posted
Ok-- Saw Dr S in NJ back on Nov 6th (true to the replies I received in PMs, he is very quiet and does not talk a lot, but I liked him and more importantly he took my symptoms seriously.
I can also confirm that his office staff is wonderful and that the wait to see him is very short-- I waited less than 5 minutes to see him after filling out first visit paperwork).
He ordered tests for Bb and co-infections. Said based on my symptoms he believed Lyme and Babs.Sent me on my way to await Igenex results with a December 9th follow up.
Of course over the next 4 weeks (no meds or treatment) I started to feel better (after several months of feeling like garbage).
Not great, mind you, but I could stay awake past 9 at night, the foggy headedness, headaches, vertigo, and nausea were all gone (and my associated anxiety about something being seriously wrong with me along with it).
I also didn't feel as weak. Still had the pain in my right lower back and around my lower rib cage in the front that I've had since summer, so I was confident I still had something going on.
Dec 9th follow up: Igenex results as follows
WB IGM: 41 kDa Ind (was reactive in October Quest lab WB) all other bands -
WB IGA: 39 kDa Ind (non-reactive in Oct Quest) 41 kDa +++ (non-reactive in Oct Quest) all other bands -
In October my Quest WB showed a reactive IGM 23kDa, but nothing this time.
Babs and Bart were negative as was ANA, EBV, and Rheum Factor.
So, Dr S reaffirmed he believed Lyme and Babs were present. Started me on 200mg of doxy a day.
Said he wanted to see me back in a month and will get more aggressive with treatment from there depending on my symptom changes and reaction to the meds.
I started treatment last Wednesday. By Sunday, my headaches were back and I'm feeling worse-- back to feeling occasionally foggy headed, nauseous, and fatigued-- which I'm hoping is a sign of Herxing??
So anyway, that's my story up until now. Sorry for the novel. Just looking for feedback, affirmation, comments, or whatever you have to offer!
Thanks!
** edited to remove doctor's city, please see terms of use **
[ 12-22-2010, 07:00 PM: Message edited by: sixgoofykids ]
Posts: 10 | From New Jersey | Registered: Oct 2010
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posted
Is he going to do a challenge western blot after a certain length of antibiotic treatment?
Posts: 340 | From san francisco, ca | Registered: Nov 2010
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Hambone
Frequent Contributor (1K+ posts)
Member # 29535
posted
Doxy made me VERY nauseous!!!!! If I didn't eat a lot of food with it, I was dry heaving and/or vomiting.
Band 41 is the flagella/tail of some kind of spirochete, so even if it's not Lyme, you have something in you that doesn't belong there.
Kill it!!!
Posts: 1142 | From South | Registered: Dec 2010
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Ok-- Thanks for the advise. He recommended acidophilus so I've been taking that since I started the doxy.
So far the nausea just comes in short waves, same as before I started the doxy. Nothing worse, yet...
Posts: 10 | From New Jersey | Registered: Oct 2010
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