posted
I'm sorry you're feeling so bad. Be sure to tell your LLMD about the depression. Are you detoxing?
-------------------- sixgoofykids.blogspot.com Posts: 13449 | From Ohio | Registered: Feb 2007
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momlyme
Frequent Contributor (1K+ posts)
Member # 27775
posted
saved - what kind of tremors? Are you warm enough?
I hope you feel better soon!
Sending you a big hug.
-------------------- May health be with you!
Toxic mold was suppressing our immune systems, causing extreme pain, brain fog and magnifying symptoms. Four days after moving out, the healing began. Posts: 2007 | From NY/VT Border | Registered: Aug 2010
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Carol in PA
Frequent Contributor (5K+ posts)
Member # 5338
posted
Are you taking magnesium? How much, and which kind.
The Lyme bacteria use up the magnesium in our cells. The cells need magnesium for all of the enzyme processes.
This is something you can do for yourself. Don't bother with trying to get tested, as the blood test for magnesium measures the mag in the blood, not in the muscles and nerves.
If your symptoms improve, then you know it's helping. If your symptoms don't improve, your body is probably having problems absorbing the magnesium.
You can apply magnesium topically (to the skin.) Look up magnesium oil.
Eat foods high in magnesium. Almonds, beans. You can buy a pound of almonds at the grocery store, and eat several ounces per day. Almond butter is good, it's like peanut butter.
For beans...baked beans, bean soup, refried beans, bean burritoes. When I make macaroni salad, I always add a can of kidney beans, rinsed and drained.
Carol
Posts: 6947 | From Lancaster, PA | Registered: Feb 2004
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seekhelp
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posted
Good ideas. Eat ounces of almonds and you'll get fat real quick! Posts: 7545 | From The 5th Dimension - The Twilight Zone | Registered: Mar 2008
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Couldn't tell if you had ever been treated for babs or not?
Hubby has had several LLMD's tell him that his tremors could be either from Lyme, babs or bart. The more we treat the more obvious it becomes that for him the real issue is primarily babesia or whatever bloodborne parasites he has.
We think this causes his hypoperfusion to be worse and that is the primary reason for his tremors, myoclonus, seizure-like spells and dystonia.
Have you ever tried IV glutathione? that might be helpful with symptoms.
Bea Seibert
If you have not had a SPECT scan that also might be useful -- but it is very important to have it read at somewhere like Columbia University in New York or somewhere that the radiologist is lyme literate or it will not be interpreted correctly.
Posts: 7306 | From Martinsville,VA,USA | Registered: Oct 2004
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posted
I can totally relate to the tremors. Mine are internal, so nobody else can see them. They have been driving me crazy again for the last week. Out of all my symptoms, this is the one that can send me over the edge.
Anyhow, sometimes it just helps knowing that someone else is feeling the same way. Especially today, with it being the start of a new year. I have been feeling especially down going into this year the same way I went into last year.
I hope you start to feel better soon!
Posts: 20 | From MN | Registered: Jan 2010
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IckyTicky
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Member # 21466
posted
*hugs* I've been there and it's gotten better. Keep your faith in healing... it'll happen.
-------------------- IGM: 18+, 23+, 30+, 31+++, 34+, 39IND, 41++, 58+++, 66+, 83-93IND IGG: 31+, 39IND, 41+ Also positive for Mycoplasma Pneumoniae and RMSF. Whole family of 5 dx with Lyme. Posts: 1014 | From Texas | Registered: Jul 2009
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posted
YEP been there too.Just a month ago.You will feel better,just fight it and keep telling yourself it will pass.Hang in there!!!!
Posts: 72 | From illinois/wisconsin | Registered: Sep 2010
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onbam
Unregistered
posted
Are you on Mepron? That can cause depression.
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posted
No, I'm on IV Rochpen, 5 days a week. They are doing an MRI on head and back on the 8 Jan.
Will this ever get better?
Posts: 200 | From Nevada | Registered: Dec 2008
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lyme in Putnam
Frequent Contributor (1K+ posts)
Member # 11561
posted
This will get better. It's a bad feeling living like this. I've heard for so long you get worse before it gets better. It will. It got better from rocephin 3 times. Didn't do it this time, trying alternate, but rocephin works.
-------------------- He took u to it, He'll you through Posts: 2837 | From NE. | Registered: Apr 2007
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tricia386
Frequent Contributor (1K+ posts)
Member # 29623
posted
keep fighting!
-------------------- Lyme activated in April 2010 by gardasil vaccine. DX: Lyme,Babs,Myco,Bart 11/10 Treatment Started: 3/28/11 Posts: 1752 | From Albany, NY | Registered: Dec 2010
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posted
Saved...hope it is easing for you. I had my mri showing signal intensities in numerous areas of my brain in additons to white areas. This was the reason for the tremors I was having that made me crazy. I would wake up from my sleep shaking and heart pounding, yet I wasnt cold?
I have not tested positive with western blot or CD57 (according to CDC) but llmd says its neuro lyme by the symptoms.
DId it happen before the rocephin? I was denied the IV rocephin due to having only two bands on blot so I am on oral abx. The second week on, I had to start double dosing. The tremors got so bad and my legs started shaking. After two weeks of this I called the doc..they said the dosage was way too high for me and cut it in half.
