posted
I'm not talking about Babesia... but intestinal parasites.
It seems like some LLMDs think they aren't an important factor?
Is it controversial?
Mary
-------------------- Son, 26, Dx Lyme 4/10, Babs 8/10 Had serious arthritis, all gone. Currently on Valtrex Daughter, 26,bullseye 7/11 arthritis in knees, cured and off all meds. . Self:Lyme, bart, sxs gone, no longer treating. Posts: 496 | From Washington, DC | Registered: Jul 2010
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seekhelp
Frequent Contributor (5K+ posts)
Member # 15067
posted
Few if any do. Posts: 7545 | From The 5th Dimension - The Twilight Zone | Registered: Mar 2008
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glm1111
Frequent Contributor (5K+ posts)
Member # 16556
posted
It's a VERY overlooked part of this disease. LLMDs are regular MDs and are not very well trained in medical school in parasitology.
It is unfortunately thought of as a "Third World Problem" and doesn't affect us here in the U.S. It's a shame because IMO parasites could be behind a lot of our degenerative diseases.
Gael
-------------------- PARASITES/WORMS ARE NOW RECOGNIZED AS THE NUMBER 1 CO-INFECTION IN LYME DISEASE BY ILADS* Posts: 6418 | From philadelphia pa | Registered: Jul 2008
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nefferdun
Frequent Contributor (1K+ posts)
Member # 20157
posted
why wouldn't a fecal sample show if you had parasites? Instead of just treating and possibly upsetting your already overstressed gut, why not look for them first?
-------------------- old joke: idiopathic means the patient is pathological and the the doctor is an idiot Posts: 4676 | From western Montana | Registered: Apr 2009
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posted
I think some LLMDs think that often when the stool comes back normal, there are still some parasites that weren't noted or tested for. It seems like there are lost of people (like Gael) and some docs (like my son's) who think that parasites get in the way of clearing Lyme.
He's done a lot of anti-parasite treatments, but I'm not seeing any response. Of course, he's still early on in Lyme and Babs tx, so who knows..
-------------------- Son, 26, Dx Lyme 4/10, Babs 8/10 Had serious arthritis, all gone. Currently on Valtrex Daughter, 26,bullseye 7/11 arthritis in knees, cured and off all meds. . Self:Lyme, bart, sxs gone, no longer treating. Posts: 496 | From Washington, DC | Registered: Jul 2010
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posted
Mine was surprised and a little unbelieving when I told him I saw them when I took Humaworm. He asked how I knew it was a tapeworm ... I gave him a description and told him how I then started eating half as much and gained 10 pounds.
I think he believed me, but couldn't believe it at the same time, if you know what I mean ....
He wrote the Humaworm website name down, but I haven't heard about him recommending it to others, so I'm not sure if he treats them.
He tests .... my tests came out negative even though my infestation was significant.
-------------------- sixgoofykids.blogspot.com Posts: 13449 | From Ohio | Registered: Feb 2007
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randibear
Honored Contributor (10K+ posts)
Member # 11290
posted
i don't think dr. w did. i was just on flagyl and biaxin so i don't think they do parasites.
-------------------- do not look back when the only course is forward Posts: 12262 | From texas | Registered: Mar 2007
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posted
My LLMD treats parasites. She thinks it is important to address them as well as the lyme etc. Although it sounds like most LLMD's don't do this. I think they should though.
Nefferdun...I have been told by a couple different doctors that parasites can be hard to detect so just because the tests are negative doesn't mean they aren't there. I think that is why some doctors treat for them no matter what the tests say.
Randibear...actually Flagyl does work on some parasites but most LLMD's aren't using it for that at all.
-------------------- Sick since 10/2001. Tested CDC positive for Lyme 10/2008 through Quest and Igenex. Started treatment 1/2009 with LLMD. Lyme, Erichilosis, Chlamydophila Pneumoniae, Q Fever, Strep Syndrome and probably a few others I am forgetting. Posts: 451 | From Virginia | Registered: Feb 2009
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posted
Mine said he does this at the end of treatment - not sure if this is the right time or not
Posts: 749 | From State full of ticks | Registered: Dec 2008
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TerryK
Frequent Contributor (5K+ posts)
Member # 8552
posted
Mine does. I personally do not believe testing is accurate. One example, we had our dog tested several times for parasites. All negative. We had just gotten back from the vet where they told us there were no worms when the dog opened her mouth and a large pile of worms landed on the carpet.
When I first started treatment my eosinophils (eos) was high. The first few weeks of treatment my liver felt very swollen which made walking quite painful.
We treated for a long time because everytime I would stop treatment my eos would start to climb. Last time I stopped my eos was fine.
I'll know more after my next test in a week or so as to whether my eos is back up after not treating for several months.
I think parasites could be a significant issue for many people and testing may not uncover it.
Terry I'm not a doctor
Posts: 6286 | From Oregon | Registered: Jan 2006
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RZR
Frequent Contributor (1K+ posts)
Member # 20953
posted
Mine does not. I passed some parasites after starting artemisinin. He said lots of his patients tell him that, but he did not know what to think. I have been passing them for 5 weeks.
I lost 20 pounds in the past 10 months and suffer with significant stomach problems. I am 5'6" and weigh only 105 lbs.
I saw another doctor yesterday that prescribed Alinia. I have not started it yet. I will take it daily for 3 weeks, 3 weeks off and repeat for 3 months.
-------------------- Tick bite May 2009 Diagnosed June 2009 Posts: 2329 | From SouthEast | Registered: Jun 2009
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