posted
Has anyone else out there opted to give up on Long Term Antibiotics because of severe side effects, and if so, what do you do now?
Posts: 59 | From NH, USA | Registered: Oct 2004
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feelfit
Frequent Contributor (1K+ posts)
Member # 12770
posted
I've just completed year three of abx and am considering alternatives. Perhaps Buhners protocol. Maybe a good detox program like the Hansa Center or Envita.
There are also some new herbal formulas by Brian White that you may want to look into....
Rife?
I have absolutely no experience with any of these methods. You are your best teacher, these are suggestions, please read up on these suggestions and make an informed decision.
If what you're doing is making you feel worse, and i see that you've been a member since 2004, perhaps a new approach is the way to go.
good luck Queenie!
Posts: 3975 | From usa | Registered: Aug 2007
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lymie_in_md
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posted
I couldn't do any ABX due to severe problems with doing them. I've gotten well with alternatives over time. Alternatives have to be thoroughly researched. I got well without ABX and drugs, solely on alternatives and it can be done. It requires a completely different commitment, specifically taking all responsibility for your health.
By taking responsibility for your health you have to rework all thinking of what society and the medical community would say works or doesn't work. I've certainly had to relearn the value of homeopathics, herbals, diet, fresh air, water, and how energy in the body can be increased. I've relearned how to support the organs in the body which to major functions and how better to support them.
The best start on getting well is understanding the idea of energy medicine. Which is advancing all the time. But, some of these alternatives can help or hurt depending on how they are applied. So you really have to build on your on intuition and trusting more on your inner voice. I use a biotensor to help better get in touch with that inner voice and to increase the power of intuition. Without intuition and listening to your inner self, your just guessing consciously.
Best of luck Queenie -- hope you find the health you want.
-------------------- Bob Posts: 2150 | From Maryland | Registered: Dec 2007
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Could you give us some ideas on how to start learning about energy medicine. Also, could you recommend a biotensor for us?
A few weeks ago a woman said that she was having some success with Gerson therapy.
Good luck
Sheryl
Posts: 258 | From Spokane, WA | Registered: Oct 2008
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seekhelp
Frequent Contributor (5K+ posts)
Member # 15067
posted
I am close to calling it a day with antibiotics. They do not seem to be the answer for me, but I'll continue to pursue anti-malarial treatment for Babesia. I'm going to try the Byron White herbals too. I hope LLMDs are recommending them because they work and not just because they're money makers @ $80+ a bottle. Posts: 7545 | From The 5th Dimension - The Twilight Zone | Registered: Mar 2008
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randibear
Honored Contributor (10K+ posts)
Member # 11290
posted
who's brian white?
-------------------- do not look back when the only course is forward Posts: 12262 | From texas | Registered: Mar 2007
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lululymemom
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Member # 26405
posted
Here is a link to Byron White's products and data page:
Bartonella henselae 1:100 Posts: 2027 | From British Columbia | Registered: Jun 2010
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lululymemom
Frequent Contributor (1K+ posts)
Member # 26405
posted
Someone on here mentioned Bab-1 as a treatment for babesia. I spoke with the owner of that facility and she gave me the ingredients for that one as well as Bart-1. I'm finding that those ingredients would work better for someone who has heart involvement.
Can you PM me the information you found out about the ingredients in both those formulas?
I was going to shell over that money for those and I am sure they maybe obtained cheaper if it is just the ingredients.
Posts: 476 | From Columbus, Ohio | Registered: Aug 2007
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- A key point for anyone looking at all the options: Infection still must be specifically addressed - by very specific methods at the right dose (or combination) and the right amount of time.
All the support supplements and support methods in the world are not enough if they do not precisely address the specific infections. That is why whatever you do, it's best to consult an ILADS-educated doctor. Some choices here: ------------------
Topic: How to find an ILADS-educated LL ND (naturopathic doctor), L.Ac. (acupuncturist), etc.
Includes how to find an ILADS-educated LL ND, an Acupuncturist, a doctor of Oriental Medicine (O.M.D.), or a doctor of Ayurvedic Medicine (D.Ay.), doctor of Osteopathy or Chiropractic, certified herbalists or nutritionists, etc.
Includes many articles and books on complementary / integrative methods - & RIFE links.
BODY WORK links are also included.
Links may not take you directly to a professional but there are research formulas and hints for how to find LL professionals. -
Posts: 48021 | From Tree House | Registered: Jul 2007
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quote:Originally posted by Queenie Pie: [QB] Has anyone else out there opted to give up on Long Term Antibiotics because of severe side effects, and if so, what do you do now?
