i have a symptom which always makes me wonder if anyone else here has it...
If i eat one meal and i don't eat for lots of hours (maybe 8-10 or more) i feel better and better. I always feel kind of healed in a strange way. This is so strange. It does not always work but... It only works if i'm not doing things which need some power...
Does my body "clean up" or what's that? If have this symptom so long... maybe since 5 or 6 years!
Posts: 159 | From Germany | Registered: Nov 2010
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posted
Yes, I have this! If I'm constantly moving at work I sometimes forget to or become to busy to snack... I never get 8-10 hours but 5 or 6 and I always feel better not eating.
Posts: 286 | From St. Louis | Registered: Dec 2009
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posted
I also have the same issue. I haven't explored it deeply, but the first thing I would attribute it to would some kind of malfunction in digestion.
Have you done any kind of yeast or fungal treatment? e.g. Nystatin, Diflucan?
Posts: 829 | From MD | Registered: Dec 2009
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posted
maybe you are eating foods that don't agree with you?
-------------------- You gain strength, courage, and confidence by every experience in which you really stop to look fear in the face. You are able to say to yourself, 'I lived through this horror. I can take the next thing that comes along.'
---Eleanor Roosevelt Posts: 748 | From somewhere | Registered: May 2010
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BoxerMom
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posted
This was true for me when my primary infection was Babesia. Like it's cousin, Malaria, Babesia gobbles up glucose, but impairs gluconeogenesis in the liver. The result is poor blood glucose control with resultant hypoglycemia.
Basically, food makes you feel like crap.
Long before my diagnosis, I figured out the hypoglycemia piece, and began a very low carb diet. This helped tremendously, but not completely.
Like all of you, on days when I skipped meals, I felt much, much better. This should not be the case with true metabolic hypoglycemia. With Babesia, it seems to starve the pathogen into submission for a few hours.
This problem resolved after intensive Babesia treatment for one year.
Now, two years later, I am relapsing for my Babesia and this symptom is back. I tolerate no carbs whatsoever, and feel better when I skip meals.
seekhelp
Frequent Contributor (5K+ posts)
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posted
Oh I think BoxerMom knows exactly what she is talking about. I have this exact issue too. I've told my wife for years if I go w/o eating I feel better. It's not hypoglycemia. It's more.
Posts: 7545 | From The 5th Dimension - The Twilight Zone | Registered: Mar 2008
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BoxerMom
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I agree that it is more complicated that pure hypoglycemia.
It's dysinsulinemia, for sure. Even low carb meals require insulin secretion. My body has no clue what to do with insulin! I think I am some weird combination of hypo and hyperglycemic. Like hypoglycemic with insulin resistance, which should not be able to co-exist.
I think the Lyme causes the insulin resistance, so those of us with the Babesia co-infection get the blood sugar double whammy.
But I also think my Babesia "comes out to play" after I feed it.
quote:I also have the same issue. I haven't explored it deeply, but the first thing I would attribute it to would some kind of malfunction in digestion.
Have you done any kind of yeast or fungal treatment? e.g. Nystatin, Diflucan?
Well i have Nystatin and Diflucan here but i'm not sure if it's yeast. I'm a bit afraid of Diflucan to be honest i don't wanna herx for days now. Maybe i'll try it next week. But i took very high doses of garlic/allicin/hh2 over a year. It shouldn't survive that? I also took GSE for some time (that stuff nearly killed me!!!)
quote:maybe you are eating foods that don't agree with you?
Again, i see no connection. There isn't much left to eat then. I have to eat... to survive!
quote:Like all of you, on days when I skipped meals, I felt much, much better. This should not be the case with true metabolic hypoglycemia. With Babesia, it seems to starve the pathogen into submission for a few hours.
