posted
I am also very interested in anyones experiences with this center.
Posts: 306 | From NY | Registered: Sep 2010
| IP: Logged |
Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- These are the top three phrases that most disturb me but I am too tired to pull up all the sources to verify why I know these are dangerous comments & dangerous outlooks. Others can do that. ------------------
1. . . . PCR technology, when used properly, can conclusively confirm the presence of Lyme infection pre-treatment and the absence of Lyme infection post-treatment. . . .
. . . 5. Our experience shows that 88% of our Lyme patients are cured within 56 days. That is based on hundreds of cases. We define cure not as symptom free but Lyme free. . . .
. . . 6. We will work with you until we have scientific proof that Lyme disease is cured.
It's not enough for us that your symptoms are relieved. We want proof that the bacteria are no longer present in your body. . . . -
Posts: 48021 | From Tree House | Registered: Jul 2007
| IP: Logged |
Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- Jennie,
Aside from the fact that the test they use is inadequate to determine absence of lyme, you might contact the Lyme Support Groups in that region for patient experiences with treatment methods and thoroughness regarding other tick-borne infections that are not mentioned at the site.
In the FAQ, they misspell Igenex. That lack of attention to detail matters when we are talking about medical care. They also deny gestational lyme, against medial proof otherwise.
On the adjunct treatment page, I can see the possibility that a lot of money could go down the tubes by adding on stuff rather than keeping after the infection. And I'm a big fan of support methods, but this page seems to steer away from lyme as a cause for many symptoms.
Now, many of the things they say do sound promising and they do seem to get the fact that lyme can be devastating. But I've seen too many few red flags. -
Posts: 48021 | From Tree House | Registered: Jul 2007
| IP: Logged |
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/
UBBFriend: Email this page to someone!
Printer-friendly view of this topic