posted
My Husband has not been sleeping and his heart rate will flutter. Sleeping pills didn't work and he had back surgery and they are saying that he is having a reaction to the steriods he took and stopped them. He has weird dreams and periods of cold and periods of sweats at night. He said that he feels like someone is taking over his mind and is very emotional. Any little thing makes him cry. Is all of this tied into him having surgery and making the lyme progress. All he is taking is minocyclene and i remember that someone said that they can only treat one thing at a time, he also has bartenella. any one have suggestions?
Posts: 5 | From pennsylvania | Registered: Oct 2010
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lululymemom
Frequent Contributor (1K+ posts)
Member # 26405
posted
I have bartonella and have been treating my heart issues with Magnesium and CoQ10..
I am not treating with abx yet and not sure I will be, but the magnesium really calms my heart at night.
The sweats almost sound like babesia, maybe someone else can offer some advice on that..
posted
It could be from the steroids. Steroids are a HUGE no no when you have lyme disease. It can really flare things up and make things worse when you have lyme.
It is good that he has stopped the steroids but if all this was due to the steroids I have no clue how long it might take for him to recover from that. Hopefully someone else will come along and chime in on that.
Also the general consensus seems to be that it is best to take a combo of antibiotics and not just one. So your husband may need to be taking more than just the minocycline.
Is he seeing an LLMD? He really needs to have a good LLMD.
As the other member mentioned...Coenzyme Q10 and Magnesium are both good for heart issues. I use them for mine as well.
-------------------- Sick since 10/2001. Tested CDC positive for Lyme 10/2008 through Quest and Igenex. Started treatment 1/2009 with LLMD. Lyme, Erichilosis, Chlamydophila Pneumoniae, Q Fever, Strep Syndrome and probably a few others I am forgetting. Posts: 451 | From Virginia | Registered: Feb 2009
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- Steroids can hang out in the body for about six months. Nutritional support methods can help, of course.
If all he is taking is minocycline, I'm sorry that he doesn't have a LLMD who is more current on the support methods that many consider essential to successful treatment.
The crying can be from the steroids (I've been there, sadly) . . . and from all of this. Magnesium can help but a good supplement plan is best.
You might start with some of the suggestions here, in addition to magnesium, hawthorn is excellent support for the heart.
�� Nutritional Supplements in Disseminated Lyme Disease ��
J.J. Burrascano, Jr., MD (2008) - Four pages
=============================
It's very important to have this book as a reference tool for self-care and support measures. It answers so many questions in detail that is impossible here on the forum.
Topic: TINNITUS: Ringing Between The Ears; Vestibular, Balance, Hearing with compiled links - including HYPERACUSIS -
Posts: 48021 | From Tree House | Registered: Jul 2007
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-------------------- Lyme, Babs, Fry Bug..... Whatever it is, may a treatment be discovered to make us all whole again! Posts: 941 | From AZ-MT | Registered: Oct 2004
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- In addition to his LLMD addressing lyme (and, hopefully, any other infections), other kinds of treatment can be of tremendous support: ------------------------
Topic: How to find a LL ND (naturopathic doctor), acupuncturist, etc.
Includes how to find an ILADS-educated LL ND, an Acupuncturist, a doctor of Oriental Medicine (O.M.D.), or a doctor of Ayurvedic Medicine (D.Ay.), certified herbalists or nutritionists, etc.
Includes many articles and books on complementary / integrative methods - & RIFE links.
BODY WORK links are also included. -
Posts: 48021 | From Tree House | Registered: Jul 2007
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- After all that, I remember that the crying has so much to do with adrenal exhaustion. Steroids made that much worse. So, after all the talk about liver support, I would start with ADRENAL SUPPORT and then move on to other supportive measures.
If he's taking any kind of sleeping Rx, those can also cause crying and severe sadness.
Weekly massage was also very important to my being able to stop crying. It really calms the nervous system that is so fried from lyme.
If the body is not able to process certain meds, this is something to consider. And a steroid reaction is very common for those with this kind of liver enzyme deficiency, too. Start with the "Secondary Porphyria" post: ------------------
I've been on steroids before all this Lyme stuff and never experienced any of those symptoms.
Doxycycline is effective for some types of bartonella but I am unsure if minocycline is? Your LLMD may want to prescribe something more bart-specific...
And steroids + bartonella should never be in the same PARAGRAPH!
His highly emotional state is most definitely tied to the bartonella, exacerbated by the steroids, in my opinion. It has the highest chance of causing those symptoms among all the infections, except perhaps late stage Lyme disease, but bartonella causes these fluctuations MUCH more rapidly. Please assure him that it's the infections causing him to feel as if he's losing his mind--goodness knows I've been there--and do NOT take anymore steroids! Ever, unless his life is in imminent danger! They lower the body's immune system response and let infections take over!
little olive
-------------------- Myalgic encephalomyelitis, 2002 | Viral onset, following Hep B vaccine Lyme since '06 | Bartonella since '08 (cured) | Mycoplasma pneumoniae since '08 IGeneX: IgM 31IND 34IND 41+ | IgG 39IND 58+ 41+++ IgG deficiencies and MTHFR 677TT mutations Posts: 512 | From USA | Registered: Sep 2010
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[ 10-27-2010, 11:53 PM: Message edited by: elizzza811 ]
Posts: 495 | From USA | Registered: Mar 2010
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Pinelady
Frequent Contributor (5K+ posts)
Member # 18524
posted
I have a penny----Lyme can be exacerbated by any type of emotional or physical insult.
I would call your doc and tell him whats going on. He may want to switch to another route for a few weeks to see how he reacts...
Or he could tell you he is herxing and it will get better...Keep an eye on him.
-------------------- Suspected Lyme 07 Test neg One band migrating in IgG region unable to identify.Igenex Jan.09IFA titer 1:40 IND IgM neg pos 31 +++ 34 IND 39 IND 41 IND 83-93 + DX:Neuroborreliosis Posts: 5850 | From Kentucky | Registered: Dec 2008
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