posted
Have seen some posts about people having vision issues, which I am also experiencing. Also saw posts about vision doctors that are Lymes literate. I guess I'm wondering, if being treated for lymes is supposed to stop the symptoms, at what point might a person need a eye doc? And.... might I get that info from the other board also? Thanks Theresa
By the way, saw primary today, she's not with me on the lymes part, but is not telling me to not pursue it. She is open to refer me to the doctors that I got names on... so keep your fingers crossed that i'll get into one of them before next year!!!
Posts: 13 | From Monson, MA | Registered: Oct 2010
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posted
I had horrible sight problems and I am happy to say they are almost all gone now. I only have a problem when I am too stressed.
Posts: 303 | From green bay, wi | Registered: Mar 2009
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TX Lyme Mom
Frequent Contributor (1K+ posts)
Member # 3162
posted
Bartonella is known to affect the eyes. Be sure not to overlook the possibility of Bartonella. Be aware, however, that the tests for Bartonella are not very good and that a negative test for Bartonella does not rule it out.
Find a good LLMD who is a member of ILADS because these experienced doctors know about Bartonella as another tickborne co-infection although Bartonella is most often associated with cat fleas.
Posts: 4563 | From TX | Registered: Sep 2002
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posted
I went to a good neuro-opthalmologist and passed all the tests, even tho I couldn't look at light, had floaters, eye muscle pain and blurred vision.
Then my chiropractor suggested I try drinking mangosteen juice and it worked - within 24 hours, all my Lyme eye symptoms were gone.
It's an anti-inflammatory, anti-oxidant juice that combats the free radicals created by inflammation.
There are lots of brands online and in health food stores - I drink the Ultra one from Trace Minerals with 70 minerals added.
If you try some, go slowly and drink water also, as it can be powerful.
Keep in mind we're all different and respond differently to everything. So each of us has to find what's right for us.
Posts: 13116 | From San Francisco | Registered: May 2006
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Rumigirl
Frequent Contributor (1K+ posts)
Member # 15091
posted
There's a really excellent LLMD opthalmalogist in Westchester, NY, if you want the info. I highly recommend her. Regular opthalmalogists are useless for Lyme problems in my experience.
The problems may go away with treatment, but you need to make sure that they are being addressed adequately.
Please make sure that you follow TX Lyme Mom's advice above. An Infectious Disease doctor, for instance, will be worse than seeing no one (with a very few exceptions). You can't just see anyone who says they treat Lyme (it's not Lymes, BTW).
This is one illness where it does NOT pay to scrimp.
Posts: 3771 | From around | Registered: Mar 2008
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posted
So you can get bartonella by getting bitten by fleas? Is that common? Myfriend got really sick this summer when he rented a room in an apartment with a flea-ridden cat. He had flea bites all over his legs and his lymph nodes got extremely swollen. I think he's fine now, though.
Posts: 227 | From Northern CA (bitten in Illinois) | Registered: Jan 2008
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posted
Well since you said you are having vision issues why wouldn't it benefit you to see an opthalmologist?
And what other board are you referring to?
-------------------- You gain strength, courage, and confidence by every experience in which you really stop to look fear in the face. You are able to say to yourself, 'I lived through this horror. I can take the next thing that comes along.'
---Eleanor Roosevelt Posts: 748 | From somewhere | Registered: May 2010
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posted
Have no clue why i wrote, from the other board! Think I was asking for a list of doctors in MA that are optho docs.
What I mean about seeing an eye doc: if the vision problems stop with treatment, what can an eye doc do for me?
Posts: 13 | From Monson, MA | Registered: Oct 2010
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posted
All an Eye doctor will do is tell you your retina is ok.
it is a waste of time been there done that
Paul
Posts: 925 | From Connecticut | Registered: Aug 2010
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TX Lyme Mom
Frequent Contributor (1K+ posts)
Member # 3162
posted
quote:Originally posted by backintherain: So you can get bartonella by getting bitten by fleas? Is that common? Myfriend got really sick this summer when he rented a room in an apartment with a flea-ridden cat. He had flea bites all over his legs and his lymph nodes got extremely swollen. I think he's fine now, though.
