posted
About to add in Flagyl (currently on Rifampin and Doxy). I am doing fine w/ the combo of Rif and Doxy but worried about being on all 3 and the little I have read on this site it sounds like a very tough drug.
Any good experiences (as good as it can be on antibiotics) and what kind of side effects did you feel?
Thanks!
Posts: 376 | From New York | Registered: Jan 2011
| IP: Logged |
posted
Well my daughter started taking it two days ago, is bed ridden with 102 fever now. I have to call the LLMD this morning to see if she's allergic to it or not.
Posts: 163 | From Central New Jersey | Registered: Jan 2010
| IP: Logged |
posted
Oh no! Sorry to hear that. If you can let me know what the dr. recommends. Hope she feels better soon.
Posts: 376 | From New York | Registered: Jan 2011
| IP: Logged |
posted
I finished 4 months on flagyl, minocycline, and biaxin.
On this regime, I had queasiness, skin flushing, overall body aching, lack of physical strength and stamina, head ache, neck ache, cognitive slowing, vision problems, skin flushing, digestive upset.
It was unpleasant for the first 10 weeks. I don't know which were side effects and which was toxic die off reaction to the dying bacteria.
But after 10 weeks, all of them eased considerably and many are completely gone now.
Flagyl has made a significant difference in the pace and degree of my recovery.
I was worried too when I started, but I also knew from the posts that I wanted to persevere if I possibly could, because it seemed to be effective for those who could tolerate it.
N Acetyl cysteine, quercetin and alpha lipoic acid helped me deal with the toxic die off.
Also I had a 2 day break every 5 days, so I could recover somewhat and get ready for the next round.
Each round got easier.
Hope it goes well for you.
Posts: 41 | From Victoria, BC Canada | Registered: Jul 2009
| IP: Logged |
posted
I didn't have a good experience, but here's my view from the other side of the fence:
Flagyl, even in a tiny dose, gave me splitting daily headaches. I started with a sliver of one tablet. Each time I increased by 1/4 tab, the headache would worsen.
More importantly than that, I noticed that my hands felt like they were falling asleep.
Over the past month, my hands have gotten to the point where they are numb, burning, tingling and stabbing. This sensation lasts for hours at a time.
I've been immersing my hands in the hottest water I could stand, to try to change the pain to anything but what it was.
I called my LLMD today and he said to stop immediately. I would've discontinued it without his blessing, though. I have too many afflictions already to try to deal with something as serious as permanent nerve damage.
I didn't realize that extended use of flagyl could cause permanent neuropathy. I know now, and I'll never take it again.
However, everyone has different experiences with it, and many have found it quite helpful.
So, I would say to just listen to your body, and be aware of what it is telling you!
God bless, Sasha
Posts: 151 | From SW US | Registered: Feb 2009
| IP: Logged |
posted
Thank you! Picked up the Flagyl tonight and think I will start it on Monday. I am really hoping to see improvement in my blood test results since overall I am feeling pretty good.
Posts: 376 | From New York | Registered: Jan 2011
| IP: Logged |
canefan17
Frequent Contributor (5K+ posts)
Member # 22149
posted
Really bad frontal headache for me on day 3 or 4.
I think flagyl hits Bart
Posts: 5394 | From Houston, Tx | Registered: Aug 2009
| IP: Logged |
bcb1200
Frequent Contributor (1K+ posts)
Member # 25745
posted
The first time I did a 3 day pulse of 1000mg I had a lot of fatigue and "hit by a truck" feeling. By my 3rd pulse it was like nothing.
I'm currently 1 week in to a 2 week pulse and so far..nothing. Cakewalk for now.
I wonder if this means lyme is not my big problem?
-------------------- Bite date ? 2/10 symptoms began 5/10 dx'd, after 3 months numerous test and doctors
IgM Igenex +/CDC + + 23/25, 30, 31, 34, 41, 83/93
Currently on:
Currently at around 95% +/- most days. Posts: 3134 | From Massachusetts | Registered: May 2010
| IP: Logged |
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/
UBBFriend: Email this page to someone!
Printer-friendly view of this topic