posted
Please someone I need to talk to someone with vision problems. Mine are painful orbital movement. Sinus problems and distortion of my vision. Its really scary, I don't know what I would do if I lost my vision...
Thank you,
Kuda
Posts: 158 | From canada | Registered: Jan 2010
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nefferdun
Frequent Contributor (1K+ posts)
Member # 20157
posted
I do not have problems with seeing but my eyes are irritated and for a short time it hurt to move them.
What is extremely helpful is hyaluronic acid. I have used it for three years and it works extremely well. It is even recommended to get rid of floaters and for diabetics to protect their vision. You should also use fish oil.
Take 100mg of HA a day - more at first if you want. It is just collagen that is eaten up by the Bb in eyes, skin and joints.
-------------------- old joke: idiopathic means the patient is pathological and the the doctor is an idiot Posts: 4676 | From western Montana | Registered: Apr 2009
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posted
Stupid question, since I've never heard of it--what is hyaluronic acid? Is it a capsule, an eye drop, what?
As for the vision issues, yeah, I've had the gamut--floaters, painful movement, blurriness, inability to focus, watery eyes, distorted vision, dilated right pupil, seems that I'm rapidly losing what vision I had in my lazy eye...
Yet no eye doctor, including a LL neuro-opthamologist recommended here, can find anything wrong or tell me what to do about the problems--"just hope you get better with treatment."
It's frustrating; it really is.
Posts: 303 | From Pennsylvania | Registered: Jul 2010
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The vision problems are the worst for me too! I always thought I was the only one, but obviously Lyme does weird things to everybody! I, myself have annoying floaters, extreme light sensitivity, dimmed vision (can't see well in the dark! So scary!) hazy and blurred vision (even though I always had 20/20 vision!).
I've been there done that too with going to all different eye specialists--all they said was "Oh you just have dry eye" Yea, ok....!!!
They are just so uneducated when it comes to Lyme eye symptoms!
Just keep hanging in there! That's what I have to keep telling myself!
~Kalynn~
Posts: 18 | From Connecticut | Registered: Nov 2010
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Thank you for the sup recommendation "hyaluronic acid". I will look in to it.
Kalynn,
I agree with you about Eye specialist. The problem I have is I live in Canada and almost every doctor thinks you're nuts if you even whisper Lyme disease.
My LLMD in Seattle is now going to put me on IV Rocephin. Little nervous about it but I will give it a try!
Shahbah,
I was already treated for Bart for 9 months, my LLMD thinks its all gone...
Thanks everyone,
Kuda
Posts: 158 | From canada | Registered: Jan 2010
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posted
I had the vision problems you mentioned, and I was able to fix them by drinking mangosteen juice, an anti-inflammatory antioxidant juice.
There are lots of brands in healthfood stores and online. I drink the Ultra one from Trace Minerals, with 72 minerals added. If you try it, go slowly and drink water also, as it can be powerful.
Posts: 13116 | From San Francisco | Registered: May 2006
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momlyme
Frequent Contributor (1K+ posts)
Member # 27775
posted
Robin, I am surprised that mangosteen juice made that much of an improvement... my son has been drinking 4oz a day, twice a day for a couple of months with no noticeable improvement.
A friend sent us Xango. It's supposed to be the best... Then again, aren't they all!
As I come to the end of our supply, I am considering not buying any more??? I am wondering if he will notice a difference?
I certainly don't expect our friend to send us another case for free! Although that would be nice.
I was considering trying something different for inflammation. I do believe if we could relieve the inflammation, we would relieve a lot of his symptoms... especially in the brain.
So... to buy or not to buy. That is the question. 1/2 a bottle of Xango left. 3 1/2 bottles, down the hatch. I am not sure but I think a case of that goes for around $110.
Robin- Let me know if the brand you get is less expensive. If it works for you, I know that it is potent.
I think I will bring the xango to the ND on Tuesday and let her do a muscle testing on it. One less thing to think about.
-------------------- May health be with you!
Toxic mold was suppressing our immune systems, causing extreme pain, brain fog and magnifying symptoms. Four days after moving out, the healing began. Posts: 2007 | From NY/VT Border | Registered: Aug 2010
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canefan17
Frequent Contributor (5K+ posts)
Member # 22149
posted
BARTONELLA!!!