Could you tell us the side effects??
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
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nefferdun
Frequent Contributor (1K+ posts)
Member # 20157
posted
When I thought I was having side effects it was sometimes (but not always) another infection emerging. For instance, when I was getting headaches and dizzy, I thought it was the abx but it was babesia taking over.
Twice I have gotten to a place where I had to quit to detox and recover from the damage done by the abx. Recently it was a very bad yeast infection that I needed to get under control. Now I am going back on abx. I just hate it but it is better than the alternative which for me is mental/emotional/physical chaos.
I hope you find something that works for you.
-------------------- old joke: idiopathic means the patient is pathological and the the doctor is an idiot Posts: 4676 | From western Montana | Registered: Apr 2009
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lyme in Putnam
Frequent Contributor (1K+ posts)
Member # 11561
posted
I was doing antibiotics since 2002, iv and oral, had bouts of reemission, thank god, but afterv8 mos of iv mentally couldn't do it anymore. Mental mess, more than physical. Doing herbals now, not much success, just started in sept. Gotta give it a chance, what choice do we have. Have to find something to work. Feel good.
-------------------- He took u to it, He'll you through Posts: 2837 | From NE. | Registered: Apr 2007
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quote:Originally posted by nefferdun: [QB] When I thought I was having side effects it was sometimes (but not always) another infection emerging. For instance, when I was getting headaches and dizzy, I thought it was the abx but it was babesia taking over.
Twice I have gotten to a place where I had to quit to detox and recover from the damage done by the abx. Recently it was a very bad yeast infection that I needed to get under control.
EXACTLY why I asked.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- Also to consider:
Side-effects, or a herx, or whatever - can often be managed with dosage or timing changes and support supplements, too. Many LL NDs also use antibiotics, just so you know. It's the wise use of support supplements that often makes a huge difference in how well any protocol can be tolerated.
All that said, I cannot tolerate abx due to effects on my ears - and some other rashes from a doxy allergy that developed over time. There is always another way if one way does not work. But, none of this is easy and too many think just supporting the body will work. It it important but it will not work, alone.
You might also explore a RIFE machine That has helped many. Links in my post above. -
Posts: 48021 | From Tree House | Registered: Jul 2007
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- I keep forget about HEAVY METALS, partly because I'm too brain fogged to figure it all out for myself.
So, please search out posts by GiGi and by Marnie. They have posted many vital thread here about other things that have to be considered along with attention to infection.
If Heavy Metals and Parasites are considered and addressed, then treatment for lyme can become far easier.
Fruit is the minor problem. It is the toxic metals that people are holding in their body.
The body will create fungi in order to survive.
The mercury and neurotoxins otherwise would kill it. Complex carbohydrates are important. I ate all the fruit I wanted plus juices and never had a fungi or candida problem. But I learned to detox metals and chemicals and very successfully following the Allergie Immun therapy. Most people doing this therapy also find that they are allergic to all fungi, mucor, penicillin, etc. All that is taken care of with Allergie Immun. Then you can start freeing your body.
Here are Dr. K's comments on that subject dating back to the mid-90's. Nothing has changed in that regard, except the detox methods have been improved upon. If you retain metal deposits in your body, you will have fungi -- no anti-yeast diet is going to make any appreciable change.
K�s Axiom
Dr. K�s axiom says:
�Most � if not all � chronic infectious diseases are not caused by a failure of the immune system, but are a conscious adaptation of the immune system to an otherwise lethal heavy metal environment.�
That does this mean? It means essentially that because mercury
�suffocates the intracellular respiratory mechanism and can cause cell death [that] the immune system makes a deal; it cultivates fungi and bacteria that can bind large amounts of toxic metals.
The gain: the cells can breath. The cost: the system has to provide nutrition for the microorganisms and has to deal with their metabolic products (�toxins�).
That does not imply that the tolerated guest cannot grow out of control, as it sometimes clearly does. Therefore, there is still a limited place for antifungal / antibacterial treatment � but only for the acute phase of the disease.
A so-called �die-off effect� (the sometimes severe crisis or even lethal reaction a patient can have in the initial stages of aggressive pharmaceutical antifungal or antibacterial treatment) is often nothing else but acute heavy metal toxicity
� metals released from the cell walls of dying microorganisms as suggested by my own correlation of clinical syndromes and urinalysis for metals.�
(, Amalgam/Mercury Detox as a Treatment for Chronic Viral, Bacterial, and Fungal Illnesses, Paper presented at the Sept. 1996 Annual Meeting of the International and American Academy of Clinical Nutrition, San Diego, CA).
