posted
I was diagnosed wtih neuro lyme due to dizzinessthat has grown more severe after 30 years of menieres...I am on 3 week of oral omnicef and cannot take the severe tinnitus that started and stabbing nerve pains shooting up behind my ears and down my face. What can this be? I have not even started IV therapy yet while the ins co waits for the western block results before approval..Do I take advil or something to stop the pain.All of a sudden I can barely move and feel like I am so weak...can abx do this so soon? I am eating healthy, taking all nutrients and taking those detox baths and chlorella but not sure what else to do....I am at the end of this already....
-------------------- Diagnosed with chronic neuro lyme 12/10 after 30 years of vertigo.2 tick bites in 3 yrs from upstate NY. Was on omincef for nine mths..zith and rifampin stopped.Remission~ All the pain and symptoms are back and I am not treating now with biaxin. Posts: 788 | From New york..queens | Registered: Nov 2010
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Abxnomore
Frequent Contributor (5K+ posts)
Member # 18936
posted
It sounds to me as thou the ABX is hitting the spirochetes and that your nervous system is totally inflamed by having lyme and co-infections untreated for a very long time.
Yes, I think it's the ABX that is working. I would call your doctor and ask him what to do, if it is that unbearable. I don't think you can give up, as you have only just begun. Things will certainly get far worse down the road without treatment.
The spirochetes love the cranial nerves. It sounds like yours are especially inflamed.
Posts: 5191 | From Lyme Zone | Registered: Jan 2009
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Abxnomore
Frequent Contributor (5K+ posts)
Member # 18936
posted
Sending this up for input.
Posts: 5191 | From Lyme Zone | Registered: Jan 2009
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posted
I also get this symptom. My ears ring constantly (worse at night) and I get flares of nerve pain behind and below my ears.
I am hoping complete, comprehensive treatment will lick it for good, but its been a long haul.
Posts: 233 | From Hudson Valley | Registered: Jun 2010
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- Sorry that I cannot answer your questions right now. You may find helpful details here: -----------------
ALL EARS. Specifically for LYME patients - lots of details about ears and what can help:
� of the way down page one, there are lots of LIVER LINKS -
Topic: TINNITUS: Ringing Between The Ears; Vestibular, Balance, Hearing with compiled links - including HYPERACUSIS -
Posts: 48021 | From Tree House | Registered: Jul 2007
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posted
I put heisting pads that are filled with homeopathic stuff on my ears when it flares. They are heating pads that go in the microwave. I also try to avoid the telephone and loud no ices. All this thing make my nervous system irritable.
-------------------- gatorade girl
"I still have Mt.Everest to climb, but I have traveled across the world and arrived at the mountain". Posts: 633 | From baltimore | Registered: Mar 2010
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Pinelady
Frequent Contributor (5K+ posts)
Member # 18524
posted
I used Sweet oil drops in the ears for great relief.
And a heat pad and heat Epsom Salts soaks.
You can try a poultice made from Ginger root or lemon rubbed on.
I used them on my hot burning neck.
I had ate so much Tylenol prior to finding it, I was scared to take any more....
-------------------- Suspected Lyme 07 Test neg One band migrating in IgG region unable to identify.Igenex Jan.09IFA titer 1:40 IND IgM neg pos 31 +++ 34 IND 39 IND 41 IND 83-93 + DX:Neuroborreliosis Posts: 5850 | From Kentucky | Registered: Dec 2008
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posted
I have terrible pains in my cranial nerves. The pain increases when I begin a new antibiotic.
I have to start each new med very slowly and ramp up, or the pain in my face, ears, and jaw is unbearable.
Posts: 151 | From SW US | Registered: Feb 2009
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posted
I also get unrelenting tinnitus and nerve pain that shoots up behind my ears into my head.
The head nerve pain has been constant since Aug 2009. Lyme and coinfection treatment has certainly helped and the head flares less than usual.
Showers tend to help me alot- seems to reset the head/neck nerves a little bit. I've tried so many things- meds, chiro, acupuncture, massage, supplements, etc and while things are getting better very slowly over time, I cannot pinpoint one thing that really has helped.
I do whatever I think I need at the time- sometimes ice, sometimes traumeel, sometimes heat.
Good luck, this symptom is really difficult.
Posts: 233 | From Hudson Valley | Registered: Jun 2010
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posted
I also have very loud tinnitus, even hear what sounds like organ music at times. My tinnitus is 24/7, but gets louder at times which is probably due to herxing from taking the Doxy. I am two weeks into taking Doxy, the organ music has subsided but the ringing and roaring sounds still get pretty strong. I also feel plugged up behind the ears at times. It is no doubt the most annoying symptom that I have, but we all know that herxing is part of healing.
Posts: 21 | From ohio | Registered: Jan 2011
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