I got back to normal "dizzies" in a couple of days with the reduced dose. He said this happens to many who are sensitive to abx?
Praying for you since I am where you are too.
-------------------- Diagnosed with chronic neuro lyme 12/10 after 30 years of vertigo.2 tick bites in 3 yrs from upstate NY. Was on omincef for nine mths..zith and rifampin stopped.Remission~ All the pain and symptoms are back and I am not treating now with biaxin. Posts: 788 | From New york..queens | Registered: Nov 2010
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Tammy N.
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posted
Thinking of you and wishing you well Posts: 2238 | From East Coast | Registered: Jul 2010
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lymeinhell
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Member # 4622
posted
To Annier:
quote:I would wake up from my sleep shaking and heart pounding, yet I wasnt cold?
Is it your muscles feel almost like they are shuddering? Both this and the heart pounding are signs of Magnesium deficiency. Which is caused by Lyme.
Do you sleep on a spring mattress? The springs make pressure points on your tight muscles. And when you wake up and move around, you get the resulting shuddering. You need to address the mag deficiency with IM and IV magnesium.
You can get a shot for about $25, an IV for $100. Insurance amazingly reibursed me for the Mag Chloride or Sulfate IV's (even though I did not get pre-approval), but sent me $0.34 for each shot I had. I now do the shots myself and supplies for 25 shots will run you about $65.
BTW - I was neuro for a decade before being diagnosed and got well with 9 mos of orals (and cleaning up my toxic heap of a body and addressing mineral deficiencies and parasites).
-------------------- Julie _ _ ___ _ _ lymeinhell
Blessed are those who expect nothing, for they shall not be disappointed. Posts: 2258 | From a better place than I was 11 yrs ago | Registered: Sep 2003
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momlyme
Frequent Contributor (1K+ posts)
Member # 27775
posted
Hope your MRI goes well today! Let us know how it goes & how you are doing now!
-------------------- May health be with you!
Toxic mold was suppressing our immune systems, causing extreme pain, brain fog and magnifying symptoms. Four days after moving out, the healing began. Posts: 2007 | From NY/VT Border | Registered: Aug 2010
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posted
Had the stiffness and depression...less tremors.
Depression was more incapacitating at that point than the stiffness.
Over time it has gotten way better. don't forget B complex..we run low on that not even having lyme. Also adrenal supports can be important. As well as diet and taking care of ones gut.
Homeopathic aurum metallicum helped me enormously with the mental parts.
Curcurmin and boswellia help as herbal anti inflammatories...among other things...
while you are looking for ways to address yours in particular...take heart.
As you persist in this endurance challenge...it does get better. At one point I wanted to die. Not out of frustration but because of the impact influencing my brain state.
Gone, too.
-------------------- Not everything in life that can be counted counts and not every thing that counts can be counted...Albert Einstein Posts: 208 | From Northeast | Registered: Aug 2010
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nefferdun
Frequent Contributor (1K+ posts)
Member # 20157
posted
Look this up. I am pretty sure amantadine works on tremors. It is an anti-viral drug but is given to parkinsons patients to help with their muscle spasms.
The depression could be babesia. When you treat one infection, the others have a way of coming to the surface and taking over. Babesia is not affected by Bb drugs.
Hang in there and talk to your LLMD as soon as possible. The best source of magnesium is spinach and collard greens. Then pumpkin seeds. Nuts are good too but you would have to eat over a cup of them to get the amount you need. Magnesium citrate is more easily absorbed if you take a supplement.
Hope you feel better soon.
-------------------- old joke: idiopathic means the patient is pathological and the the doctor is an idiot Posts: 4676 | From western Montana | Registered: Apr 2009
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posted
Thank you on Lyme on the magnesium idea. My doctor put me on magnesium taurate twice a day at a high dose from the first day. The shaking has lessened in the last few weeks. I had them 3 days in a row last week when they double dosed my abx, but now it has eased.
I have no springs in my mattress, thank God, and it has a pillow top which i place a second pillow top over so my hip doesnt hurt. I will mention the magnesium issue again to him next visit.
-------------------- Diagnosed with chronic neuro lyme 12/10 after 30 years of vertigo.2 tick bites in 3 yrs from upstate NY. Was on omincef for nine mths..zith and rifampin stopped.Remission~ All the pain and symptoms are back and I am not treating now with biaxin. Posts: 788 | From New york..queens | Registered: Nov 2010
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Abxnomore
Frequent Contributor (5K+ posts)
Member # 18936
posted
IM magnesium shots really work wonders for stiffness and tremors. I know it was already mentioned above. You may want to talk to your
LLMD about them. The results far exceed oral magnesium and magnesium oil. I did them for years along with B complex and B12 in one shot along with procaine to take the sting away.
Posts: 5191 | From Lyme Zone | Registered: Jan 2009
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Abxnomore
Frequent Contributor (5K+ posts)
Member # 18936
posted
Annier, sometimes too much magnesium can give you diarrhea, too. Something to be aware of. Mag taurate is good stuff!
Posts: 5191 | From Lyme Zone | Registered: Jan 2009
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