I feel so much better after a few hours it's unbelieveable. It's better as any med (except Zhang's AI#3)
I start to feel more happy and i also feel less depressed and down. It's insane. Also: Big amounts of sugar, for example ice cream, all kinds of sweets etc. make me feel like crap. I avoid them since years because of that. Everytime when i ate sweets, i felt very bad. It drained my energy. That wasn't true for the past where i wasn't sick.
Why is Babesia relapsing?
My LLMD only diagnosed me for lyme. In germany, the doctors simply IGNORE the co infections. It's a shame! I think most lymies have babs and barts.
Posts: 159 | From Germany | Registered: Nov 2010
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Haley
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posted
Interesting. I am going to keep an eye on this.
Interesting point about the Babesia Boxermom.
Posts: 2232 | From USA | Registered: Aug 2009
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Remember to Smile
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Wow. BoxerMom, that's an excellent explanation of the symptoms I've experienced for decades in terms of hypoglycemia, mirth 15 min after eating, etc.
I'd already figured out hypoglycemia is a Babs symptoms, but you explained it all well! I could see numerous relatives in your descriptions, too.
I've had babesiosis since childhood. Treating now!
BoxerMom
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posted
Energyman - I don't think my relapse is anything out of the ordinary. I am still in treatment. My immune system has not fully recovered.
I treated Babs and Lyme for a full year, then switched to Bart and Lyme. After 18 months off of Babs meds, I relapsed for Babs.
It just means there were still parasites in my blood, and they reproduced enough to make my symptoms come back. Some have suggested that, like Malaria falciparum, there is an immature form (hypnozoite) that resides in the liver. This form can enter the bloodstream, reproduce, and cause relapse.
Babesia makes me feel like crap. But I don't think it will take an entire year to get my relapse under control. And I plan to treat the hynozoites this time, which I did not do before.
In Malaria, it's called "radical cure." It's Primaquine and Chloroquinine.
Some herbs treat this form, too.
I agree that most Lyme patients also have Bart and Babs.
Well, it feels like you've definitely nailed this thing down. Especially considering my other post about Babesia; I haven't done anything for it, and this explains a lot.
you wrote:
"Babesia makes me feel like crap. But I don't think it will take an entire year to get my relapse under control. And I plan to treat the hynozoites this time, which I did not do before.
In Malaria, it's called "radical cure." It's Primaquine and Chloroquinine.
Some herbs treat this form, too."
This is the first time I've heard of Hynozoites and any connection to Babesia. Just to be clear, Primaquine and Chloroquinine is the suggested treatment for the eradication of Hynozoites?
Posts: 829 | From MD | Registered: Dec 2009
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There's a scary quote from this page; "Reactivation of the hypnozoites has been reported for up to 30 years after the initial infection in humans. The factors precipating this reactivation are not known"
Posts: 829 | From MD | Registered: Dec 2009
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BoxerMom
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That's why I plan on treating them.
I don't think it's proven that Babesia has the hypnozoite form, but I've been very drug tolerant, so I plan to treat for it, just in case.
posted
Originally posted by Wolfed Out: This is the first time I've heard of Hynozoites and any connection to Babesia. ++++++++++++++++++++++
Me too! New word! I just came to shut down the 'puter, and I'm too tired to learn new things now, but I'm very grateful for these scientific leads.
I've been symptomatic with undiagnosed, repeatedly ignored babesiosis more than 40 yrs. Bartonella symptoms were diagnosed colitis around age 12, yet that yeilded no treatment or supportive therapy. Thanks, ducks.
Only two weeks of my life, in Nov while in tx with my LLMD, could I inhale a full breath that expanded my lungs completely. It was wondrous. Rare and wondrous. Those who can breathe every day have NO IDEA what a gift it is to "Take a deep breath" without pain.
I remember being tickled nearly to death as a little girl. Seriously, nearly to DEATH! Other kids thought it was so funny...
