posted
I also think it's great that 3030's symptom free. I asked questions because I too have considered stopping antibiotics. I don't want to compare apples to oranges though, so I asked questions to understand how my case related to this one.
I'm sorry if you felt like you needed to defend yourself!
-------------------- Lyme, Bart, possible Babs Currently on IV Doxy, Bactrim, Zithromax, Nystatin, Mepron Been on nearly every antibiotic since 10/09
posted
Thank you for bringing a perspective to lyme treatment 3030.
it is your experience the best you now know. That is all anyone brings here best I can see.
It is quite possible that overtreatment could occur perhaps from a milder acute lyme. Not every bite delivers the same load.
Yours was explicitly acute by your description.
As for newbies, I would also hate to see a newbie choose unwisely.
However, I am not new to lyme but going on 4 months here and over and over and over again I hear the urgings to learn, self advocate and learn some more.
So many disclaimers are made in most posts that what works for one may not work for another.
I could read that in the first day. It hammers home. of necessity.
I find people sharing their own experiences and often...very often...very disparate experiences and treatment types.
No matter what thread you are on you have to pick and choose and evaluate.
Anyone could jump into nearly any thread on Med Questions and hear symptoms experiences and treatments that function quite differently for them than you.
I get that there is risk to stopping any treatment. There is risk to lyme & co and risk to all treatments.
for someone with acute lyme where is the line of stopping acute treatment? It is somewhere. With acute lyme you don't treat ad infinitum.
There is risk because there is no test to test for lyme itself and inadequate research to provide some quantifying factors to large numbers of people.
Even then, even then, there will still be variables between persons for too many factors to possibly list.
I agree you have responded well to remarks.
I will file in my mind this possibility. I learn from most anyone's experiences that I spend much time reading about.
To date I am not overtreated on dual high dosae abx, and my "proof" is I am getting better. I have been wrongly and undertreated over years, especially for bartonella.
Furthermore, abx as esential as it is is not the only factor that contributes to our recovery.
Unless we refuse to believe the stories of folks in here who share getting better with herbs, intense exercise, rife and so on.
So 3030 experience is one to learn on and from the responses as well
When I say learn I do not mean take it all as gospel for you. I mean use your discernemtn within what you know for you or file it for future.
From what I can tell that is the standard here. A place to share experiences strength, information, and hope.
The responsbility is ours.
-------------------- Not everything in life that can be counted counts and not every thing that counts can be counted...Albert Einstein Posts: 208 | From Northeast | Registered: Aug 2010
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quote:Originally posted by BHealthyNow: I also think it's great that 3030's symptom free. I asked questions because I too have considered stopping antibiotics. I don't want to compare apples to oranges though, so I asked questions to understand how my case related to this one.
I'm sorry if you felt like you needed to defend yourself!
The important thing (i think) is to monitor your health. If you get worse, you need to take appropriate action.
Even my LLMD said i was not an "especially time critical case"
Of course time is very important, but he told me of patients with rapidly deteriorating health, losing motor function, vision etc.
My case was very stubborn, but wasn't improving, or getting worse.
That said, i was still very careful to make sure there wasn't a downward trend off the meds. If there had been, or if it happens in the future, i will asses accordingly.
Posts: 339 | From Outer Space | Registered: Aug 2009
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CherylSue
Frequent Contributor (1K+ posts)
Member # 13077
posted
Thanks for sharing 3030, and I agree ABX can be toxic. I was given Levaquin and Cipro early in my illness before I was diagnosed, and it fried my brain for a year. I was practically a vegetable. Now, I know it probably was too high a pathogen load, and the die off created more problems.
7 1/2 years later I was diagnosed with Lyme, and started various abx very slowly. Many of them made me sicker, but doxyclyine actually made me feel a bit better after 10 days. Ceftin later worked even better. I'm still on abx 3 years later, but I work full time, and like to remain that way until I retire.
I think you make a valid point, and that not all Lyme experiences are the same.Everyone has a different pathogen "soup". It sounds like your rounds of abx killed off whatever was ailing you, and your immune system took over.
Congratulations! I hope you enjoy a long remission, but if symptoms do come back, try a less vigorous regimen of abx. It sounds like it was overkill in your instance.
IMO, CherylSue
Posts: 1954 | From Illinois | Registered: Aug 2007
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quote:Originally posted by Al: I was symptom free until the Placebos stooped working, now I'm sick again.
If that's really true, you should maybe consider a mental health evaluation. Never under estimate the power of depression and anxiety to cause very real physical symptoms.
Posts: 339 | From Outer Space | Registered: Aug 2009
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TerryK
Frequent Contributor (5K+ posts)
Member # 8552
posted
Posting this so that when this thread is found in the archives, others can consider 3030's experience.
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