posted
At my second appt with LLMD I brought up my son 8yo.
During my pregnancy I was very tired and slept 10 hours a night plus a 2 hour nap during the day probably mid-late pregnancy. I never felt I came back after giving birth.
Now to my son. He is on the autism spectrum (Asperger's), adhd, developmental coordination disorder and absence seizures. He is very bright, loving, and cute.
The dr said it would be a good idea to test him and that they really don't like to do challenges in children. She told me I could wait until he has been given anti-biotics from ped and then test after he finishes the course.
We have had *the* most difficult year with our son. We are almost to the one year mark where the sh*t hit the fan with a school that was just horrible, ending up with my son in the hospital and moved to different school. We have had 6 IEPs this year. It has been grueling.
EEG-seizure dx. Spent all summer fighting insurance for the seizure med he needed. Did med trials that were scary disasters. Just re-did EEG and hopefully the med we like is showing to work. Results in two weeks or so.
My husband is not on board with my "alternative treatment" I just got the Under our Skin DVD and we will watch tonight. I am not ready to bring up the possibility of our son yet with my husband.
I guess I just needed to get this out. If anyone has had their child tested please help. Thanks for listening.
Posts: 34 | From southern CA | Registered: Dec 2010
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ktkdommer
Frequent Contributor (1K+ posts)
Member # 29020
posted
My two children have been tested at age 15 and 17. I wanted answers and was happy to get proper testing through IGeneX. I was even happy to pay for it if it meant we could rule Lyme in or out and move on with our lives. It was obviously ruled in. My youngest with neurological Lyme is already doing much better. It seems that bart was a big cause of his behavior which became impossible to deal with. He had to go on an IEP because of the effects of Lyme and coinfections. He has ADHD and I wonder if when treatment is complete, if he will still have the condition. My sister was diagnosed in October and testing for her 4 year old has yet to be done. I know she has many concerns but if it is Lyme she wants to start treatment before something worse happens. Lyme testing can be a good thing. Her ILADS doctor will treat her son, too, if he has it. Our ILADD doctor treats the three of us. I know husband issues can be huge when they don't have Lyme. It may take some time, but if it is Lyme and your son can get better, I think he will come on board. What is the alternative treatment? What kind of doctor do you see? You may not need a challenge if it is congenital Lyme and he has had it for 8 years. My two children did not have a challenge and neither did I. Wishing you the best in the New Year,
-------------------- Things are never dull. After 3 fighting Lyme, 2 are in remission. Youngest is still sick, age 22. He has new diagnosed Chiari Malformation and Ehlers Danlos Syndrome. Posts: 1366 | From Perrysburg, Ohio | Registered: Nov 2010
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Tincup
Honored Contributor (10K+ posts)
Member # 5829
posted
Seaweed,
Glad that your doc mentioned getting your son tested. I would have to agree.
There are a number of children diagnosed with autism that were found to have Lyme disease.
I would also suggest Bartonella and other coinfections be tested for if possible.
There may be some information on the website below that could help?
Uh, my husband thinks that treating with long term antibiotics and the herb arteminsinin is alternative. The other supplements too. It will be a slow process for him:(
Posts: 34 | From southern CA | Registered: Dec 2010
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Tincup
Honored Contributor (10K+ posts)
Member # 5829
blinkie
Frequent Contributor (1K+ posts)
Member # 14470
posted
Had my 15 month old tested at Igenex and came back with a few positive bands. CD57 is at 40 and he is now 2. He will be starting treatment after Christmas.
I don't want lyme to be a problem for him during his childhood and school years so we are getting him treated young.
Posts: 1104 | From N.California | Registered: Jan 2008
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