posted
I feel completely ignorant right now and I'd like some advice about the cycle of meds I've been on and what I should do next.
I started treatment in May. I improved on amoxy but was herxing often with excruciating ear pain and fullness in the throat. LLMD switched meds.
With the next med, I didn't show any impovement and I was having electric-like shocks up and down the left side of my body. I stopped this med because I was feeling hopeless and I was also having surgery and wanted to be drug-free, so to speak.
I met with my LLMD for my second appointment in September and I started Ceftin. Took 1 dose and my fingers turned purple. Fingers are better but definitely not normal. Called llmd regarding issuse and was told to discontinue med immediately and move on to next one as soon as fingers cleared up.
I'm scared to death to start doxy, simply because I've had such reactions/herxing with everything I've tried. LLMD says I'm definitely sensitive to meds and has me starting everything low dose.
I'm cosndiering trying the amoxy again. I felt so much better on it (except for the ears and throat) and everything that had gone away while taking it has come back. I'm miserable and sick and scared.
I'm trying to understand and trying to trust my llmd but I am full of doubts. Do I simply move on to the next med? Go back to the amoxy? I simply don't understand this and I'm totally feeling sorry for myself right now
posted
I was on 3500mg amox 2x daily, herx was pretty bad. When I was younger, I was treated with doxy 100mg 2x daily. It was rough then, not so bad now, at least compared to the other treatments.
Been on abx since Sept of last year.
Ceftin hit me pretty hard too.
Kind of stalled out, pretty rough and took some time off. Gotta talk to my doc about what we're doing now, and I'm thinking about asking for doxy. Seemed to help and wasn't as hard on me as the rest.
-------------------- Ticks suck. Posts: 140 | From Alabama | Registered: Aug 2009
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posted
Sorry you are having such a hard time with abx. I have some sensitivities to medications, but did very well on doxy. Since your doctor knows you have problems with meds, and is starting you on very low doses, hopefully if you will develop a problem on doxy it will be caught before it gets bad. My LLMD told me doxy (which is the first Lyme med I took) is pretty mild, and that was my experience.
For me, doxy got rid of my fibro symptoms. I've been off of it and on babs meds for a year now, and still the fibo symptoms haven't returned. Can't speak for anyone else, but it sure did wonders for me.
Another choice to investigate is trying natural things, but people can have a reaction to them, too, so it seems like a good idea with your history that even if you did that, working with a doctor would be safest. Whatever you do, keeping your doctor informed and starting slowly seems like the safest thing.
Posts: 212 | From San Francisco Bay Area, California | Registered: Aug 2010
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