Ann-OH
Frequent Contributor (5K+ posts)
Member # 2020
posted
Hi everybody, If you have the time and energy and know of a good doctor or doctors in your area who are good at treating Lyme disease and related diseases,
scroll to the bottom of this page and get yourself over to "Seeking a Doctor" and answer some appeals by neighbors who are there seeking your help.
It is so easy to send someone a private message there by clicking on the little envelope at the top of their post.
You can't imagine how good it will make you feel! Ann - OH
Abxnomore
Frequent Contributor (5K+ posts)
Member # 18936
posted
Agreed. I will try to help out but every member should make a habit of going to "seeking a doctor" each time they log on to help those in desperate need.
Surely if you have a good LLMD you can answer and help those who are seeking help in your geographic area.
Thanks Posts: 5191 | From Lyme Zone | Registered: Jan 2009
| IP: Logged |
Someone needs help for NC right now. I don't have that information myself.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96223 | From Texas | Registered: Feb 2001
| IP: Logged |
Abxnomore
Frequent Contributor (5K+ posts)
Member # 18936
posted
Yes, that's what I mean..... every day as often as you can! Many pleas for help are going unanswered or not answered timely because there are not enough people to help out.
Let's make this a priority and a community effort.
Posts: 5191 | From Lyme Zone | Registered: Jan 2009
| IP: Logged |
posted
OH.. you posted while I was posting.. I didn't even see yours!! ( I was referring to what Ann said. )
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96223 | From Texas | Registered: Feb 2001
| IP: Logged |
Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- Even if you don't know of specific LLMDs, you might post some links to get them on their way.
Please copy and paste these links to your computer file for easy access and - please also feel free to copy and paste for a reply exactly as is - or however you wish to alter or with additional links:
==================================
I hope you get some good specific suggestions, in the meantime, these links may help guide your search: -------------
TURN THE CORNER is dedicated to the support of research, education, awareness and innovative treatments for Lyme disease and other tick-borne diseases.
When you get a doctor's name, be sure to check about their being what we call ILADS-educated or ILADS-minded. Talk to your local support groups, call the doctor's office and talk with the office manager about the doctor's affiliations and experience so that you might find a "good fit" for your particular case.
ILADS - INTERNATIONAL LYME & ASSOCIATED DISEASES SOCIETY
======================== ========================
If you see someone request a certain state, you might add a state group from below - or do a search for them to find their state "Lyme Disease Association" or similar group - but check out that state's site to be sure they are ILADS-minded.
California - Lyme Disease Association (CALDA) is a non-profit corporation acting as the central voice for all tick-borne disease issues. An excellent website for anyone in any state.
posted
or you can just stop in and welcome them to Lymenet!! That would be nice too!!
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96223 | From Texas | Registered: Feb 2001
| IP: Logged |
Abxnomore
Frequent Contributor (5K+ posts)
Member # 18936
posted
Up.....Please be sure to take a look in the "Seeking a Doctor" section to see if you could offer your help.
Let's all help out!
Posts: 5191 | From Lyme Zone | Registered: Jan 2009
| IP: Logged |
Abxnomore
Frequent Contributor (5K+ posts)
Member # 18936
posted
Sending this back up for those just checking in today.
Posts: 5191 | From Lyme Zone | Registered: Jan 2009
| IP: Logged |
Abxnomore
Frequent Contributor (5K+ posts)
Member # 18936
posted
Back up for those who haven't seen this.
We need everyone's help in "seeking a doctor". Please check in that section and help out where you can.
Posts: 5191 | From Lyme Zone | Registered: Jan 2009
| IP: Logged |
Ann-OH
Frequent Contributor (5K+ posts)
Member # 2020
posted
Hey, I am very moved that people responded to this post!
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96223 | From Texas | Registered: Feb 2001
| IP: Logged |
Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- I'm offering help but I've been told (by someone else) that I am no longer permitted to post links in "Seeking" other than the Newbie or Quick Links and ONE other.
Ann-OH,
You asked for help with this thread.
What did you have in mind by "help" ? Guess it would help to clarify. No educational links? No answers specific questions?
[ 02-14-2011, 10:43 PM: Message edited by: Keebler ]
Posts: 48021 | From Tree House | Registered: Jul 2007
| IP: Logged |
posted
Keebler, because your information is so helpful, we were wanting you to look at the stickies at the top of the seeking a doctor forum and give us ideas on how to make them more helpful to newbies.
