posted
Im asking those of you with experience, to give me your thoughts and opinions.
My LLMD believes i have a co infection, but neither of us are sure which one. i have symptoms of both, and dont know which to treat!
My main symptom is breathing trouble, much like air hunger but its constant. it doesnt stop. it does ease up a bit but it never goes away. It kind of like im breathing air thats too thin or not rich in oxygen, and sometimes its like im being squeezed and i cant breathe in all the way to save my own life, which sometimes i feel i need to.
My other symptoms are:
often a racing heart when i stand up, POTS
extremely cold hands and feet
chest pains, pressures, tightness, itching, all sorts of weird feelings in my chest.
stabbing pains in my ribs
occasionally blurry vision in my right eye, burning feeling in eyes
headaches when i wake up, that go away quickly
severe mood swings
anxiety up the butt. and severe problems falling asleep. im soo ready to sleep but my body or brain just says NOOPE. it feels like waves of the fight or flight response when i try to fall asleep. cant take it
please give me your thoughts. the only med im on is a low dose of doxy 100mg BID. i know thats like practically nothing but i see my LLMD tomorrow and im scared he will treat babs and it will turn out to be bart or ill try bart and itll be babs. i cant afford the test.
also - i NEVER sweat, and have a low body temp
I just want to be able to breath, honestly, all the other symptoms are quite tolerable but the suffocating feeling is ruining, and has ruined my life.
-------------------- A tiny bug no bigger than a pimple on your butt can change your life. Posts: 101 | From Southern NJ | Registered: Oct 2009
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lululymemom
Frequent Contributor (1K+ posts)
Member # 26405
posted
I would say definitely Babs, due to the air hunger, racing heart, POTS, Cold feet, headaches and anxiety.. but you may also have Bart because of the chest issues.. I have those myself and have Bart and Lyme.
You don't have to sweat to have Babs, not everyone gets the night sweats..
im just so eager to get rid of the air hunger, i dont want to try something and wait it out, i want to get rid of it!
-------------------- A tiny bug no bigger than a pimple on your butt can change your life. Posts: 101 | From Southern NJ | Registered: Oct 2009
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Jamers
Frequent Contributor (1K+ posts)
Member # 28016
posted
I wanted to post so I could keep up with this. I am in the same boat as you. I have the same symptoms but a negative co-infection test. My doc says it could just be the Lyme....but she's treating me for Bart. However, after seeing another post on the symptoms of Babesia they are exactly like you mentioned above and like Lu said they sound like Babs. I really wonder if I need to be treated for Babs instead. Or heck, just be treated for all of them! I'd like to know what you get treated for and how you feel.
-------------------- Diagnosed Pos. Lyme Nov. 17, 2010, Igx. Pos. Babesia Duncani March 2011, Igx. Clinical diagnosis for Bartonella Posts: 1127 | From North Carolina | Registered: Sep 2010
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posted
jadams - ill def keep you posted. do you have air hunger constantly? that was my first initial problem. breathing is such a chore for me, i am never relaxed.
if it is babs, i hope the herx doesnt make the breathing worse because id probably suffocate!
-------------------- A tiny bug no bigger than a pimple on your butt can change your life. Posts: 101 | From Southern NJ | Registered: Oct 2009
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canefan17
Frequent Contributor (5K+ posts)
Member # 22149
posted
BOTH Why do people assume it's one or the other?
Keep in mind Bartonella surfaces much more than Lyme and/or Babs.
So you may have Bart at the surface but Babs and/or Lyme right underneath it.
Lyme is the undercover FBI agent.
Bart is the idiot waving his gun in the street.
Babs is the sidekick just along for the ride.
(I'm bored this Friday night hehe)
Posts: 5394 | From Houston, Tx | Registered: Aug 2009
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MariaA
Frequent Contributor (1K+ posts)
Member # 9128
posted
I had a similar experience of not knowing whether some symptoms were bart or babesia, and one drug that seems to work for those for me is bactrim DS (Septra)- not all LLMD's agree on what coinfection it treats, but for me, it seems to help the 'whateveritis' problems.
-------------------- Symptom Free!!! Thank you all!!!!
Jamers
Frequent Contributor (1K+ posts)
Member # 28016
posted
Tobein - Sorry your air hunger is so bad. Yes, I do have air hunger constantly. I am always out of breath and feel like I can't take in enough air. I feel like a weight is on my chest.
I'm never relaxed either. I always feel extreme anxiety, and have the racing heart issues which is the worst symptom for me. Breathing, anxiety, and racing heart are the worst symptoms I have. I will let you know how I do on the Bart treatment also (pick up meds tomorrow).
-------------------- Diagnosed Pos. Lyme Nov. 17, 2010, Igx. Pos. Babesia Duncani March 2011, Igx. Clinical diagnosis for Bartonella Posts: 1127 | From North Carolina | Registered: Sep 2010
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maria - bactrim gave me a wild herx before i stopped last year, i think it might be what im going to get from my LLMD tomorrow so im sure ill be hurting.
Cane - i love the imagery. i would imagine babesia not only to be along for the ride, but be sneaking in a little extra goods for himself behind BB and Barts backs.
-------------------- A tiny bug no bigger than a pimple on your butt can change your life. Posts: 101 | From Southern NJ | Registered: Oct 2009
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jackie51
Frequent Contributor (1K+ posts)
Member # 14233
posted
I vote for Babs treatment. Though you may not be out of the woods after that.
good luck.
Posts: 1374 | From Crazy Town | Registered: Dec 2007
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nefferdun
Frequent Contributor (1K+ posts)
Member # 20157
posted
I agree you probably have it all. Babesia is very obvious.
There is controversy about which infections to treat first. Some LLMD believe you should treat lyme first and some babesia. Some try to use a combinations of drugs that attack everything at once but that can be hard on a lot of people.
Bactrim DS is supposed to be effective against bart and babesia. I used it for about 9 months and it did not take care of the babesia. I am now on Mepron.
I would suggest you attack what is bothering you the most, which is babesia.
100mg doxy is not enough to do anything so I hope the LLMD gives you a more effective treatment. Good luck.
-------------------- old joke: idiopathic means the patient is pathological and the the doctor is an idiot Posts: 4676 | From western Montana | Registered: Apr 2009
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posted
I have similar symptoms, cold feet, hands, and the feeling of not getting enough air in, sometimes its worse than others, sounds crazy but seems to get worse right after I take the doxy?? connection or not? I am going for labs on Monday for BABesia..does anyone know if it will show up or is it like the lymes test maybe maybe not? So confusing??
Posts: 6 | From nj | Registered: Jan 2011
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