Is this axiom correct? Dr. K�s results as well as my own results suggest that this is correct because when patients are put through a thorough mercury detox program, there is always a dramatic improvement in the clinical picture for chronic Candida infections.
Health Restoration Consultants uses a mercury detox program described below. One of the primary ingredients in this detox program is chlorella. Chlorella has powerful mercury chelating actions which are thought to be due to its cell wall. Something in the protein coat of the cracked cell wall binds the mercury.
Pretreatment with chlorella before challenge with DMSA or DMPS (specific mercury chelators) will increase the urinary excretion of mercury anywhere from 300 to 1800 percent.
Many mercury detox patients report improvements in chronic viral illnesses such as Epstein-Barr, and herpes.
Japanese researchers have found that Minamata disease (a mercury disease caused by eating mercury contaminated fish) was far more severe when the patient also had a chronic viral disease.
posted
Do you have a sense of what protocol you will try instead of abx?
I will be slowly weaning my child off abx come spring and are doing Buhner herbs--
may add in something else too, i.e., Byron White, Deseret Biologicals, or Cowden--
but right now taking one addition at a time and watching for improvements and/or setbacks--
Posts: 648 | From northeast | Registered: Feb 2009
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DIET, DIET, DIET is the key. Then, be sure to follow the 5 step plan outlined below. It was developed by my naturopath. It works.
"Successful control and elminiation of a Candida Albicans overgrowth requires a multifaceted program as described below. Failure to follow ALL the steps simultaneously will result in slow progress and will lengthen healing time significantly. The program should be tailored to the individual and must balance the need to eliminate the Candida and deprive it of its food source while insuring proper nutrition for the individual."
Five Steps to Candida Elimination:
1. You must starve it into submission by eliminating its food source.
2. You must kill it with anti-fungal herbs and supplements. [e.g....garlic, onion, caprylic acid, Pau D'Arco capsules or tea, clove, grapefruit seed extract, olive leaf extract, oil of oregano, tea tree oil, Echinacea, Goldenseal, black walnut, MSM, barberry root, uva ursi, neem leaf, biotin]
3. You must reestablish the proper balance and quantity of probiotic bacteria in the digestive tract. [...multi-strain lactobacillus acidophilus and bifidus capsules with FOS should be taken between meals to maximize repopulation of the digestive tract by beneficial bacteria.]
4. You must reestablish proper levels of all B vitamins (yeast free) and utilize other immune enhancing supplements to boost immune system function. [e.g ... B complex vitamins (yeast free), biotin, beta 1-3 glucan, colostrum, maitake mushroom, vitamins A, C, E, zinc and selenium]
5. You must cleanse and heal the digestive tract to promote proper elimination of toxins and Candida and assimilation of nutrients. [e.g...chlorophyll, MSM, omega 3 fatty acids found in flax seed and salmon oils, GLA found in borage, evening primrose and black currant oils. Pantothenic acid, digestive enzymes between meals]
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
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gwb
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Member # 7273
posted
quote:Originally posted by Queenie Pie: Has anyone else out there opted to give up on Long Term Antibiotics because of severe side effects, and if so, what do you do now?
Yes, after five years of off and on abx I had to stop taking them due to the unpleasant side effects and damage they did to my stomach. My stomach is still paying the price for taking abx but I got better on the Jernigan Protocol.
I went on it last January and have continued with a small amount of the remedies and do detoxing regularly and have made much progress since that time. You can look up my thread titled "Hansa Center Update" for more information about the protocol or look it over at the website www.HansaCenter.com.
CherylSue
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Member # 13077
posted
good info
Posts: 1954 | From Illinois | Registered: Aug 2007
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BackinStOlaf
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Member # 23725
posted
How can you address heavy metals if you can't do chelation due to still having amalgams in your mouth? I can't continue with my removal of them because ive been having difficulty breathing for 4 months. So, obviously can't keep my mouth open and steady in a dentist chair.
I am at a loss.
Hopefully the breathing issue is not CAUSED by mercury because otherwise I am going in circles.
-------------------- First Symptom 9/09 Multiple docs, negative Labcorp test LLMD: 1/10 Positive Igenex/CDC test Treatment 2/10 2/10-8/10 Amox, ceftin, zith, flagyl Currently: Bicillin, Minocycline, still dealing with severe breathing issues
Posts: 1121 | From New York, New York | Registered: Dec 2009
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CherylSue
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posted
Does anyone know anything about Deseret Biologicals?
Posts: 1954 | From Illinois | Registered: Aug 2007
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