posted
Now that the oral antibiotic failed I am on Rosephin 1xday, a blood thinner, probiotics, vitamin D and mylanta. Its only been 6 days and already I am sick as a dog. I'm in SEVERE pain and my doctor doesnt seem to want to help me with it.
In the middle of all this I ended up with 2nd degree burns and the emergency room gave me 15 mg oxicodone and it worked great for the 2 days worth that they gave me. I ran out 2 days ago and have been really hurting ever since. When I took that I could eat, no bathroom 8 x's a day, I was able to hang out with my son and actually make a real dinner. I could function. I told my visiting nurse this when she came the past two days and she said to call my doctor and that its normal for cronic lymes patience ti be treated for chronic pain. When I called he said "it would pass but to come in on wednesday at 11am if it persisted".
I'm real upset about this. I dont know where to go to get the help I need and the pain is so bad that I constantly shake and have sweat running down my back. My legs and arms hurt so bad I just wanted to dig my fingers in to them if that makes any sence.. I guess just to change the sensation of the chronis aching. It's been so long like this .. I just want some relief. Where do I go ?
** edited to remove dosage **
[ 11-15-2010, 02:59 PM: Message edited by: sixgoofykids ]
Posts: 20 | From harwich ma 02645 | Registered: Oct 2010
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You might also go to a pain specialist. I know many here see them. I think the LLMD's are very careful about prescribing pain meds, they already get into trouble for prescribing the abx to treat us.
-------------------- sixgoofykids.blogspot.com Posts: 13449 | From Ohio | Registered: Feb 2007
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Rumigirl
Frequent Contributor (1K+ posts)
Member # 15091
posted
If you were having diarrhea due to the antibiotics, make SURE that your LLMD knows that! You don't want to get C Difficile. Take some saccharomyces boulardi to make sure you don't get it (it's a specific probiotic). And lots of other top notch probiotics, too.
If you're feeling nauseous (the sick as a dog feeling?), you need lots of detox to help with the toxicity of the disease and the die-off. Search here for info on detox: coffee enemas, lemon or lime water, psyllium seeds, clay, etc. This can help with pain, too, esp the coffee enemas.
And lots of magnesium to relax the muscles. Magnesium oil is great. It's not really an oil, just feels like it. Swanson's is cheap and good.
And, yes, if your LLMD can't rx pain meds that do the job, see a pain management doc. Being in that much pain is NOT good (as you know all too well). Hang in there, and get the help you need.
Posts: 3771 | From around | Registered: Mar 2008
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momlyme
Frequent Contributor (1K+ posts)
Member # 27775
posted
Hi Coley,
I am sorry you are dealing with this much pain and I wish I could tell you that something has helped my son. Not yet. I am going to try the Mag Oil that Rumi suggested. Another natural thing I have heard helps with pain is Tumeric aka. Curcuma - I plan to ask my LLMD about these.
Sometimes the pain killers are the only way to function. It took my 5 months of asking to get one script for a pain killer. My son got so bad on day 6 of rocephin... I begged for something. ANYTHING to give him relief.
Do you have a pain clinic?
I just pulled up my research file on pain... it's quite long and I don't want to paste the whole thing below. PM me if you want me to send it privately... there are references to the authors of the posts if I remembered to include them so you can follow up and research how people are doing with what they suggest.
Mainly, the issue and the reason there are so many things to choose from is... everybody is different! The same thing does not relieve pain for everyone. You need to experiment until you find what works.
I am still looking for soemthing for my son... never quit. You will find what works for your body!
You are in our prayers.
-------------------- May health be with you!
Toxic mold was suppressing our immune systems, causing extreme pain, brain fog and magnifying symptoms. Four days after moving out, the healing began. Posts: 2007 | From NY/VT Border | Registered: Aug 2010
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littlebit27
Frequent Contributor (1K+ posts)
Member # 24477
posted
I've been there. Many LLMDs won't prescribe pain meds and refer you to a pain clinic or tell you to ask your primary care doc.
Well I'm in a place where the ticks are friendly and they don't transmit Lyme Disease so no pain clinic would believe me and my primary care doc thinks it's all in my head and I need a shrink for that and thinks I'm a drug addict.
I have sense been able to get a script for pain killers and it saves my life. without it I woudln't be treating because I wouldn't be able to function and I have no choice BUT to function.
I hope your doc will help you out.
On a side note-herbs- Sasaprilla works wonders if it doesn't upset your stomach-it did mine. cat's clas the NON TOA free in capsules has been amazing for me for inflammation-prior to cats claw I would wake up in the morning unable to move my hands because they are so swollen. The still swell but not nearly as bad.
Also Curamin, I'm told works wonders, I bought it and it didn't help me but I have heard many people say it was a life saver for them. Everyone is different it might work for you. Good Luck to you, I know exactly how you are feeling.
Tammy N.
Frequent Contributor (1K+ posts)
Member # 26835
posted
I think I would try to exhaust all natural remedies first -- epsom salts baths, turmeric, magnesium, etc. (and ask doc for more recommendations.)
Pain pills are so toxic to our bodies and especially our liver. Your body is going through so much all ready with antibiotics and die-off from the bugs.
Also, as hard as it can be, on my really rough days I try to go outside for a vigorous walk (30+ minutes). Even when I don't think I can, I just psych myself up and just do it. Usually half-way through my legs start itching like CRAZY. But it really helps!!! Followed by a bath, and it's an amazing turnaround. Truly. (Plus there is something victorious about accomplishing it. Very gratifying.)
Best to you, Tammy
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