That way in your posts in seeking a doctor, you can link to the thread at the top of the forum so that you don't have to post all that information in every thread there.
It will be easier for you. And it will be easier for anyone reading that forum if they don't have to read through all that valuable, but lengthy information.
This is supposed to be a positive suggestion for all involved. Your information is so helpful that we'd like it at the top. It's more generalized information, so doesn't need to be in specific threads. This suggestion isn't meant to take away the value of the information you provide. If anything, it points out how valuable it is.
-------------------- sixgoofykids.blogspot.com Posts: 13449 | From Ohio | Registered: Feb 2007
| IP: Logged |
posted
And in answer to your question of what type of help is needed. We need everyone seeing an LLMD to go there daily and take a look to see if anyone near you is asking for information.
You can send that person by PM (and make note in the thread that a pm was sent) information regarding your doctor and any other doctor in the area you've seen.
If everyone looked there once a day for fewer than five minutes, newbies would have the best information on specific LLMD's possible.
So, in the individual threads, specific information about LLMD's would be given (by PM, of course). And at the top, general information would be available.
-------------------- sixgoofykids.blogspot.com Posts: 13449 | From Ohio | Registered: Feb 2007
| IP: Logged |
Abxnomore
Frequent Contributor (5K+ posts)
Member # 18936
posted
I'd like to ask all of our members to please stop by "Seeking a Doctor" as often as you can to respond to those who are requesting help finding an LLMD.
They need your first- hand experiences with LLMD's, especially the LLMD's who are helping you the most.
Your experiences and help will far outweigh, as valuable as they are, receiving an LLMD list for a particular state.
Let's try to make this a real community effort but getting everyone involved in reaching out to those who need our help.
Thanking everyone in advance for your help and support. Posts: 5191 | From Lyme Zone | Registered: Jan 2009
| IP: Logged |
posted
Need info on NJ, NY, GA, MD and IN doctors right now.
I can share some info on drs in IN and MD. Anybody else have info on the others?
Also .. an NJ pedi
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96223 | From Texas | Registered: Feb 2001
| IP: Logged |
Abxnomore
Frequent Contributor (5K+ posts)
Member # 18936
posted
Please check in at "Seeking a Doctor" today and help out if you can.
"I'd like to ask all of our members to please stop by "Seeking a Doctor" as often as you can to respond to those who are requesting help finding an LLMD.
They need your first- hand experiences with LLMD's, especially the LLMD's who are helping you the most.
Your experiences and help will far outweigh, as valuable as they are, receiving an LLMD list for a particular state.
Let's try to make this a real community effort but getting everyone involved in reaching out to those who need our help.
Thanking everyone in advance for your help and support." Posts: 5191 | From Lyme Zone | Registered: Jan 2009
| IP: Logged |
Abxnomore
Frequent Contributor (5K+ posts)
Member # 18936
posted
Any Floridians who can help out in "seeking" and help with LL neuro in NJ.
Please assist if you can.
Posts: 5191 | From Lyme Zone | Registered: Jan 2009
| IP: Logged |
posted
The lady with the screen name "Siciliano" used to answer a lot of those. Is she still around? She's a great lady and I hope that she has gotten well and has less time to sit around in front of the computer than before.
-------------------- -chaps �Listen to the bell, Borrelia. It tolls for thee!� Posts: 631 | From A little place called, "we'll see." | Registered: Apr 2010
| IP: Logged |
Abxnomore
Frequent Contributor (5K+ posts)
Member # 18936
posted
No, she has taken a break since before the holidays. She did it relentlessly for well over a year and a half.
We need all members to be active in "Seeking a Doctor". Lists do not replace first-hand experience with an LLMD. Certainly, most of you can offer some of your experiences with the LLMD's you have seen.
I'll be keeping this post constantly at the top.
Please go daily and check in and help where you can. There's not enough people currently to help and we need everyone's help on a steady basis.
Posts: 5191 | From Lyme Zone | Registered: Jan 2009
| IP: Logged |
posted
I will do what you suggest. No sure how much help I can be since I only know one in New York and one in arizona but I will let them know and help you out..
