bcb1200
Frequent Contributor (1K+ posts)
Member # 25745
posted
Wifey started Samento this week. 1 drop 2x / day on day one, 2 drops 2x on day two, etc.
Yeseterday was day 3. She threw up last night at 11 PM and felt bad / twitchy all day today.
I'm thinking herx. What do you think?
She hasn't treated lyme before. She is technically negative Igenex, but is IND in 39 and 83/93 on her IgM and IgG. We are trying some herbs.
As for symptoms, occasional still hands, achy fingers, sore feet and general fatigue. All mild but there.
-------------------- Bite date ? 2/10 symptoms began 5/10 dx'd, after 3 months numerous test and doctors
IgM Igenex +/CDC + + 23/25, 30, 31, 34, 41, 83/93
Currently on:
Currently at around 95% +/- most days. Posts: 3139 | From Massachusetts | Registered: May 2010
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joalo
Frequent Contributor (1K+ posts)
Member # 12752
posted
Up.
-------------------- Sick since January 1985. Misdiagnosed for 20 years. Tested CDC positive October 2005. Treating since April 2006. Posts: 3228 | From Somewhere west of the Mississippi | Registered: Aug 2007
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posted
I started Samento at 1 drop diluted in 6oz. of water, and I had the hardest herx I've had through my entire treatment. Harder than any antibiotic I've treated with.
Within a few hours, I had a complete loss of perception to reality; some kind of severe mood change and felt really angry. It felt like I was hallucinating. I was cold, trembling all over, hands shaking.
It was a year ago, so that's all I can recall. I have not tried it again. From my experience, I think your wife could have easily herxed very hard on that stuff. Again, I did off 1 drop.
Posts: 829 | From MD | Registered: Dec 2009
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tick battler
Frequent Contributor (1K+ posts)
Member # 21113
posted
Yes, probably a herx. You are ramping up a bit too fast I think. You might try 1 drop in am and 2 in pm...then move to 2 in am and 2 in pm if she can tolerate the lower dose. Some have to stay on one drop for a while...
My practitioner feels lyme can be eradicated on only 10 drops twice daily...that is our protocol, along with cumanda, burbur and GSE. It seems to be working.
tickbattler
Posts: 1763 | From Malvern, PA | Registered: Jul 2009
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posted
If you have issues with drugs in the Levaquin class you may have issues with Samento. Levaquin makes me paranoid it has once as did avelox. I will not try Samento.
Posts: 239 | From NC | Registered: Aug 2010
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- When it first came out years ago, I started Samento, just ONE drop a DAY for at least a week was a really rough ride. I did not have the same symptoms as your wife but was clearly clobbered big time by just one drop. I also had several such "first attempts" and they were all rough.
It did ease off - as I went to just one drop a day with gradual increase as described below. After a while, even the full dose was just fine with no reactions.
So, your wife might want to back off of it and wait a day or two - in case it's the flu or some other variable sparking the symptoms. Whatever she is doing for liver, kidney and adrenal support, all those are important to continue.
Then restart even Samento more slowly. I would not suggest starting with a dose higher than once a day. Then waituntil that reaction has leveled off before increasing by just one more drop a day until that leveled off, and on and on.
Be sure to put the ONE drop in at least 1/2 glass of water and then follow with more water or soothing tea afterward.
At first, she may want to not do this on a totally empty stomach. Even on drop could affect blood sugar and cause a drop. So, it would be best, perhaps, not too far away from some food until this gets evened out.
I did MUCH better with the full (original) cat's claw WITH the TOA in it as TOAs serve very well to soothe the nervous system, in my experience and then later confirmed by detail in Buhner's book "Healing Lyme".
You said she has "twitchy" stuff going on. Adrenal support - fish oil - magnesium are usually very helpful with that. And the original cat's claw, or milky oat seed extract always calmed down my overly stimulated system(s). -
[ 01-27-2011, 01:16 PM: Message edited by: Keebler ]
Posts: 48021 | From Tree House | Registered: Jul 2007
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posted
I'm so glad im reading this thread, my doc put me on six drops dilluted in water, to start. I havent gotten it yet. My friend warned me she thought that was way too much. I think im going to start out with one drop and work up from there. wow.
-------------------- Psalm 119:50 My comfort in my suffering is this: Your promise preserves my life. Posts: 292 | From Heaven | Registered: Jan 2011
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- It's always good to start ANY tincture with just ONE drop in at least 1/2 glass of water and then have more clean liquid to follow.
With supplement capsules, always start with just one.
Also, even if a supplement says it's best on an empty stomach, for the first few times, I think it's best to not be too far away from having just had a snack or a meal. This is because even the tiny amount of alcohol can drastically send some people on a blood glucose cannon shoot and then a hard thump to the ground. Nuts are good as a snack, with protein and good fats to balance blood glucose.
Some of the plant properties themselves affect blood sugar (most would help to lower) and, again, you just don't want that happening if your blood sugar may already be dipping (as it often does for lyme patients). -
Posts: 48021 | From Tree House | Registered: Jul 2007
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- Near the end of this thread, are various links to things like "The Language of Herbs" or "How Herbs Work" -- it goes into greater detail. Most of the earlier posted lyme links are, well, geared to lyme.
There are also links for how to support the body through a herxheimer reaction. I hope your wife has a plan for that as Samento does cause a herx, for sure.
But, further down are many general links that are obviously just about supplements, in general. ------------
Topic: How to find an ILADS-educated lyme literate (LL) professionals in these areas:
Naturopathic doctor (ND); Acupuncturist (L. Ac.), a doctor of Oriental Medicine (O.M.D.), or a doctor of Ayurvedic Medicine (D.Ay.), certified herbalists or nutritionists, . . . .
�� Includes many professional links, articles and books on complementary / integrative methods - & RIFE links -- all by LL authors.
Also included are basic links explaining the principles of herbal medicine. -
Posts: 48021 | From Tree House | Registered: Jul 2007
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posted
I've had horrible migraines surface after doing only one drop a day for 3 days. I've tried Samento three times, and I just can't seem to handle it. The second time I was up to 3 drops, so I thought I had just ramped it up too much. But on only one drop per day I was in such pain...
Thanks Keebler for the tip on the blood sugar dip, that could be happening to me too.
Posts: 31 | From Southwestern Ohio | Registered: Feb 2010
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posted
I am using both Samento and Banderol for over a week now and started out with one drop for a few days, then two for a few days and then up to three.
I stopped both yesterday because I was experiencing frequent all day gas several days in a row.
I have had no gas today, so I am blaming one of them for it.
I was afraid I'd have some awful reaction, but other than the gas all is good.
I take each twice a day.
First round (Banderol) as soon as I get up on an empty stomach with the drops in 4 oz. of water.
I wait half hour and take the other (Samento).
I take the second round around 7pm instead of right before bed.
I made the mistake of doing that and had to get up for many hours peeing.
Posts: 412 | From Virginia | Registered: Sep 2010
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