Rianna
Frequent Contributor (1K+ posts)
Member # 11038
posted
I have been advised to take vit D3 as my levels are so low and my NP is working on boosting my immune system although I have read the following article that concerns me, THOUGHTS PLEASE
If you are familiar with the Marshall Protocol, he is adamant that you MUST avoid Vitamin D supplementation. D3 is actually not a vitamin, but a secosteroid, similar to prednisone in activity, meaning it's a powerful immune system suppressor - it might make you feel good in the beginning, but you're in essence feeding the buggers that are making you sick!
Posts: 1172 | From UK | Registered: Jan 2007
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dmc
Frequent Contributor (1K+ posts)
Member # 5102
posted
okay, let's go over this...your vit D is already in the tank...you still feel crappy & you're gonna listen to a non-medical doctor's theory about absolutely no vit D.
Too many positives from Vit. D.
I know of someone who nearly died on the MP...messed her entire system up, in hospital for a week & took months to recover.
Posts: 2675 | From ct, usa | Registered: Jan 2004
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D Bergy
Frequent Contributor (1K+ posts)
Member # 9984
posted
When in doubt, take the middle road.
Dan
Posts: 2924 | From Minnesota | Registered: Aug 2006
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Rianna
Frequent Contributor (1K+ posts)
Member # 11038
posted
Thanks - I thought this article was Great (from Dr Myhill a excellent doc here in the UK)
VITAMIN D Flu pandemics are worse during the winter months than the summer months. Indeed it is already being predicted that swine flu will flare up in the Autumn. The reason for this is vitamin D. Vitamin D is the sunshine vitamin and so the more sunshine you can get without actually burning, the better your vitamin D levels. Indeed, a recent paper in the Lancet confirmed that vitamin D is indeed highly protective against viral infection.
Roughly speaking one hour of Mediterranean sunshine will produce 10,000iu of vitamin D. I like people to have at least 2,000iu of vitamin D3 daily and for people who may be particularly susceptible, I recommend a once weekly dose of 50,000iu of vitamin D3.
Posts: 1172 | From UK | Registered: Jan 2007
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dmc
Frequent Contributor (1K+ posts)
Member # 5102
posted
I had to do a loading dose of 50,000 then back to 5,00 iu a day.
Posts: 2675 | From ct, usa | Registered: Jan 2004
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Rianna
Frequent Contributor (1K+ posts)
Member # 11038
posted
5,00iu a day that's low
I have to do 5000 IU
Posts: 1172 | From UK | Registered: Jan 2007
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D Bergy
Frequent Contributor (1K+ posts)
Member # 9984
posted
I do not have Lyme, but I take 10,000 iu in the Winter. My D level fell to half of normal taking 2,000 iu last Winter. I will see where that puts me later in the year, when I get tested.
The only sure way of knowing due to climate, metabolism, and variability of the D actually contained in the supplement, is to have yourself tested.
Dan
Posts: 2924 | From Minnesota | Registered: Aug 2006
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posted
I also had to do 50000 iu once weekly to get mine back up to near normal and now doing 5000 iu daily. Both my LLMD and PCP stress the importance of correcting vitamin D deficiency.
Posts: 26 | From New England | Registered: Mar 2010
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posted
It's both a friend and foe.
Posts: 967 | From A deserted island without internet access | Registered: Sep 2009
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sixgoofykids
Honored Contributor (10K+ posts)
Member # 11141
posted
I think it's important. I get out in the sun to get it naturally when I can.
In the winter I supplement and use a Dr. Mercola tanning bed.
-------------------- sixgoofykids.blogspot.com Posts: 13449 | From Ohio | Registered: Feb 2007
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dmc
Frequent Contributor (1K+ posts)
Member # 5102
posted
my llneuro told me it also acts as an immune modulator.
Posts: 2675 | From ct, usa | Registered: Jan 2004
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tick battler
Frequent Contributor (1K+ posts)
Member # 21113
posted
What brands do you all use? Does it matter much?
Thanks, tickbattler
Posts: 1763 | From Malvern, PA | Registered: Jul 2009
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Cass A
Frequent Contributor (1K+ posts)
Member # 11134
posted
I had my Vit D levels tested, and my level of the active metabolite, D 1,25, was up in the toxic range, although my D 25 was low.
In my case, Vit D was a big NO NO!!
Best,
Cass A
Posts: 1245 | From Thousand Oaks, CA | Registered: Feb 2007
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TX Lyme Mom
Frequent Contributor (1K+ posts)
Member # 3162
posted
Our daughter is one of the MP success stories. Like Cass A (above), her 1,25-D was in the toxic range also although her 25-D was not low. Since completing the MP two years ago, she has remained symptom free and antibiotic free and we no longer worry anymore about Lyme relapse. Consequently, we are very biased against any form of vitamin D supplementation.
Likewise, my husband's health improved dramatically after I stopped buying milk fortified with vitamin D. He used to get colds and flu several times every winter until we took fortified milk out of his diet, at which point he stopped having colds and flu so often during the winter.
Our daughter was very, very light sensitive at the time, and that was the biggest tip-off that she would me a good candidate for the MP. For example, on-coming headlights at night made it almost impossible for her to drive at night, and she was in the habit of wearing sunglasses outdoors because bright daylight bothered her sensitive eyes. Fluorescent lights in stores exhausted her and made her feel ill, too.
Furthermore, she had already been treated with nearly 6 years of antibiotics, including 17 months of IV antibiotics, to little or no avail. She always relapsed within less that a week's time if she tried to stop antibiotics, which is supposedly a sign of Bartonella.