Just now I realized that since I had babesiosis even then, my desperate gasps for air came from untreated chronic infection with a protozoan. So, what others found amusing was my struggle for life internally against a hoard of red blood cell destroyers and externally with unknowing family & friends... Tickling was an assault on me. Soon only a neighbor kid a few yrs older would tickle me, and it always felt like i'd been assaulted and left for dead on the front lawn.
Sorry for the sad tale. With "the power to carry on regardless" that lies within all survivors, I taught myself not to be ticklish any more. Mind control. Later, a close friend might think I was too rigid about "No tickling" until I told how traumatized I'd been numerous times as a child.
What an eye-opener to realize that tickling a child with until they plead for mercy & air could be physical abuse to an immune-compromised person with tertiary Lyme disease and another potentially fatal illness, babesisosis.
Deep breath...
Still very glad God allows me to learn more about CLD. Hope I can use my time & talent in the future to ease the pain & suffering of others.
jackie51
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posted
Smile--I too cannot be tickled. I hate it. I was the youngest of three and was virtually tortured until I gasped for breath and cried. I'm currently being treated for Babs and I can't even remember when I felt this good, so maybe it really is/was a chronic infection since childhood.
Posts: 1374 | From Crazy Town | Registered: Dec 2007
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nefferdun
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BoxerMom, I have never heard of hynozoites either. Is this a theory you got from your LLMD or the result of your own research? When you say your are going to treat it, are you doing this yourself or do you have your LLMD in agreement with you?
Smile, I absolutely hated to be tickled too. My older sister was sadistic about it. She tortured me for her friends amusement. Once we were in a swing together. She was sitting and I was standing and forced to keep pumping the swing higher and higher (under threat of being tickled if I didn't). Finally the swing broke. I was knocked out when I hit the ground and woke up with mild amnesia. Could not remember where I lived -
I never allowed my children to tickle anyone.
I suspect I had babesia as a child but not the other infections. I believe I was infected around the age of 11. I had air hunger, no stamina and did not eat well - lost a lot of weight.
I don't experience feeling better not eating. It is important to eat carbs though as your body needs them. Complex carbs with a lot of fiber so your blood is not flooded with glucose.
-------------------- old joke: idiopathic means the patient is pathological and the the doctor is an idiot Posts: 4676 | From western Montana | Registered: Apr 2009
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BoxerMom
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posted
With my relapse, I have more symptoms that are typical of Malaria. In reading about Malaria, I learned about the hypnozoites.
quote:Originally posted by BoxerMom: This was true for me when my primary infection was Babesia. Like it's cousin, Malaria, Babesia gobbles up glucose, but impairs gluconeogenesis in the liver. The result is poor blood glucose control with resultant hypoglycemia.
Basically, food makes you feel like crap.
Great explanation. Thank you. For many, many years when I crashed I would get extreme sugar and carb cravings. The kind of cravings that would cause me to eat two boxes of cookies. However, once the crash ends, the sugar cravings end.
I now know this is from Babesia. What a revelation.
Which leads to my question: When a crash comes is there something I can do to halt the sugar cravings, in essence end the hypoglycemia?
Long term I am treating the Babesia. 1) My diet when not crashed is good. But could be better, as described here. 2) I do take Ribose, but need to take in larger doses. (raise from 5g to 15g) 3) Two antibiotics - primmaquine is one. 4) Ozone & Medsonic sound treatment
But something while in the grips of the hypoglycemia crash would be helpful.
Question 2: What else can I do to deal with the hypoglycemia from the Babesia longer term? I saw something mentioned about l-arginine and Ribose. Is it just a question of ATP/Mitochondria support?
Question 3: It has also be mentioned the the Babesia causes the muscle fatigue/cramping that makes your legs feel like logs. What is the process causing that? And what might you suggest to deal with it?
I could go on in more detail as to the supplments and meds I taking, but it is late and I'm beat. Plus it would be alot. Generally, thought, I'm taking some antioxidant support and compound hormone prescriptions for my thyroid and adrenals.
Thanks. I hope this makes sense, as I am out of energy.
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