lyme in Putnam
Frequent Contributor (1K+ posts)
Member # 11561
posted
My llmd doc said lesions Lyme, hospital neurologist said something wrong with machine, unidentifiable bright objects, another said with age, is it just because the diagnosis is vague on the impression. non specific findings which may be seen in settling of small vessel ischemic processes including vasculitis, infectious/inflammatory processes including lyme disease, demyelinating processes including ms or represent migraine or trauma. Have had neither. Said it had several small focal regions of abnormal high signal high intensity localized predominately to the subcortical white matter of the corona radiate and centrum semiovale. In English, doesn't sound like something wrong with the machine. Do others have this in the impression? Do you get these with age? I'm 47. Thanks.
-------------------- He took u to it, He'll you through Posts: 2837 | From NE. | Registered: Apr 2007
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lymeboy
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posted
I have them. The hospital specifically wrote, - "lesions associated with MS or Lyme disease". I don't know if aging will cause lesions, but they are very common with Lyme and I don't know why your doc would make light of it....
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posted
There are several possible causes of lesions. Also, the docs indicated to me that there is no definite relationship between lesion severity and disease severity.
That has certainly been my case - my MRI lesions got no worse in the last 10 years, but my disease has gotten much worse.
I wouldn't count on a machine being incorrect.
Posts: 252 | From NJ USA | Registered: Mar 2004
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posted
Hum, the way I explain the lesions is that it takes lyme AND a co infection to have them, lyme, eats collagen, thus the fatty deposits caused by bart for example, are no longer on the blood vessel lining but out of it...thus a lesion... But your co infection can get much worse, so even if you do not have more lesions, your disease and the way you feel can get worse...Has anybody ever heard of brain lesions caused by bartonella without lyme?...
Posts: 723 | From Montreal | Registered: Oct 2010
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lyme in Putnam
Frequent Contributor (1K+ posts)
Member # 11561
posted
This whole thing confuses me, want to get out of hell like everyone here. Thx.
-------------------- He took u to it, He'll you through Posts: 2837 | From NE. | Registered: Apr 2007
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TF
Frequent Contributor (5K+ posts)
Member # 14183
posted
I had a brain scan before beginning lyme treatment. It showed 2 UBOs (unidentified bright objects). The report said lyme could not be ruled out. Yet, the neurologist who ordered the test yelled at me that I did not have lyme in my brain. "Do you understand that! You do NOT have lyme in your brain!"
So, the fact that the hospital guy was a neurologist explains his reaction. Neurologists will not attribute brain lesions to lyme disease. Nope. (They are in the camp that treats us terrible. They must believe that lyme is rare and is easily cured, just like the infectious disease doctors.)
Anyway, I researched brain lesions and found out that as people age, it is common to have lesions show up. A lesion is any type of abnormality in the brain tissue. It could be serious or very minor.
Even migraine headaches cause lesions to show up in peoples' brains. I have a friend who is not even 40 who had them show up, evidently due to her migraines. (She doesn't have lyme. She is perfectly healthy.) She had quite a few of them.
So, since perfectly healthy people can have lesions, the word "lesion" can mean nothing, really.
It is really the severity of your medical condition that determines how concerned the docs become about lesions showing up in a person of your age.
quote:Originally posted by TF: I have a friend who is not even 40 who had them show up, evidently due to her migraines. (She doesn't have lyme. She is perfectly healthy.) She had quite a few of them.
So, since perfectly healthy people can have lesions, the word "lesion" can mean nothing, really.
Sorry, but I would disagree that a person with migraines is "perfectly healthy". Perfectly healthy people do not have headaches so severe they seek medical treatment for them.
What is causing her migraines? Who is to say it cannot possibly be Lyme?
Just my opinion. When I hear people talk about how disabling their migraines are, I am glad I don't have them, evn tho I've got a gazillion other Lyme symptoms. I once had a rare headache from hell, and it was a b___h.
-------------------- Sick since at least age 6, now 67. Decades of misdiagnosis. Numerous arthritic, neuro, psych, vision, cardiac symptoms. Been treating for 7 years, incl 8 mos on IV. Bart was missed so now treating that. Posts: 765 | From nw ct | Registered: Sep 2008
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TF
Frequent Contributor (5K+ posts)
Member # 14183
posted
Her migraines are a result of seasonal allergies.
Posts: 9931 | From Maryland | Registered: Dec 2007
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steve1906
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Member # 16206
posted
They told me it was MS, then said no its not MS - Then said its age - 57
I said maybe its its a COLD, they didn't that!!!
-------------------- Everything I say is just my opinion! Posts: 3529 | From Massachusetts Boston Area | Registered: Jul 2008
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lymeboy
Unregistered
posted
Putnam, I know exactly how you feel. I am only just now starting to grasp the complexity of this disease. All around, scientifically, socially and politically it is just a big mess. My advice is keep coming to this site. The wealth of knowledge and breadth of experience here is unequaled. I've gotten more help here than in any Dr. office. And they're a pleasant group of folks too...
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lyme in Putnam
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posted
Why can't we just live our lives??????
-------------------- He took u to it, He'll you through Posts: 2837 | From NE. | Registered: Apr 2007
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momlyme
Frequent Contributor (1K+ posts)
Member # 27775
posted
I couldn't have said it better myself. I feel the same way.
Lymeboy said: The wealth of knowledge and breadth of experience here is unequaled. I've gotten more help here than in any Dr. office. And they're a pleasant group of folks too...
-------------------- May health be with you!
Toxic mold was suppressing our immune systems, causing extreme pain, brain fog and magnifying symptoms. Four days after moving out, the healing began. Posts: 2007 | From NY/VT Border | Registered: Aug 2010
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Lauralyme
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posted
I think when healthy people have lesions it is because they've been exposed to lyme but their immune system is keeping it at bay.
-------------------- Fall down seven times, get up eight ~Japanese proverb Posts: 1146 | From west coast | Registered: Mar 2008
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bcb1200
Frequent Contributor (1K+ posts)
Member # 25745
posted
Well..I just found out yesterday I had 2 "Bright spots" on my MRI from back in APril (pre diagnosis.) I also had an abnormal spect (which I knew about.)
I just met with the only LL Neurologist in Mass (who is VERY good) and she will be monitoring my noggin' from this point forward.
-------------------- Bite date ? 2/10 symptoms began 5/10 dx'd, after 3 months numerous test and doctors
IgM Igenex +/CDC + + 23/25, 30, 31, 34, 41, 83/93
Currently on:
Currently at around 95% +/- most days. Posts: 3134 | From Massachusetts | Registered: May 2010
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