Also, she tested positive for Bartonella, and Bartonella is known to be a granuloma-forming pathogen. We were aware that the MP was designed to treat sarcoidosis, which is a granulomatous disease. Thus, it was logical for us to opt for the MP, and she was one of the very earliest adopters of the MP from the Lyme community.
Furthermore, there weren't any other promising therapies on the horizon at that time, not to mention that the political situation here in Texas was making it impossible for her to continue aggressive antibiotic treatment for Lyme and we didn't want to have to commute out of state to do so, but MP docs in Texas were not being threatened by our state's medical board.
As a result of our positive experiences with the MP, I consider vit D to be harmful -- equivalent to taking cortizone, which makes you feel better quickly on a short term basis only but which causes immunosuppression.
I have read many medical journal articles by the proponents of vit D supplementation, and I can say that none of them are the least bit convincing to me. These quasi research studies are all written using lots of "perhaps" and "maybe's" throughout and are full of conditional and subjunctive verb forms -- ie, nothing more than pseudoscience in my estimation.
Keep in mind that there is a profit motive in all of the hype to sell vit D supplements. My advice regarding vit D is: "Buyer beware."
Posts: 4563 | From TX | Registered: Sep 2002
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posted
A person with high 1,25 D AND high 25 D is more likely to be a person in need of vitamin D restriction. A person with high 1,25D and low 25 D may simply be someone with chronic low vitamin D whose renal 1-alpha hydroxylase enzyme has been up regulated to compensate for the low 25D; the only way to be sure is to try small amounts of supplementation or go out in the sun and see if negative effects occur, but drawing conclusions from untoward reactions is still fraught with pitfalls as an initial untoward response to increasing D level may be a Herx type reaction and a sign that something good is happening...
Commercially produced milk has alot more in it than vitamin D, to draw conclusions about the small amount of vitamin D in it, by improvements experienced by abstaining from it, is faulty reasoning. There are a great many people who feed pathogenic bacteria in thier guts with lactose in milk and have inflammatory imbalances related to this.
Vitamin D has been with us since we were spit out of the primordial soup; there is alot more negative likely to happen from its restriction than from modest supplementation. People who need MP are rarer than people who are vitamin D deficient.
Posts: 442 | From Biddeford, ME | Registered: Nov 2007
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Marnie
Frequent Contributor (5K+ posts)
Member # 773
posted
The latest info. on D3 (which NORMALLY protects us from cancer) is that it can't/isn't working because the
D3 receptor on our macrophages
(think of them as pac men that ultimately gobble up pathogens)
PRECURSOR protein to the macrophage activating protein is robbed of ...essential nutrients.
Backing up...
Normal Gc protein (also called vitamin D binding protein), an abundant glyco-protein found in human blood serum, becomes the
molecular switch to activate macrophages
when it is converted to its active form, called Gc macrophage activating factor (Gc-MAF).
Cancer cells secrete a chemical that
deactivates a protein fundamental to immune system response.
This deactivated protein (Gc protein) cannot be converted to macrophage activating factor (MAF),
meaning the cancer cells have turned off the body's macrophage response.
By incubating human Gc protein (derived from human blood) with some particular enzymes, a glycoprotein macrophage activating factor (GcMAF) is created.
It has now been tested in humans and has shown a 100 percent cure rate over a time period of 4 to 7 years. It has no side effects.
A Japanese doctor claims to have cured HIV and several cancers by reactivating GcMAF.
Posts: 9481 | From Sunshine State | Registered: Mar 2001
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CherylSue
Frequent Contributor (1K+ posts)
Member # 13077
posted
I take 50,000 units of Vit. D3 once a week per my doctor as my level was low. I think it really helps. My level jumped up to 52 which is low normal.
Rianna, I remember your name from several years ago when I was very ill. I don't remember which forum it was, but I hope you have improved as much as I have.
CherylSue
Posts: 1954 | From Illinois | Registered: Aug 2007
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posted
There are way too many variables on the prohormone-secosteroid- vitamin D debate for us to juggle! Here are a few:
- type of D used � is it D2 or D3; - dosage and quality of the D: natural vs. synthetic ; - the host immune�s system�s receptivity: absorption, metabolism, cycle; - diagnostic indicators: ability to accurately confirm D levels, specifically the ratio between D25 and 1,25; which is thought to be diagnostic in terms of the ratio.
My bottom line: D supplementation is risky for many; perhaps this is because people start taking it when they already have advanced degenerative disease(s). So supplements may work to suppressive the immune system � as a bona fide secosteroid.
In case you missed this recent report on D:
Vitamin D No Magic Bullet for Osteoarthritis Vitamin D No Magic Bullet for Osteoarthritis It didn't reduce pain or delay disease progression, researchers found
-------------------- My biofilm film: www.whyamistillsick.com 2004 Mycoplasma Pneumonia 2006 Positive after 2 years of hell 2006-08 Marshall Protocol. Killed many bug species 2009 - Beating candida, doing better Lahey Clinic in Mass: what a racquet! Posts: 830 | From Mass. | Registered: Aug 2006
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quote:Originally posted by Rianna: Flu pandemics are worse during the winter months than the summer months. Indeed it is already being predicted that swine flu will flare up in the Autumn. The reason for this is vitamin D. Vitamin D is the sunshine vitamin and so the more sunshine you can get without actually burning, the better your vitamin D levels. Indeed, a recent paper in the Lancet confirmed that vitamin D is indeed highly protective against viral infection.
ive heard this so many times and i have to wonder why i got a cold after being outside 40 hours the week leading up the the sickness and why do people who live in the tropics still get colds and flu?
-------------------- sick since 9-09 igg, 18,23,41 reactive igm, 41 reactive Posts: 436 | From Kansas City | Registered: Jan 2010
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