i decided to stop ABx first time since 20 Months of constant ABx treatment. my actual protocol is biaxin+mepron+arte+pulsed metro.
the last 2 weeks were pretty horrible.. i dont know if it was a herx or if the abx just doesnt work.
because of my weak/sick feeling especially the last two weeks im a little bit depressed.. it has been a long road so far and i hoped to be symptomfree this year. i was only 1/2 year sick until i startet the 20 months treatment.
so i wanted to ask those who are nearly remission or in complete remisson: did u have still symptoms when stopped Abx?
i think some symptoms are caused by the ABx.. but i really dont know which.. i dont know if my body can detox.. i dont know if my mainissue is maybe yeast?!..
i treatet borrelia.. then borrelia and bartonella.. then borrelia bartonella and babesia..
for sure there was improvement.. but not that much i hoped...
my main issue is the brainfog... its my worst symptom.. no pain in joints.. just weak and brainfog.. dark eye circles.. no appetite etc.
actually im on month 3 babesia protocol.. i thought it would move mountains for me.. but it didnt happen.. dont know what else to do.. to try.. sick of this lyme-game
Posts: 371 | From velocity of light | Registered: Sep 2009
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TF
Frequent Contributor (5K+ posts)
Member # 14183
posted
I was totally symptom-free and the doctor still would not let me stop taking the antibiotics because winter was coming.
He said that this could cause a relapse--to stop treating in or near winter--because winter is a stress on the body.
So, I had to take antibiotics for 5 more months without any symptoms. I could not stop until the spring time.
I knew I was cured because I was totally normal this entire time.
With a previous doctor, he had me stop when I felt about 75% cured and in 2 weeks I was just as sick as I ever was.
So, the rule from the Burrascano guidelines is to treat for 2 months past the symptom-free point.
I treated continuously for 36 months or a little more. But, I switched to a great doctor and got great treatment the last year and that is what gave me success--12 months of treatment with an expert.
If you have a good doctor, he can tell you if your problem is yeast. He also should be able to tell if you are unable to detox. Can you find a better doctor? You should not have to figure out for yourself what is going on.
Posts: 9931 | From Maryland | Registered: Dec 2007
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seekhelp
Frequent Contributor (5K+ posts)
Member # 15067
posted
TF, your LLMD must be the best in the world because even the LLMD I see (who is considered the top 2 in the universe) doesn't seem to be able to tell anyone if their issues are yeast or 'inability to detox.' I wish things were that transparent.
Posts: 7545 | From The 5th Dimension - The Twilight Zone | Registered: Mar 2008
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posted
which alternative protocol was it?? im from germany and would try it (maybe)...
@TF yeah.. u know this road to hell very well.. i really dont know what to do at this moment.. i cried last week because the "herx" was so bad.. i didnt cry for at least 3/4 year! its really strange because i thought that mepron would do the trick.. especially because i tried so many things before..
greetz
Posts: 371 | From velocity of light | Registered: Sep 2009
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posted
mh.. i took my medicine yesterday... my blood lab is still fine... i cant believe that im herxing since nearly 3 weeks?!?!? is such a long herx possible with babesia protocol???
greetz
Posts: 371 | From velocity of light | Registered: Sep 2009
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posted
I used the Bionic 880 with a doctor in Pforzheim. If you go to Oct. 2008 in my blog, http://sixgoofykids.blogspot.com , you can read about the treatment. Start at the last post and work forward.
If you want the doctor's contact info, PM me and I'll send it to you.
-------------------- sixgoofykids.blogspot.com Posts: 13449 | From Ohio | Registered: Feb 2007
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posted
Seekhelp - who do you consider the top LLMDS? PM me if you get a chance. I want the best. I am going to see Dr. P in CT in Jan.
@daniel- I am so sorry for your struggle. I am nowhere near remission so don't have anything to say other than, I hear you and I am sorry. Good luck.
Posts: 341 | From NY/FL | Registered: Apr 2010
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posted
I have been treating lyme + cos continually for 13 months. I have had to "back off" meds multiple times because when I am on too much medication, I feel worse and worse instead of better and better.
I am more functional on less meds and I need to keep my job and health insurance so I can fight this crazy illness.
As for feeling worse or no better off abx, after I stopped my IV rocephin, I had some big up/down days like my body did not know what was going on. It was like I was having withdrawal symptoms or something? The LLMD told me this was normal when stopping an abx- as your own immune system tries to regulate itself again, you will have ups and downs.
I am not symptom free yet, and I am still treating (but with only one abx) with the hopes of trying herbs next. I doubt I am going to be completely symptom free when I make the switch off abx completely.
Posts: 233 | From Hudson Valley | Registered: Jun 2010
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canefan17
Frequent Contributor (5K+ posts)
Member # 22149
posted
When you're on anti-biotics to a certain degree you suppress the immune system.
When you STOP abx's it's not too far fetched to experience an immune awakening and thus have some herx's or healing crisis reactions.
I stopped antibiotics 8 or 9 months ago - and when I did I immediately went on an anti-candida protocol and I began treating Lyme/Co's with herbs.
Look into natural treatments that way you're not completely stopping treatment.
Posts: 5394 | From Houston, Tx | Registered: Aug 2009
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posted
thanks a lot 4 your answers.. tonight nightmares again.. hmpf... i will try at least 5 mos on babesia protocol.. now i have some holidays and try to relax a little bit.. the uni stressed me out.
my immune system is still working pretty well, my lowest cd57 count was 216, my highest 390.
but if i go off meds, i will make for sure a candidaprotocol and herbal borrelia protocol
greetz
Posts: 371 | From velocity of light | Registered: Sep 2009
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posted
I know of people who went to asymptomatic within weeks of the "worst they ever felt". I am now doing fairly well on probiotics and herbs, and my total lymphocyte count is now the highest it has been in past 19 months, equals duration of my knowing I was ill. I feel Canefan is more likely than not correct in saying a stronger immune system may kick in and cause a cycle of herxes and progressive tiny increments of improvement for some.
-------------------- Ideas not advice. Posts: 448 | From Downeast Maine | Registered: Jul 2009
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posted
some people need to treat babesia for years so don't get impatient after few months...
Posts: 723 | From Montreal | Registered: Oct 2010
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I wish things were that transparent.
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