nefferdun
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This is my fourth week on Mepron and I feel exhausted. I can hardly do anything. Is this typical. If it is how long does it last? I hope I will not be sitting on the couch for 6 months.
I am down emotionally ; depressed but even more, anxious and irritable. I just don't want to do anything physically or emotionally. I feel like I am in prison.
This concerns me because it is similar to the way I felt before treating bart, which this LLMD says I do not have. I am afraid if that is creeping back up on me I will be underground by spring
But my physical symptoms are babesia right now. Does this anxiety happen with Mepron and babesia too? Thanks
-------------------- old joke: idiopathic means the patient is pathological and the the doctor is an idiot Posts: 4676 | From western Montana | Registered: Apr 2009
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I get wired from Mepron. It will make you depressed though.
Babesia is all about anxiety. 4 weeks on mepron is nothing, though
I would check my liver enzymes, keep that liver clean !
Posts: 85 | From Long Branch NJ | Registered: Dec 2010
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jackie51
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You should be on some type of liver support. My doctor has me on milk thistle. Also, squeeze lemon in water and drink 1-2 times a day.
Don't forget mepron can give you major blues (though this isn't always the case). There is a link somewhere for this. Do a search for mepron blues.
Posts: 1374 | From Crazy Town | Registered: Dec 2007
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nefferdun
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I guess it is good to know it is Mepron/babesia and not another infection coming out that is causing the anxiety.
Can I use milk thistle with Mepron? I was using alpha lipoic acid but read you can't use that so I quit. I am drinking lemon water.
What about the extreme fatigue and weakness? I get so tired and breathless when I do anything. Is this a herx? I hope this improves soon.
-------------------- old joke: idiopathic means the patient is pathological and the the doctor is an idiot Posts: 4676 | From western Montana | Registered: Apr 2009
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I get very tired on mepron and also feel unmotivated and just a general depressed feeling. I was on Malarone 3 months and now mepron for 2 and starting my 3rd month.
My llmd took me off mepron for 1 month thinking maybe the babesia was done and my mood and fatigue got better but my headaches got really bad again.
He put me back on it and within about 4 days I felt the impact of the mepron again.
I hope it does get better while taking it but if not I just make sure I keep reminding myself its the med and it will be over one day soon.
Posts: 186 | From colorado | Registered: Jul 2010
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Sorry you're havin such a rough time, nefferdun!
Anxiety is a Babs thing! Yes, and extreme fatigue, weakness, wilting, breathless, wimpy!
My LLMD says Yes, you can use milk thistle with Mepron.
No ALA. Good. No co-Q10 or Vit E supps, either.
Lots of lemon water is always helpful! My LLRN encourages epsom salt baths, up to twice a day, to gently detox and take away the stress. Two cups of epsom salts in a bathtub. Soak in it for about 15 minutes or until water cools off. Really relaxing!
I think I read here somewhere that Babs has a 4-month whole life cycle so it needs to be treated for 4 months at least?
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Oh, but to address the actual title of this thread, Mepron gives me insomnia, babesiosis and LD make me fatigued.
If I take Mepron after about 7 pm, it keeps me up and messes with my schedule. Try to eat dinner around 5 to 6:30 pm if you take a Mepron dose with dinner.
I hope you're counting total fat consumption, ensuring 25 - 27 grams total fat per meal that accompanies the Mepron or Malarone dose. Required for the meds to be utilized by the body.
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nefferdun
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Thanks you guys. I hope it does not last the entire six months I am supposed to take it. I was doing really well about 6 months ago. I was motivated and getting things done. My main complaint was memory loss which has never improved.
Then this babesia which has been hiding came out. This was the worst Christmas I have had - not too cheery that is for sure.
The LLMD gave me a anti-psychotic drug. I did not pick it up because it was so expensive but maybe I will. He said it would really affect my brain but I don't remember why.
All I do is sit around all day. A hot Epsom salts bath sounds pretty nice.
I will get out my milk thistle and try to remember to get the liver test done. Thanks.
-------------------- old joke: idiopathic means the patient is pathological and the the doctor is an idiot Posts: 4676 | From western Montana | Registered: Apr 2009
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Hey just remember to hang in there. It always helps me to know that babs is the enemy here. Fight Babs and your half way there.IT WILL TAKE A WHILE. So be patient. Mepron is a heavy weapon and usually does the job. Next X mas will be much better for you. Feel better
Posts: 85 | From Long Branch NJ | Registered: Dec 2010
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jackie51
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Nobody mentioned it, but I think you are supposed to take Mepron with 20 grams of fat. So, I usually take it right after I eat breakfast and dinner. If I forget, I will eat a slice of cheese or a handful of nuts with it. If I take too close to bedtime, I have some weird dreams and some anxiety and have difficulty getting to sleep.
It takes 90 days to clear the red blood cells. Thus, 4-6 months of the regimen for babs. I'm on month 3. Have had episodes of depression, flares of irritability, but for the most part feel much better.
Posts: 1374 | From Crazy Town | Registered: Dec 2007
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nefferdun
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I feel more optimistic knowing the I have found the hidden enemy and am taking it out. It really helps to know this is the reason I have not gotten well and now that we are attacking it I have a better chance of recovery.
I had to re-read the posts to understand it is the babesia, not the Mepron, that is making me so tired. So I should improve and start to feel better.
I hope I continue to tolerate the Mepron. So far, I haven't had nearly the problems other people write about. I had to buy 5 bottles of it to meet my deductable for the year so I sure hope I don't get a liver problem.
Sure wish I had gone about this the right way right from the start but who knows it might not have tested positive in the beginning.
-------------------- old joke: idiopathic means the patient is pathological and the the doctor is an idiot Posts: 4676 | From western Montana | Registered: Apr 2009
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quote:Originally posted by apljack: Nobody mentioned it, but I think you are supposed to take Mepron with 20 grams of fat.
So, I usually take it right after I eat breakfast and dinner. If I forget, I will eat a slice of cheese or a handful of nuts with it.
Mepron is "barely water soluble" so it must be taken with 25 to 27 grams of total fat.
Adding nuts or sunflower seeds is a good idea.
But cheese or other dairy products should not be taken along with antibiotics.
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nefferdun
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I take it with coconut oil and/or nuts in oatmeal in the morning. And in the evening olive oil on a salad with some other fatfy food.
Today was a better day for me. I helped paint a room. I would not have been able to do that just two days ago. I was out of breath when I did anything. I would move around a liitle bit and then have to sit down to rest. I hope this continues.
-------------------- old joke: idiopathic means the patient is pathological and the the doctor is an idiot Posts: 4676 | From western Montana | Registered: Apr 2009
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