme since I was young, so I never had a clear start to it.
So, no, based on those, I would not consider them in my decision to continue treatment .... calf twitching, I don't know ....
I'd discuss it with your LLMD.
-------------------- sixgoofykids.blogspot.com Posts: 13449 | From Ohio | Registered: Feb 2007
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posted
Well I would certainely continue treatment... this indicates that some pretty nasty bugs are there and they will not go away on their own, and if you do not deal with them, they will likely deal with you in not a nice way....
Posts: 723 | From Montreal | Registered: Oct 2010
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glm1111
Frequent Contributor (5K+ posts)
Member # 16556
posted
Lets see....Floaters, tinnitus, and twitching. Sounds pretty symptomatic to me of ongoing infection.
I feel strongly that eye floaters are indicative of parasites. Your other symptoms are suspicous also of ongoing infection and if it were me I would continue treating.
Most LLMDs recommend treating 2 mos after symptoms are gone. I think there is such a high rate of relapse, that maintenance of some kind and detox are very important to keep this nasty disease at bay. So, I agree with Shahbah to continue with tx.
Gael
-------------------- PARASITES/WORMS ARE NOW RECOGNIZED AS THE NUMBER 1 CO-INFECTION IN LYME DISEASE BY ILADS* Posts: 6418 | From philadelphia pa | Registered: Jul 2008
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bcb1200
Frequent Contributor (1K+ posts)
Member # 25745
posted
How can I treat parasites? Parastroy?
-------------------- Bite date ? 2/10 symptoms began 5/10 dx'd, after 3 months numerous test and doctors
IgM Igenex +/CDC + + 23/25, 30, 31, 34, 41, 83/93
Currently on:
Currently at around 95% +/- most days. Posts: 3134 | From Massachusetts | Registered: May 2010
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onbam
Unregistered
posted
I've read that floaters may never go away, regardless of the cause. Not sure about tinnitus.
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'Kete-tracker
Frequent Contributor (1K+ posts)
Member # 17189
posted
I think you should consider stopping the meds for now to see if the tinnitus (symptom) clears up on it's own. Som meds can actually cause the "ringing/ zinging".
I had some tinnitus, years prior to getting Lyme, that followed a short, flu-like illness (no exposure to ticks at this point) which my PCP attributed to a virus going around.
I cleared the ringing up over a couple months with extra B vitamins (esp. B-6 & B-12) and rigorous daily exercise.
I still have minor left elbow twitching that Might indicate a remaining Bart-like infection, but As it's minor & often isn't there, I haven't pursued further treatmnent.
If tinnitus was the Only symptom, I'd stop, but with other symtoms you listed... :/ it's your call.
Posts: 1233 | From Dover, NH | Registered: Sep 2008
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lululymemom
Frequent Contributor (1K+ posts)
Member # 26405
posted
Wasn't it just recently that you were majorily symptomatic on Bart treatment? I would think it would be better to continue for at least another month before going off abx..
Bartonella henselae 1:100 Posts: 2027 | From British Columbia | Registered: Jun 2010
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Pinelady
Frequent Contributor (5K+ posts)
Member # 18524
posted
I would continue. Sweet oil stops my tinnitus, itching, pain.
-------------------- Suspected Lyme 07 Test neg One band migrating in IgG region unable to identify.Igenex Jan.09IFA titer 1:40 IND IgM neg pos 31 +++ 34 IND 39 IND 41 IND 83-93 + DX:Neuroborreliosis Posts: 5850 | From Kentucky | Registered: Dec 2008
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- Tinnitus has a million causes, and influences. Consider infection, sure, but also consider all the other possible reasons. -------------
posted
When I first got on this site almost 3 years ago TF asked me if I had floaters. Once she explained what they were I wrote, wanting to yell it at the top of my lungs "Yes!"
I was so relieved that my symptoms were in common with othes and that perhaps I wasn't nuts.
I had floaters so bad. I felt like the poster child for floaters and actually used those words when I first saw my LLMD.
My floaters are completely gone. I can't remember exactly when they were gone, but they are totally absent and they were once quite bad.
I've been treated for Babs for 7 months. That was when I first started. I was also on Lyme medicine starting on maybe month 3 or so. Since then I've been treated for Lyme and in the past year, lots of Bartonella treatment.
I don't know if you should or shouldn't continue, but my floaters are gone and have been for a long time.
Posts: 152 | From West Palm Bech, FL | Registered: May 2008
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Tricky Tickey
Frequent Contributor (1K+ posts)
Member # 26546
posted
I find myself asking the same question. With only one remaining symptom left, elbow/tendoni****/arm pain, all others are gone. The only very small thing I still have is a very slight, tiny palsy type movement on my upper lip. It can't be seen by looking at it. It's like the right side of the upper lip draws up slightly, then releases.
Other than being stiff when getting up sometimes, I'm good to go. My LLMD said we would see about getting off meds when I come back in November. I'm ready to stop taking them. I won't know if it's from the bacteria unless I stop treatment.
