posted
Constant 24/7 brain fog is my most problematic symptom, I haven't felt normal in a couple months. I cannot continue my college education until I get rid of this. For those of you who can relate, what medication cleared your fog the bst??
Posts: 306 | From NY | Registered: Sep 2010
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posted
your troubles started on aug 22 and you're already on rocephin IV? wow i need to go see your LLMD!
according to Burrascano, oral azi is no good. take it IV or switch to telithromycin
-------------------- We will win Posts: 135 | From California | Registered: Jul 2010
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Hoosiers51
Frequent Contributor (1K+ posts)
Member # 15759
posted
For me, it was Bactrim DS.
A lot of others see success with the drug Rifampin for brain fog. That's the most common to help brain fog.
It can get better.....it just takes some experimenting until you get there. Good luck!
I also take Low Dose Naltrexone, which I consider important for immune function, and I think it does help me overall, so I don't know if my antibiotics would have worked as well without it. A doctor has to prescribe it. www.lowdosenaltrexone.org for info.
Posts: 4590 | From Midwest | Registered: Jun 2008
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steve1906
Frequent Contributor (1K+ posts)
Member # 16206
posted
Brain Fog: Check this out...let me know if you like the site?
-------------------- Everything I say is just my opinion! Posts: 3529 | From Massachusetts Boston Area | Registered: Jul 2008
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daystar1952
Frequent Contributor (1K+ posts)
Member # 3255
posted
Besides antibiotics....a very low carb gluten free diet helped my brain to sparkle and shine!!The world seemed sharper and clearer, my asthma, allergies, dry eyes all went away. I could stay on task, memory better, could read better...etc.
Posts: 1176 | Registered: Oct 2002
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posted
In addition to medications, take a look at possible food sensitivities. This can be trial-and-error, but definitely worth the effort. They won't show up on standard allergy pin-prick tests, but just make you feel bad: foggy, irritable, etc.
Sensitivities might show up now that your immune system is under attack. You may have been fine with something all along, but suddenly it causes a problem, so be a sleuth!
Pretty common mental fog triggers are soy, dairy, gluten, caffeine, aspartame, msg, and corn syrupy stuff. For example, if I have a cup of soy milk (e.g, soy latt� which I could go for about now!), I am so foggy that I can't even drive or concentrate on my studies.
Good luck!
Posts: 636 | From Saratoga County, NY | Registered: Apr 2008
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posted
i think treatment for bartonella is what you need...
Posts: 723 | From Montreal | Registered: Oct 2010
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17hens
Frequent Contributor (1K+ posts)
Member # 23747
posted
Good site, Steve.
-------------------- "My flesh and my heart may fail, but God is the strength of my heart and my portion forever." Psalms 73:26
bit 4/09, diagnosed 1/10 Posts: 3043 | From PA | Registered: Dec 2009
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nefferdun
Frequent Contributor (1K+ posts)
Member # 20157
posted
That is a good site.
What helped me the most was treating bartonella.
-------------------- old joke: idiopathic means the patient is pathological and the the doctor is an idiot Posts: 4676 | From western Montana | Registered: Apr 2009
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posted
I suspect Bartonella too, but I do not have sore feet, I have never had a fever, and do not have the rash so I just am not sure. Basically the only symptoms I have right now are major fatigue and a woozy feeling 24/7 which I call brain fog.
Posts: 306 | From NY | Registered: Sep 2010
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TX Lyme Mom
Frequent Contributor (1K+ posts)
Member # 3162
posted
quote:Originally posted by daystar1952: Besides antibiotics....a very low carb gluten free diet helped my brain to sparkle and shine!!The world seemed sharper and clearer, my asthma, allergies, dry eyes all went away. I could stay on task, memory better, could read better...etc.
Our daughter has had a similar experience with a GF diet. Her brain fog lifted like magic within just a few days of going completely 100% gluten free -- also her migraines and depression and deep fatigued vanished equally quickly, too.
Recently, she learned that white matter lesions on the brain have been found in celiac disease!
For her, learning about celiac was the "missing piece of the puzzle" which has led to a full remission from the symptoms of neuro-Lyme.
Considering that 40% of the American population carries the genes for celiac, it would behoove any chronic neuro-Lyme patient to be tested for gluten intolerance. The blood tests for celiac aren't as good as stool testing is though. Here is a link to the lab which is recommended on most of the celiac websites:
PS - I'm editing to add that Lyme can act as a "trigger" to activate latent celiac in someone who is genetically predisposed to it.
Posts: 4563 | From TX | Registered: Sep 2002
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-------------------- ? date of bite/no rash 10/09 symptoms, 4/10 diagnosed, after 6 mos. ER visits, tons of docs/tests CDC+ 23/39/41/45/58/66/93 currently on oral plaquenil, doryx, rifampin, pyrazinamide, nystatin, numerous supplements Posts: 718 | From Pennsylvania | Registered: Jun 2010
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-------------------- ? date of bite/no rash 10/09 symptoms, 4/10 diagnosed, after 6 mos. ER visits, tons of docs/tests CDC+ 23/39/41/45/58/66/93 currently on oral plaquenil, doryx, rifampin, pyrazinamide, nystatin, numerous supplements Posts: 718 | From Pennsylvania | Registered: Jun 2010
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sixgoofykids
Honored Contributor (10K+ posts)
Member # 11141
posted
Cipro, Levaquin, and parasite treatment.
-------------------- sixgoofykids.blogspot.com Posts: 13449 | From Ohio | Registered: Feb 2007
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posted
TXlymemom, my daughter had the same reaction to going gluten free. I think medication/supps. are the most powerful agent against Lyme and co., but food is the second. Combining the two delivers a one-two punch that can help a person get his or her life back.
Posts: 636 | From Saratoga County, NY | Registered: Apr 2008
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-------------------- ? date of bite/no rash 10/09 symptoms, 4/10 diagnosed, after 6 mos. ER visits, tons of docs/tests CDC+ 23/39/41/45/58/66/93 currently on oral plaquenil, doryx, rifampin, pyrazinamide, nystatin, numerous supplements Posts: 718 | From Pennsylvania | Registered: Jun 2010
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Tricky Tickey
Frequent Contributor (1K+ posts)
Member # 26546
posted
My answer for getting rid of brain fog:
Intense chiropractic treatment!!
Anti-anxiety medication: Lexapro!
Take off work!
Rest!
In 3 weeks, I was back to work. The chiropractic treatments helped me detox. My spine was right against the brain stem. I couldn't heal cause the pressure was blocking my body's ability to heal & rid itself of the toxins.
All the soaks in the world wouldn't do it. Once I got it worked on, the antibiotics & my body worked together to rid itself of the bacteria along with toxins causing brain fog. My head started clearing up after 5 adjustments.
If you've read Dr.Jernigan's book aobut healing from Lyme disease, you will see he is a chiropractor of the healing arts also. Working to get the body to work without interference so it can heal itself.
-------------------- Early Disseminated LD- 2010. Currently doing acupuncture and yoga. Negative Igenex (IND & Pos Bands) ISSUES AFTER: Tendonitis, letter reversal, Low immune system. PREVENTION:SaltC,Iodine,Humaworm, Chiropractic. Posts: 1013 | From In a van down by the river. | Registered: Jun 2010
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