Posts: 5394 | From Houston, Tx | Registered: Aug 2009
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Carol in PA
Frequent Contributor (5K+ posts)
Member # 5338
posted
quote:Originally posted by momlyme: mangosteen juice...my son has been drinking 4oz a day,
I was considering trying something different for inflammation.
Robin- Let me know if the brand you get is less expensive. If it works for you, I know that it is potent.
posted
Momlyme - I get the Ultra mangosteen for just under $17/bottle at vitacost. I see that Carol posted the website - this version has 72 minerals added to it as well.
What can I say? We're all different when it comes to what works for us. Since the juice is an anti-inflammatory antioxidant, that's the kind of action we're looking for, so another idea would be to research what supplements also accomplish that and try experimenting.
Posts: 13116 | From San Francisco | Registered: May 2006
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posted
I ended up at an optical neurologist who said optical issues are very common in Lyme and MS. My orbital pain went away in about a month, and my vision issue in the one problematic eye has resolved about 75% over the last year. Feel free to PM me.
Posts: 252 | From NJ USA | Registered: Mar 2004
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posted
I've had vision problems for years. Finally went to a LL opthalmogist in NY State who had Lyme herself (she said it took her 10 years to get rid of it). Turns out I did have dry-eye (do not underestimate the vision problems this itself can cause),
as well as conjunctiveitis caused by borrelia colonizing the surface of my eyeball and inside my eyelid. Rx was antibiotic eyedrops, and herxing of the eyeballs is not for sissies: stabbing pains in the eyeballs each time I used zith eyedrops.
So....even tho my body was saturated with antibiotics, the wily spirochetes had managed to escape to the surface of the eyeball where they can evade systemic abx treatment.
I do believe there is more going on than dry eye and conjunctiveitis, however. Even tho opthal. says my optic nerve is OK, when I'm having a bad general herx, no amount of eyedrops will stop the blurry vision I get.
-------------------- Sick since at least age 6, now 67. Decades of misdiagnosis. Numerous arthritic, neuro, psych, vision, cardiac symptoms. Been treating for 7 years, incl 8 mos on IV. Bart was missed so now treating that. Posts: 765 | From nw ct | Registered: Sep 2008
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momlyme
Frequent Contributor (1K+ posts)
Member # 27775
posted
Carol- I had no idea you could take mangosteen capsules... that's a possibility. & glad to hear the Ultra is available at vitacost... I will do another order with them fairly soon.
Systemic enzymes is a new term for me... what are you referring to when you say Systemic enzymes?
I did a google search on the term... care to share which product you are referring to? From the reading I have done so far - this looks promising for inflammation.
Robin- yes, every body is different. I don't doubt that mangosteen is an anti-inflammatory... just that 4 bottles did nothing, I am ready to try something else. Like you said, start experimenting.
Maybe when he is more under control we will add mangosteen back in and try the Ultra. It looks like a great product - and it helps to know that it is working for you.
paulieinct- incredible. spirocetes in your eye? And zith drops on your eyeball. I am amazed... although I have suspected this. My son has 'floaters' and I have suspected these were spirocetes.
-------------------- May health be with you!
Toxic mold was suppressing our immune systems, causing extreme pain, brain fog and magnifying symptoms. Four days after moving out, the healing began. Posts: 2007 | From NY/VT Border | Registered: Aug 2010
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bcb1200
Frequent Contributor (1K+ posts)
Member # 25745
posted
I just saw a LL Opthamologist yesterday in Boston to get a baseline taken of my eyes. He said there is a direct correlation to the size of one of the nerves in the eye (forgot the name) and brain / neuro issues.
Good news is, my nerve is "normal" although I'm still showing a bit of inflammation in my macula.
-------------------- Bite date ? 2/10 symptoms began 5/10 dx'd, after 3 months numerous test and doctors
IgM Igenex +/CDC + + 23/25, 30, 31, 34, 41, 83/93
Currently on:
Currently at around 95% +/- most days. Posts: 3134 | From Massachusetts | Registered: May 2010
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