I know how you feel. It's like you wonder if it's gonna be forever, or what. WE may or may not have symptoms like this from now on. This bacteria is brilliant & deadly, always changing, never the same in any 2 people, always deceiving.
Good luck, YOu will make the right decision.
-------------------- Early Disseminated LD- 2010. Currently doing acupuncture and yoga. Negative Igenex (IND & Pos Bands) ISSUES AFTER: Tendonitis, letter reversal, Low immune system. PREVENTION:SaltC,Iodine,Humaworm, Chiropractic. Posts: 1013 | From In a van down by the river. | Registered: Jun 2010
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posted
The tinnitus can be caused by the meds themselves! Floaters... who knows? They may last forever. If they're not bad, then maybe they're not from Lyme.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
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Carol in PA
Frequent Contributor (5K+ posts)
Member # 5338
posted
Muscle twitching and TMJ symptoms can be due to low magnesium.
Lyme bacteria use up the magnesium in our cells, causing many of the ongoing symptoms.
Have you been using supplemental magnesium? Which kind...look at the list of ingredients.
Carol
Posts: 6947 | From Lancaster, PA | Registered: Feb 2004
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posted
Tinnitus could be due to C8 nerve irritation, so says a Lyme doc. I treated with a PEMF electro-magnetic machine and my tinnitus stopped for 6 hours.
Floaters I fixed, along with all my other Lyme eye symptoms, simply by drinking mangosteen juice. There are lots of brands - I drink the Ultra one from Trace Minerals. If you try it, go slow and drink water too, as it can be powerful.
Posts: 13116 | From San Francisco | Registered: May 2006
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bcb1200
Frequent Contributor (1K+ posts)
Member # 25745
posted
quote:Originally posted by lululymemom: Wasn't it just recently that you were majorily symptomatic on Bart treatment? I would think it would be better to continue for at least another month before going off abx..
Yes...and notice I didn't say I was stopping now. I plan on continuing until at least early December when I have my next LLMD appointment, as well as follow up CD-57, Brain MR, and spect.
My question was mainly hypothetical. As Keebler points out, there are many many causes of tinnitus. Lyme is one of them.
Yes..I supplement with Magnesium. I take 8 Mag Tab-SR's / day.
-------------------- Bite date ? 2/10 symptoms began 5/10 dx'd, after 3 months numerous test and doctors
IgM Igenex +/CDC + + 23/25, 30, 31, 34, 41, 83/93
Currently on:
Currently at around 95% +/- most days. Posts: 3134 | From Massachusetts | Registered: May 2010
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posted
If your tinnitus started when you got sick, I would view it as part of Lyme and keep treating for a while longer, even if all your other symptoms are gone.
In December, you will only have been treating for 6 or 7 months. I would give it a little longer to see if the tinnitus goes away.
If it is still Lyme and you don't treat, the consequences seem worse to me, than a few more months of abx.
Just my opinion.
Posts: 984 | From US | Registered: Dec 2007
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lymeinhell
Frequent Contributor (1K+ posts)
Member # 4622
posted
I was left with tinnitus and stopped abx 6 years ago. As others have said, there are so many causes of it, it can't always be chalked up to lyme.
I got rid of floaters through major detoxing.
Re twitching - get a red blood cell magnesium count. If you're low, oral magnesium, no matter what the brand, will not restore your levels to normal.
I would also take into account how you are feeling overall, before you make that next step. Is feeling 'normal' a regular everyday occurrence?
-------------------- Julie _ _ ___ _ _ lymeinhell
Blessed are those who expect nothing, for they shall not be disappointed. Posts: 2258 | From a better place than I was 11 yrs ago | Registered: Sep 2003
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sutherngrl
Frequent Contributor (1K+ posts)
Member # 16270
posted
I think the day finally comes when we have to stop antibiotics and see what transpires. Not everything is LD and some things may just be damage that we are stuck with.
I know that most of us have mixed feelings about stopping antibiotics. You do and you don't want to, for obvious reasons. But its not like you can't go back on them if you feel the need to.
Posts: 4035 | From Mississippi | Registered: Jul 2008
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Pinelady
Frequent Contributor (5K+ posts)
Member # 18524
posted
Lymetoo is right on the meds...Minocin is notorious for this.
-------------------- Suspected Lyme 07 Test neg One band migrating in IgG region unable to identify.Igenex Jan.09IFA titer 1:40 IND IgM neg pos 31 +++ 34 IND 39 IND 41 IND 83-93 + DX:Neuroborreliosis Posts: 5850 | From Kentucky | Registered: Dec 2008
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nefferdun
Frequent Contributor (1K+ posts)
Member # 20157
posted
I would be most concerned about the muscle twitching. The tinnitis can be caused from ABX. I have had it for 25 years, way before lyme, but it gets worse on abx. I don't have floaters, thank goodness.
-------------------- old joke: idiopathic means the patient is pathological and the the doctor is an idiot Posts: 4676 | From western Montana | Registered: Apr 2009
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onbam
Unregistered
posted
I think Dr. B says three months well before you go off.
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