I haven't posted for a while. I am still sick (who isn't), but doing MUCH better. I have been very encouraged. Many of my cognitive problems and anxiety problems, and sleep problems have improved tremendously. I sort of associated all of that with bart, which I have/had BAD.
I was always the unusal TBI patient who could run 5 miles or take a 10 miles hike because I was so jacked up from being anxious all the time. Sleep was not happening.
Well, finally much of this is gone but I am EXHAUSTED like I never had been in this disease. I have quit all sleeping meds (hurray)after three plus years. I just am dragging myself around.
I like to think I have killed bart and now I am dealing with Lyme and that it will get better. I don't think I have babs as I have none of the other symptoms.
I am currently taking ketek and bactrim for bart and lyme.
Anyone else who killed bart experienced this?
Thanks, Kathy
-------------------- Severe neurological problems. Probably sick for years. Became chronically sick in Aug 2007. Undiagnosed for another 15 months. Started treatment for lyme and bart Sept. 2008. Improving, but very slowly. Posts: 515 | From washington dc | Registered: Aug 2008
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You may be surprised. I didn't think I had Babs til my LLMD pointed out all my symptoms and IGenX showed me positive.
This is what I've gleaned:
If a patient has been in good treatment for years and is still sick, think babesiosis and/or yeast.
If you don't control the yeast, you can't control Babs. If you don't control Babs, you'll never control Bart. You gotta control Babs & Bart before you can clear Borrelia.
posted
Thanks, I don't think there is anymore reading that I can do on these. I was on some babs treatment for a while. My doc covers everything.
Everyone else I know with lyme can't get out of bed. I am hoping that I peeled back the bart layer and now I am dealing with the lyme layer so to speak.
-------------------- Severe neurological problems. Probably sick for years. Became chronically sick in Aug 2007. Undiagnosed for another 15 months. Started treatment for lyme and bart Sept. 2008. Improving, but very slowly. Posts: 515 | From washington dc | Registered: Aug 2008
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nefferdun
Frequent Contributor (1K+ posts)
Member # 20157
posted
I can't say I "killed" bart but it became less active allowing the babesia I never thought I had to emerge and take over.
My life was similar to what you describe. I had insomnia a lot. Unlike you, my mind was a mess so I did not feel very motivated until I began bart treatment. But then I had a surge of activity in the spring.
I am an older woman. I was riding and training my horse every day keeping up with people half my age but never as active or as strong as before I got sick. My mental function was and remains dim with loss of memory.
Although I was taking Bactrim DS and zithro which treats both bart and babesia, the bart symptoms faded, being replaced by babesia. I began to feel exhausted - no stamina at all. I sank into a depression, feeling what is the use? But I could sleep!
I thought at first that my hot flashes were bart related but they were babesia. I didn't sweat. I did not have air hunger except for once in a while which I thought was just hyperventilation.
I began to suspect babesia more and more and then tested positive about two months ago. I am on Mepron and zithro now and very inactive. Where as I used to ride every day I have ridden twice in the last six weeks. I have no motivation at all and no energy or enthusiasm for anything.
I seldom have a headache and my air hunger is rare. The only physical complaint is the hot flashes but I rarely sweat and never drenching. I never have a fever that I know of. I eat just fine. Basically the only obvious babs symptoms is the loss of stamina and depression. Since starting Mepron I also have anxiety.
I am not sure I ever had bartonella now because the LLMD does not think so since I did not test positive. The Levaquin sure knocked down whatever it was so I probably do have a strain that does not test. The LLMD believes it was Ehrlichia. Whatever it was/is, it took me down and I hope that I got rid of it - don't count on it though.
So my point is, you just never know what is going to emerge. Don't dismiss babesia.
-------------------- old joke: idiopathic means the patient is pathological and the the doctor is an idiot Posts: 4676 | From western Montana | Registered: Apr 2009
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sixgoofykids
Honored Contributor (10K+ posts)
Member # 11141
posted
quote:Originally posted by venus: I am still sick (who isn't)
I'm not!!
I have to wonder if it's your adrenals. You say that you always had a ton of energy due to anxiety, now you're exhausted. That sounds like adrenal fatigue .... it sounds like you were producing the hormones to make you wired, then you ran out of them, now face fatigue.
There are some good books on adrenal fatigue, but most importantly, you have to get rid of the underlying cause - Lyme Disease.
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