posted
Hello, I hope everyone is having a good day!
I am new to the site. I have been looking around and noticed my symptoms differ from the majority of the people on here. I have noticed people complaining of "air hunger" but it doesn't seem to be a BIG issue for most people.
My first and worse symptom is difficulty breathing. I feel like I don't have enough air but nothing I do satisfies this feeling. Was this anyone else's first symptom? I also have severe lung pain & burning.
I have been sick since January, doctors have ran a battery of tests & can't figure anything out. I stumbled across this site & asked doctor to test for Lyme. He did and band 41 came back positive but he doesn't seem very convinced that it is Lyme. (however he is an allergist & I live in the west)
I will list my major symptoms below. Please let me know if you have similar symptoms or if you feel Lyme is causing all of this.
- Shortness of breath (struggling to get air in, pretty much 24/7) - Severe Lung pain, burning, & stabbing sensation - Headaches - Unproductive cough (was diagnosed with Pertussis in 04/10, cough went away for about a week, but came back and has been on and off since) - dilated pupils - fatigue - dizziness followed by spots then blacking out, have only actually hit the ground once...(I never actually fully pass out) - knee pain - wrist pain (worse with cold weather) - cough medicine breath - smells like alcohol - sudden onset of a myraid of food allergies/sensitivies
I am currently on 100mg Doxy bid. I was diagnosed with mycoplasma pneumonia in April of 2010
Thanks in advanced for any comments!! Posts: 8 | From Arizona | Registered: Dec 2010
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sixgoofykids
Honored Contributor (10K+ posts)
Member # 11141
posted
Yes. One of the first tests I had was for asthma. They told me I was *only* hyperventilating like it wasn't a problem.
Most Lyme tests are inaccurate. I'd get an IGeneX Western Blot. I'd also find someone willing to treat Lyme. I ended up getting so bad that I was bedridden and had a list of about 50 symptoms, so it's good you're getting on this earlier than I did.
That dosage of doxy is half of Lyme doctors recommend. See www.ilads.org for diagnostic and treatment guidelines.
-------------------- sixgoofykids.blogspot.com Posts: 13449 | From Ohio | Registered: Feb 2007
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posted
Sixgoofykids, Thank you for the help. I'm sorry to hear about your struggles. I am currently in the process of finding an LLMD.
Did you have any co-infections? If so, was the breathing issues from the co-infections or from lyme?
Posts: 8 | From Arizona | Registered: Dec 2010
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Hambone
Frequent Contributor (1K+ posts)
Member # 29535
posted
My initial Lyme test only had band 41 that was reactive, so my doctor didn't think I had Lyme either.
But on the IGeneX test, band 41 was reactive along with 31,34 and 58.
31 and 34 are excluded on a regular old western blot because the CDC won't allow those to be tested. From what I understand, those bands are highly specific for Lyme.
I fell through the cracks and lost more time that could've been spent treating it.
The regular western blot is like getting a half of a colonoscopy. It doesn't look at the whole picture.
BTW, I had air hunger before, but it was because I was severely iron deficient.
Posts: 1142 | From South | Registered: Dec 2010
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posted
Hambone, thank you for the information. I did notice that 31 and 34 were not on my western blot. I'm sorry to hear about your prolonged suffering. I hope things begin to turn around for you!!
Posts: 8 | From Arizona | Registered: Dec 2010
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sixgoofykids
Honored Contributor (10K+ posts)
Member # 11141
posted
quote:Originally posted by libi824: Sixgoofykids, Thank you for the help. I'm sorry to hear about your struggles. I am currently in the process of finding an LLMD.
Did you have any co-infections? If so, was the breathing issues from the co-infections or from lyme?
Yes, the breathing problems are from babesia.
I got treatment, and am now well.
-------------------- sixgoofykids.blogspot.com Posts: 13449 | From Ohio | Registered: Feb 2007
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