posted
I think I just figured out why I've had Lyme or a related co-infection for over 10 years for sure.
My first symptom ever was hives that appeared on my forearm. This progressively turned into Chronic Urticaria from sunlight exposure and exercise within a month or so.
I complain about how I wake up in marks from my mattress, leaving lines imprinted deep in my skin, even if I was only laying for a short period of time. And, flushing around the knuckles, redness, and skin that is easily broken open.
My LLMD mentioned these reactions are Histamine related.
Plaquenil, Wobenzym, Saw Palmetto, all caused my skin to break open easily -- Histamine.
I had a reaction to Zyrtec, it caused me to break out in hives all over my body. Doctors said, "you can't be allergic to histamine." They thought I was crazy...but it happened again with Allergra and Benadryl..
Any supplement for thyroid or adrenal is not well tolerated, and causes the same or similar reactions. There must be a connection somewhere.
I need advice here. I don't know where to begin to test or treat this problem. And, I'm now scared to death about trying another medication that plays with my histamine. That just seems like I'm playing with fire, but I'm positive this plays a huge role in my illness.
Anyone have any information for me, anything at all, please respond...
Thanks..
Posts: 829 | From MD | Registered: Dec 2009
| IP: Logged |
posted
I was having allergic reactions to virtually everything a few years back, too - even water. Though these infections are most certainly involved, the part that took me a while to figure out was...
Any chance you live close to a cell phone tower? Google Antenna Search.
-------------------- Urge Congress on EMF Safety, FCC Must Change Exposure Guidelines for Microwave Radiation Exposure: http://tinyurl.com/2cjq54y Halt Universal Broadband, A Public Health Hazard: http://tinyurl.com/3x7xrmq Posts: 495 | From USA | Registered: Mar 2010
| IP: Logged |
posted
"you can't be allergic to histamine." <-- you probably mean they said "you can't be allergic to anti-histamines" histamine is the chemical your body releases during allergic reactions.
You sounds like me and I don't know what to do either. I started antibiotics and really soon after my face started to swell in an allergic manner. After that every antibiotic I took caused the same reaction even to a tiny dot of the pill rubbed off the inside of a tablet.
We tried a desentization to the rocephin which did not work. I continued the rocephin anyway for about 3 months while suffering through allergic reactions all the time. It was horrible, but I was doing so much better if I ignored the reactions. Eventually I had to stop because the reactions got to strong.
In the period after that I started to get allergic reactions with face swelling to all medication including to antihistamines. I can not take anything presciption or herbal without triggering this reaction. I don't know what to do either. I also now get triggered by certain enviroments such as stores or the of smell cigarette smoke. Oddly I don't seem to be triggered by any foods despite having been triggered by anxiety meds, antibiotics, pain meds, anti-histamines, Japanese Knotweed and others. How is my body smart enough to distiguish between foods and meds/herbs!
Posts: 526 | From NJ | Registered: May 2007
| IP: Logged |
rad, that's what I meant... "allergic to anti-histamines"
You know how they tried to prove me wrong? They pricked me with histamine to see if I would produce a reaction -- and I did; which is supposed to be normal.
But, that didn't explain why I was breaking out to anti-histamines. And, it took years for that to stop.
Here's the kicker, rad... I was just a teenager when this started happening and really self-conscious about breaking out in hives everyday. I got drunk one night and noticed that they vanished after two drinks! Gone...
I spent most of my late teens in a drunk haze to cover up the hives. Stupid, maybe, but it worked and no one else was helping me at the time.
I did a search on Google about how a girl would smoke a cigarette to make her itching and stuff go away.
But, more importantly, if I'm going to treat the rest of the way, I have to figure out where the reaction is being created; or what's wrong where.
So, this is where I'm stumped. Because, I feel like some drug I try to treat myself with is gonna end up killing me.
Posts: 829 | From MD | Registered: Dec 2009
| IP: Logged |
glm1111
Frequent Contributor (5K+ posts)
Member # 16556
posted
Allergies can be very indicative of parasites. They can play a MAJOR role in Lyme disease. Google parasite symptoms and do a search on here.
Gael
-------------------- PARASITES/WORMS ARE NOW RECOGNIZED AS THE NUMBER 1 CO-INFECTION IN LYME DISEASE BY ILADS* Posts: 6418 | From philadelphia pa | Registered: Jul 2008
| IP: Logged |
posted
I've done treatment for parasites, and it did Nil in my case. But, because of what happened with Plaquenil, we're moving toward the idea of Babesia. I dunno...
Rad, I read that story years ago when I doing a search. There really isn't much on the net about this, but I found this googling, "Lyme disease histamine.":
A website about histamine intolerance. I havent had a chance to really read through this yet, but it mentions Lyme as causing histamine problems.
Posts: 829 | From MD | Registered: Dec 2009
| IP: Logged |
This list is a CARBON COPY of my Mold Elimination diet. And, I have definitely felt better since I stopped eating all those foods.
I haven't drank alcohol since Dec of 09, because of all of this, and I felt like it was causing more problems with my sinuses and throat anyways.
So, alcohol WAS helping me when I had the hives, but I don't get the hives anymore, and now alcohol is my enemy.
Posts: 829 | From MD | Registered: Dec 2009
| IP: Logged |
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/
UBBFriend: Email this page to someone!
Printer-friendly view of this topic