posted
I just don't know what to do. My internal tremors are so bad right now. Last night when they woke me up for the millionth time, it felt like a jack hammer was going up and down on my chest. There was no pain, just the constant up and down tremoring feeling. For as violent as it feels to me, I can't believe nobody else notices it. It makes me feel so unbelieveably crazy.
I feel like I am just trapped in this malfunctioning body, and nothing is working. In Feb, it will be a year of treatment. 6 weeks ago, my LLMD stopped my oral antibiotics, and started IV Rocephin. Don't know if it is good or not that I just seem to have gone downhill since then.
Sorry, I know this is more of a vent then anything else, but I just don't know what to do. I am so frustrated and scared.
Posts: 20 | From MN | Registered: Jan 2010
| IP: Logged |
lyme in Putnam
Frequent Contributor (1K+ posts)
Member # 11561
posted
Rocephin is strong, give it time. Iknw you're tired of hearing that, but it did work for me three times. It's frustrating, but have patience. It's scary thinking this might be it, but it's not. You'll be ok.
-------------------- He took u to it, He'll you through Posts: 2837 | From NE. | Registered: Apr 2007
| IP: Logged |
nefferdun
Frequent Contributor (1K+ posts)
Member # 20157
posted
Bartonella causes these tremors too. It could be the rocephin is supressing the Bb allowing bart to emerge. Do you have any other symptoms that might indicate a co-infection?
If it is worse during monthly flares it probably is lyme related. I had it pretty bad but it went away with treatment.
-------------------- old joke: idiopathic means the patient is pathological and the the doctor is an idiot Posts: 4676 | From western Montana | Registered: Apr 2009
| IP: Logged |
momlyme
Frequent Contributor (1K+ posts)
Member # 27775
posted
Isn't the chest pain Babesia? That's what my son's LLMD says. My son has horrible chest pain. Like you describe, pressure, he says like someone is jumping on his heart... mepron and zith were too harsh. Made him cry all the time and sick, sick, sick.
He took a parasite cleanse and had some success... artemsinin, black walnut & clove mixture.
Switched to parastroy now. Starting slow, taking the herbs makes him really sick. (Not like the mepron) He has some cramping and doesn't feel like eating.
I took the two pills, opened them out, split the powder of each in half and filled them back up... so he takes one pill with half of each, twice a day.
Will try to build up where he can take one of each twice a day. Take it slow.
I hope you feel better.
Look up saved10's posts - also describing tremors with Rocephin... you may be able to connect and help each other.
-------------------- May health be with you!
Toxic mold was suppressing our immune systems, causing extreme pain, brain fog and magnifying symptoms. Four days after moving out, the healing began. Posts: 2007 | From NY/VT Border | Registered: Aug 2010
| IP: Logged |
Camp Other
Unregistered
posted
momlyme, I'd be thinking Babesia, too. I had a lot of chest pressure and pain before I began treatment for Babesia.
IP: Logged |
GiGi
Frequent Contributor (5K+ posts)
Member # 259
posted
Take binders. Take binders at least four times a day to capture the neurotoxins. They are the cause for the tremors/vibrations as they recirculate again and again.
"What are Neurotoxins? Neurotoxins are substances attracted to the mammalian nervous system. They are absorbed by nerve endings and travel inside the neuron to the cell body. On their way they disrupt vital functions of the nerve cell, such as axonal transport of nutrients, mitochondrial respiration and proper DNA transcription.
The body is constantly trying to eliminate neurotoxins via the available exit routes � the liver, kidney, skin and exhaled air. Detox mechanisms include acetylation, sulfation, glucuronidation, oxidation and others. The liver is most important in these processes. Here most elimination products are expelled with the bile into the small intestine and should leave the body via the digestive tract. However, because of the lipophilic/neurotropic nature of the neurotoxins, most are reabsorbed by the abundant nerve endings of the enteric nervous system (ENS) in the intestinal wall. The ENS has more neurons than the spinal chord. From the moment of mucosal uptake the toxins can potentially take 4 different paths:
Neuronal uptake and via axonal transport to the spinal chord (sympathetic neurons) or brainstem (parasympathetics) � from here back to the brain.
Venous uptake and via the portal vein back to the liver.
Lymphatic uptake and via the thoracic duct to the subclavian vein.
Uptake by bowel bacteria and tissues of the intestinal tract."
Binders are chlorella, betasitosterol, pectin, charcoal, Chitosan, Cholestyramin if tolerated, etc. Take some, alternating, half hour before meal, and at bedtime. Some may constipate, so take something against that alongside. Do it faithfully to reduce the neurotoxins and help them to exit. You will start to feel a lot better if you do.
Take care.
Google Klinghardt explaining binders. You will find more info. All is a lot easier if we understand the why's.
Posts: 9834 | From Washington State | Registered: Oct 2000
| IP: Logged |
Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- Following up on GiGi's suggestion: --------------------------
Don't let the title confuse you, this is all for lyme patients, too:
�Mercury induces inflammatory mediated release from human mast cells � J Neuroinflammation. 2010 Mar 11;7 (1):20.
Abstract BACKGROUND: Mercury is known to be neurotoxic, but its effects on the immune system are less well known. Mast cells are involved in allergic reactions, but also in innate and acquired immunity, as well as in inflammation. Many patients with Autism Spectrum Disorders (ASD) have "allergic" symptoms; moreover, the prevalence of ASD in patients with mastocytosis, characterized by numerous hyperactive mast cells in most tissues, is 10-fold higher than the general population suggesting mast cell involvement. We, therefore, investigated the effect of mercuric chloride (HgCl2) on human mast cell activation.
p. 23 CONCLUSIONS: HgCl2 stimulates VEGF and IL-6 release from human mast cells. This phenomenon could disrupt the blood-brain-barrier and permit brain inflammation. As a result, the findings of the present study provide a biological mechanism for how low levels of mercury may contribute to ASD pathogenesis.
p. 27: Myelin sheath binds heavy metals
p. 28; p. 30 Detox
computers offgas (two notes on cadmium: traffic and even organic grains)
p. 32 Detox: reducing toxic burden from vaccine adjuvants
� Never give Tylenol . . . (it reduces glutathione production and makes thimerosal more difficult to clear from the body) . . .
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/
UBBFriend: Email this page to someone!
Printer-friendly view of this topic