This is off the topic of the original subject heading, but since you asked, let me give a brief answer to your concern about your friend's problem. Most normal healthy people with good immune systems can throw off Bartonella rather easily. Whether it might come back later under a period of extreme physiological stress or illness is something to be mindful of though, so your friend should make a note of this exposure and keep it in mind if he has problems later.
The medical literature on Bartonella says that usually only the very young and the elderly or those who have weakened immune systems (such as AIDS patients) are at risk for contracting Bartonella. Borrelia causes sufficient immuno-suppression that Lyme patients seem to acquire Bartonella as a co-infection rather easily, too.
Since your friend is healthy now and his lymph nodes have gone down, he probably doesn't have too much to worry about. Nevertheless, I would urge you to caution him to make a written note about the incident for later in case he develops any kind of chronic health condition in the future. Otherwise, tell him not to worry too much about it now.
Posts: 4563 | From TX | Registered: Sep 2002
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posted
We need a lyme-literate opthalmologist in the DC area. Does anybody know of one?
Please PM me if you do..
-------------------- Son, 26, Dx Lyme 4/10, Babs 8/10 Had serious arthritis, all gone. Currently on Valtrex Daughter, 26,bullseye 7/11 arthritis in knees, cured and off all meds. . Self:Lyme, bart, sxs gone, no longer treating. Posts: 496 | From Washington, DC | Registered: Jul 2010
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posted
I also went to an eye doctor because of my eye problems. I was told that my eyes were getting tired from looking at a computer screen all day.
The eye doctor gave me drops to put in my eyes. All the drops did was burn and sting my eyes.
After researching here on this site, I found mangosteen juice. I swear by it. I drink a little every morning.
All eye problems seems to be gone. I still have other issues, but my eyes are fine.
-------------------- cjfrank
IGG Western Blot - negative IGG Bands Detected - p18 IGM Western Blot - positive IGM Bands Detected - p23, p41 Posts: 49 | From Maine | Registered: Jul 2010
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momintexas
Frequent Contributor (1K+ posts)
Member # 23391
posted
It would be good to get it checked out just in case. It may not be Lyme related. Better safe than sorry.
As many have said here, it is common with Lyme and if that is what's causing your issues it should improve with treatment.
Posts: 1408 | From Tx | Registered: Nov 2009
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In my son's case his eye had a large red inflammed dot in the white area. Lyme can cause inflammatory conditions in the eye, and having an ophthalmologist on board would be helpful for monitoring any structural damage to the parts of the eye.
I do understand your question, though, because a lot of times all they can do is prescribe steroids or steroid shots... and it would have to be pretty bad before we would consider that. -Mary
-------------------- Son, 26, Dx Lyme 4/10, Babs 8/10 Had serious arthritis, all gone. Currently on Valtrex Daughter, 26,bullseye 7/11 arthritis in knees, cured and off all meds. . Self:Lyme, bart, sxs gone, no longer treating. Posts: 496 | From Washington, DC | Registered: Jul 2010
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posted
I know a great lyme literate neuro-opthalomolgist He is in lancaster, pa. Saved the sight of two young girls I know. Totally awesome. Does not treat lyme though.
pm me if you need a name and number
Posts: 298 | From usa | Registered: Aug 2009
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posted
I saw a top neuro-opthalmologist who couldn't find anything wrong. He prescribed steroid drops. I knew I wasn't supposed to do that, but tried a tiny amount just to see what it would be like, and nothing happened.
It was the next day, when my chiropractor suggested trying mangosteen juice, that I had my immediate breakthrough, which I described above.
cjfrank - glad to read that mangosteen juice is also working for you! Which brand are you drinking?
Paul - I now do about a half ounce in the am and pm. When I first started, I drank a bit more when I saw I could handle it, plus also drank a lot of water.
When I first started, it cleared out my sinuses and intestines, and caused my gums to stop bleeding!
It's supposed to contain 43 xanthones compounds that counteract free radicals created by inflammation.
Posts: 13116 | From San Francisco | Registered: May 2006
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