richedie
Frequent Contributor (1K+ posts)
Member # 14689
posted
My doctor said she thinks I am done with Babesia. That was last year...after almost two years on mepron. Well...the last three weeks have been filled w ith lots of night sweats.
-------------------- Mepron/Zith/Ceftin Doxy/Biaxin/Flagyl pulse. Artemisinin with Doxy/Biaxin. Period of Levaquin and Ceftin. Then Levaquin, Bactrim and Biaxin. Bactrim/Augmentin/Rifampin. Mepron/Biaxin/Artemisinin/Cat's Claw Rifampin/Bactrim/Alinia Plaquenil/Biaxin Posts: 1949 | From Pennsylvania | Registered: Feb 2008
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richedie
Frequent Contributor (1K+ posts)
Member # 14689
posted
tick battler....
your mailbox is full!
-------------------- Mepron/Zith/Ceftin Doxy/Biaxin/Flagyl pulse. Artemisinin with Doxy/Biaxin. Period of Levaquin and Ceftin. Then Levaquin, Bactrim and Biaxin. Bactrim/Augmentin/Rifampin. Mepron/Biaxin/Artemisinin/Cat's Claw Rifampin/Bactrim/Alinia Plaquenil/Biaxin Posts: 1949 | From Pennsylvania | Registered: Feb 2008
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phyl6648
Frequent Contributor (1K+ posts)
Member # 28522
posted
richidie, I haven't even gotten started and want to give up on abx.. My body won't tolerate them no matter what my doc says. I am trying antioxidants, aloe vera drink, vitamins/minerals and essentials amino acids.
Been sick over 11 yrs was dx with cfs/fm but had lab work done over 2 months ago, did a lyme western blot and 2 bands were positive. IgG 41 and Igm 23..
Not sure what will happen but sick and tired of worrying over the abx...
Good luck to you and keep us posted.
Posts: 1058 | From VA | Registered: Oct 2010
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D Bergy
Frequent Contributor (1K+ posts)
Member # 9984
posted
One thing I would try, just because it has no down side, and some of your symptoms sound almost autoimmune related, such as Ankylosing Spondylitis, is Low Dose Naltrexone.
Maybe, given the chance, you immune system could take care of whatever is causing your pain. It almost does not sounds like Lyme at this point.
Maybe one of the hundreds of other infections that are too numerous to try single out, are causing problem.
I use LDN as a Crohn' treatment, and it is used for virtually any autoimmune disease, or condition in which a stronger immune system is needed.
If your pain is Arthritis related, LDN is used with Alpha Lipoic Acid, and has been pretty effective in this application.
Dr. Burt Berkson is the expert in this area.
LDN is virtually risk free, which is why I use it myself.
Dan
Posts: 2924 | From Minnesota | Registered: Aug 2006
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richedie
Frequent Contributor (1K+ posts)
Member # 14689
posted
San,
My Psychiatrist said she is willing to get me LDN. What does it do? Does she need to use a special pharmacy???
Thanks!
-------------------- Mepron/Zith/Ceftin Doxy/Biaxin/Flagyl pulse. Artemisinin with Doxy/Biaxin. Period of Levaquin and Ceftin. Then Levaquin, Bactrim and Biaxin. Bactrim/Augmentin/Rifampin. Mepron/Biaxin/Artemisinin/Cat's Claw Rifampin/Bactrim/Alinia Plaquenil/Biaxin Posts: 1949 | From Pennsylvania | Registered: Feb 2008
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momlyme
Frequent Contributor (1K+ posts)
Member # 27775
posted
richedie - are you taking any antioxidants?
I was diagnosed with chronic reactive arthritis when I was 23. I went from being an auto mechanic to not being able to take out the trash.
I was afraid I would never have children because I was in so much pain I was afraid I would not be able to lift my own baby.
I went back to college. I studied chemistry & nutrition... determined to find an answer to my pain.
Over a period of 3 years, I tried countless nutritional supplements that were on the market and supposed to give pain relief.
What I would do is research the toxicity level and then ramp up to a saturation dosage. I would go 5-7 days at the highest dose I could possibly take.
I kept trying different supplements until I found the one that works for me.
For me it's grape seed extract. For you, it may be something different. I hope you find your something. I know that constant pain can be maddening.
I still take it to this day. I only take a maintenance dose and it keeps me pain free and drug free. I have to keep bottles of it in every room, car, golf bag & pocket book... because when the pain hits... I need a pill. But it's natural, no side effects.
-------------------- May health be with you!
Toxic mold was suppressing our immune systems, causing extreme pain, brain fog and magnifying symptoms. Four days after moving out, the healing began. Posts: 2007 | From NY/VT Border | Registered: Aug 2010
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D Bergy
Frequent Contributor (1K+ posts)
Member # 9984
posted
LDN just boosts your immune system. Some of us just do not have a properly operating immune system for some reason.
I would use one of the approved LDN compounding pharmacies on the lowdosenaltrexone.org site.
I use "The Compounder" in Aurora Illinois. "Skips Pharmacy" in Boca Raton Florida is another good one to use. They are a little cheaper also.
It is often compounded wrong, if you use any old pharmacy.
I guess my philosophy is, if you can't identify what pathogen is causing you trouble, arm the immune system. It knows, but maybe just doesn't have the oomph to kill it. It may not solve all problems, but it very well could make a substantial difference over time.
It really is about the safest drug in the world.
Dan
Posts: 2924 | From Minnesota | Registered: Aug 2006
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