Topic: its lipitor...OMG...why didn't i connect the dots?
lpkayak
Honored Contributor (10K+ posts)
Member # 5230
posted
pigwit has been warning me
you guys warned me back in march (old post)
i have been on lipitor - only 10mg-they prescribed 80...for 9 months. this knee problem happened at about 6 months. 3 months later no answers and mri and catscan scheduled.
i googled "lipitor muscles side effect research" and found so much.
even someone like me who can have no pain...sit for 5 min and have "equal to after rehab " pain
and someone who like me can go to bed at night with no pain and hurt lying there and hardly be able to walk to bathroom a few hours later
i'm stopping lipitor and upping coq10 tonight...
that helped some...but some don't get better . the damage is permanent.
TELL YOUR LIPITOR FRIENDS TO GOOGLE AND CHECK IT OUT
the pain felt in knees and hips really is not a bone thing it is a muscle thing so i don't think it matters that my knees are artificial
an answer ...finally.
-------------------- Lyme? Its complicated. Educate yourself. Posts: 13712 | From new england | Registered: Feb 2004
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Carol in PA
Frequent Contributor (5K+ posts)
Member # 5338
posted
That's horrible! I do hope the damage is not permanent in your case!!
You did a great job figuring this out because I don't think I would have!!
Lipitor and other statins really suck. My mom's doctor (many years ago) tried to put her on it saying it would protect her heart.
She took it for a few days and had many side effects. (I can't remember what they were now, but she was complaining.) I was in charge of her care and I told the dr I didn't want her taking it.
He said, "Well, if it were MY mom I would have her on it." And I said well, I DON'T.
The kicker? She had LOW cholesterol .. like 100!!
If you are taking it for cholesterol.. switch to Vitamin E and fish oil. Both will help with inflammation too!
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
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lpkayak
Honored Contributor (10K+ posts)
Member # 5230
posted
yeah lyme too...i have taken the fish oil forever and added vit e from your advic e a year ago and it made a difference
i was still about 220---never over 280-but overweight - and some chest pain(not bad-lyme i'm sure)so cardiac guy wanted me on 80mg-even tho stress echo and all kinds of heart tests were neg
i refused for 3 years...then primary freaked out and begged me to take some...i DO like her (and she likes me)but i swear they brainwash these docs...shes not stupid and when i send her this info i am sure she will pay attention to it
anyway...i was on it 6 months and took coq10 (but not enough) and no problems i could tell
then 3-4 months ago all this leg pain stuff and knee noise started. it never occurred to me it was the lipitor. but time and tests show nothing and two docs can't figure it out...and now i find this info on lipitor...my exact sx...how oftern does something get worse at night...so bad you need a walker in the morning but 1/2 hour later almost no pain as long as you don't stop walking...well i'm not 100%...i feel crampy, achy in leg-but not the huge "after rehab-having a baby pain" i feel every time i stand up
anyway...i to hope the damage is not permanent...
i didn't take the lipitor last night and getting up this morning was a little less painful i think...i hope...we'll see
-------------------- Lyme? Its complicated. Educate yourself. Posts: 13712 | From new england | Registered: Feb 2004
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randibear
Honored Contributor (10K+ posts)
Member # 11290
posted
it's called rhabdymylosis and yep all statins can cause this.
my doc just put me on 20 mg of zocor and i'm going to watch things like a hawk.
my husband is on 40 mg of lipitor and he's complaining about his feet hurting. hmm...
can it effect the feet first?
anyway go to askapatient.com and enter the drugs you are taking. you'll be amazed at what people have suffered.
-------------------- do not look back when the only course is forward Posts: 12262 | From texas | Registered: Mar 2007
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posted
Get infections under control -> lower cholesterol.
LDL, or "bad" cholesterol protects your body against infection.
I would guess many, if not most with chronic Lyme, have elevated LDL with low HDL. Don't mess with it.
Posts: 967 | From A deserted island without internet access | Registered: Sep 2009
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Pinelady
Frequent Contributor (5K+ posts)
Member # 18524
posted
They put all these out there to make money and later tell you they can kill you...
More than half of all pregnant women suffer from gastroesophageal reflux (GERD), which is commonly referred to as acid reflux or heartburn. The most popular medications to treat reflux or heartburn are known as proton pump inhibit...ors or PPI medications.
A recent study has linked the use of these medications in pregnant women
with a doubling of the risk of cardiac birth defects in newborns.
-------------------- Suspected Lyme 07 Test neg One band migrating in IgG region unable to identify.Igenex Jan.09IFA titer 1:40 IND IgM neg pos 31 +++ 34 IND 39 IND 41 IND 83-93 + DX:Neuroborreliosis Posts: 5850 | From Kentucky | Registered: Dec 2008
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posted
You could try red yeast rice, but Lipitor is made from it!!!! My husband takes it with no ill effects, however.
It's probably OK since it's not full of chemicals! It's the real deal.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
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sutherngrl
Frequent Contributor (1K+ posts)
Member # 16270
posted
Get tested. There are several test they can do to determine if there is permanent muscle damage.
I had the same reaction to a psych drug, but stopped it within a week or two of developing mucle pain. My test came back showing no damage thank goodness.
You also need to flush your kidneys, because kidney damage goes along with the muscle damage.
Posts: 4035 | From Mississippi | Registered: Jul 2008
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- Liver stress can cause high cholesterol. -
Posts: 48021 | From Tree House | Registered: Jul 2007
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sutherngrl
Frequent Contributor (1K+ posts)
Member # 16270
posted
Rhabdomyolisis usually effects the lower extremeties. It doesn't have to be, but thats the most common place to have pain from it.
Posts: 4035 | From Mississippi | Registered: Jul 2008
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posted
Cardiac stuff/overweight very scary, they scare patients into taking medicine that is dangerous for them. You can control those symptoms with diet, see Dr. Caldwell Esselstyn's book Prevent and Reverse Heart Disease My mom did this (in her 70's) she got off the Lipitor and lost some weight, her cholesterol levels are now in the normal range. She did have leg pains from the Lipitor but has recovered.
I am more worried about people who don't have the leg pains, but get muscle wasting over time. My dad is in this category--he doesn't recognize a problem and continues taking statins. He's at very high risk of falling due to muscle weakness.
My husband and I follow Dr. Esselstyn's program and we both have excellent (low) cholesterol numbers as a result.
Posts: 261 | From Nebraska | Registered: Jan 2010
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posted
would not put my dog on a Statin. Cholesterol is not our enemy. Cholesterol goes up to fight inflamation. Take care of the inflamation and the cholesterol will take care of itself. Docs are educated by drug reps. Drug reps only make money when they sell drugs. They goal of the drug companies is NOT to make you better or they would put themselves out of business. Think about that for a while. That's one of the reasons that they don't want to cure Lyme in the early stages with the cheap doxy! They can get years of expensive meds from us if they let us get real sick. Sorry I sound so synical but i work with doctors and see how they are brainwashed and never really think through what they are doing.
Posts: 21 | From Honey Brook | Registered: Aug 2010
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