posted
Wondering if anyone has some advice/experience that they would be willing to share with me
I was diagnosed with lyme march 2010, started on Biaxin, could only tolerate for 6 weeks/severe stomach pains
then changed lyme doctors, more test, diagnosed with bartonella & babesia, treated with levaquin, & melarone for 10 weeks.
Added ceftin for 4 days and developed c-diff- off of everything.
Then started A-Bab, A-Bart-doing that for 4 months- 20 drops of a-bab, 15 drops of a-bart
Dr. wants to increase a-bart-continue for 2 more months.
Feeling like being overtreated for co-infections, but not treated for lyme-borrelia. have asked dr. this, but he doesn't think lyme is my problem. Anyone had the same experience? Confused and frustrated. Posts: 7 | From New York | Registered: Jul 2010
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lululymemom
Frequent Contributor (1K+ posts)
Member # 26405
posted
country girl, have the a-bab and a-bart made any difference with the co-infections? I just started a-bart and up to 4 drops 2X day.. It's only been a week but no noticeable change yet.
posted
Yes, I am taking both A-bab(20drops) & a-Bart(15 drops) 2x a day.
Plus, all the other usual supplements for lyme-boulouke, probiotics, mag, vit c, b12, fish oil.
I did notice a dif. positive after 2 months, but haven't seen anymore impr. since early Nov. that is why i am surprised that I have to continue to take the herbal.
Posts: 7 | From New York | Registered: Jul 2010
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IgenX-WB- IgG= 23-25+ 31+++ 39 IND 41 ++ 58++ IgM- 31+ 34 IND 39 IND 41 ++ 58 + 66+ 83-93 +
Quest Diagnostics WB IGG- neg. IGM-positive 23 41 band
Posts: 7 | From New York | Registered: Jul 2010
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lululymemom
Frequent Contributor (1K+ posts)
Member # 26405
posted
That's encouraging to know that it has made a difference. I understand it's a slow process but according to BW it's supposed to completely eradicate the infections. Maybe it is just going to take time.
When my daughter was on Mepron, she noticed a difference after 2 months, but then plateaued for almost 2 months afterwards.. so even with the best treatment there could be slow down of improvement.
There are herbal treatments for lyme as well such as samento among others.. maybe your Dr. can put you on some of those as well.
Topic: How to find an ILADS-educated lyme literate (LL) professionals in these areas:
Naturopathic doctor (ND); Acupuncturist (L. Ac.), a doctor of Oriental Medicine (O.M.D.), or a doctor of Ayurvedic Medicine (D.Ay.), certified herbalists or nutritionists, . . .
. . . Holistic MDs, and also Doctors of Osteopath (DO) and Doctors of Chiropractic (DC), etc.
�� Includes many professional links, articles and books on complementary / integrative methods - & RIFE links -- all by LL authors.
BODY WORK considerations are discussed, with links. -
Posts: 48021 | From Tree House | Registered: Jul 2007
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- You say: " . . . Feeling like being overtreated for co-infections, but not treated for lyme-borrelia. have asked dr. this, but he doesn't think lyme is my problem. . . ." (end quote)
Be sure to consider the experience and expertise of your doctor. If this is an ILADS-educated Lyme Literate MD or ND who has seen hundreds of others to success . . . a doctor with years of experience who keeps up with ILADS seminars and continuously does study on his own, too . . .
then it's important to take all that into account. He may be correct - or maybe he phrased it meaning that it's most important to more aggressively address the other infections first. Some LLMDs treat coinfections first.
It could be a huge mistake for you to take off in your own direction and start making changes of your own.
Most important is his experience. You might ask his to explain a little more you about his assessment and how he determines the direction - so that you feel more comfortable.
Ask others in the area lyme support groups about their experiences with this doctor. While allowing for individual differences, this might give you some perspective.
If you are not confident in your LLMD, and are leaning toward a holistic approach, it's important to know that they usually also involve Rx, along with supplements. No treatment path is a walk in the park.
You may want to learn more about WHY your current doctor is making certain choices. If you are not satisfied, the ND link above can guide you to other doctors and also help you understand some of the methods of treatment and what adjunct options are most helpful - and why. -
[ 12-26-2010, 03:27 PM: Message edited by: Keebler ]
Posts: 48021 | From Tree House | Registered: Jul 2007
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posted
good advice! Thanks for all of your responses.
Posts: 7 | From New York | Registered: Jul 2010
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glm1111
Frequent Contributor (5K+ posts)
Member # 16556
posted
Make sure you treat for parasites which is a VERY important factor in getting well. There are antiparasitic herbs like Humaworm, Hulda Clark, Parastroy and Hanna Kroeger that can help get rid of them.
Many doctors are not aware of this factor and it is often overlooked.
Gael
-------------------- PARASITES/WORMS ARE NOW RECOGNIZED AS THE NUMBER 1 CO-INFECTION IN LYME DISEASE BY ILADS* Posts: 6418 | From philadelphia pa | Registered: Jul 2008
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