-------------------- Diagnosed with chronic neuro lyme 12/10 after 30 years of vertigo.2 tick bites in 3 yrs from upstate NY. Was on omincef for nine mths..zith and rifampin stopped.Remission~ All the pain and symptoms are back and I am not treating now with biaxin. Posts: 788 | From New york..queens | Registered: Nov 2010
| IP: Logged |
posted
Annier, most of us only know one or two, that's exactly what we need!!! If everyone did that, we'd have them all covered!
-------------------- sixgoofykids.blogspot.com Posts: 13449 | From Ohio | Registered: Feb 2007
| IP: Logged |
Abxnomore
Frequent Contributor (5K+ posts)
Member # 18936
posted
Excellent point! If everyone got involved and merely PMed their current LLMD, assuming they were happy with him or her, then everyone would be getting first-hand information and requests would get answered more timely.
That's not to say that the folks in "seeking" do not do a great job, but a list is a list. A PM from someone actually seeing a particular LLMD is entirely different.
In that way between lists and personal accounts directly from members they will have more information to make choices and hopefully avoid wasting time with the wrong doctor as so many of us have done
Posts: 5191 | From Lyme Zone | Registered: Jan 2009
| IP: Logged |
quote:Originally posted by sixgoofykids: Annier, most of us only know one or two, that's exactly what we need!!! If everyone did that, we'd have them all covered!
absolutely what we want/need!
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96223 | From Texas | Registered: Feb 2001
| IP: Logged |
In that way between lists and personal accounts directly from members they will have more information to make choices and hopefully avoid wasting time with the wrong doctor as so many of us have done
That would be so great if we could keep people from ending up in the office of a dr who is not that effective.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96223 | From Texas | Registered: Feb 2001
| IP: Logged |
Abxnomore
Frequent Contributor (5K+ posts)
Member # 18936
posted
Please check in at "Seeking a Doctor" today and help out if and where you can. Posts: 5191 | From Lyme Zone | Registered: Jan 2009
| IP: Logged |
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96223 | From Texas | Registered: Feb 2001
| IP: Logged |
Abxnomore
Frequent Contributor (5K+ posts)
Member # 18936
posted
Back up!
Please check in at "Seeking a Doctor" today and help out if and where you can.Posts: 5191 | From Lyme Zone | Registered: Jan 2009
| IP: Logged |
Abxnomore
Frequent Contributor (5K+ posts)
Member # 18936
posted
Help needed!
Unanswered posts for:
UK, ID, OR, FL, TX, VA, CO, SC and Dr. R/NYC feedback.
Those of you who live in these states, please stop by "Seeking a Doctor" and share your experiences please. Let's all work together as one community. Posts: 5191 | From Lyme Zone | Registered: Jan 2009
| IP: Logged |
feelfit
Frequent Contributor (1K+ posts)
Member # 12770
posted
Took care of the Florida person.
Posts: 3975 | From usa | Registered: Aug 2007
| IP: Logged |
Abxnomore
Frequent Contributor (5K+ posts)
Member # 18936
posted
Great! and thank you.
Still needing your help in "Seeking a Doctor:
CT, ME, UK, ID, OR, TX, VA, CO, SC and Dr. R/NYC feedback.
Posts: 5191 | From Lyme Zone | Registered: Jan 2009
| IP: Logged |
Abxnomore
Frequent Contributor (5K+ posts)
Member # 18936
posted
Back up again. Thanks to those who helped out.
Please keep checking as new posts come in continuously.
Posts: 5191 | From Lyme Zone | Registered: Jan 2009
| IP: Logged |
littlebit27
Frequent Contributor (1K+ posts)
Member # 24477
posted
I have been trying to keep up with all the lists. I kinda got thrown into this by myself. I was only meant to help.
I am doing my best to get to the lists ASAP. I'm sorry for those who feel like I am not getting to it fast enough or whatever.
Nothing can replace first hand experience with a specific doctor though. I've had many people ask me about specific doctors and I can't answer them because I have no personal experience with them.
momlyme
Frequent Contributor (1K+ posts)
Member # 27775
posted
I think you do an awesome job littlebit!
Thank you... hope you and your family is all done with the flu!
-------------------- May health be with you!
Toxic mold was suppressing our immune systems, causing extreme pain, brain fog and magnifying symptoms. Four days after moving out, the healing began. Posts: 2007 | From NY/VT Border | Registered: Aug 2010
| IP: Logged |
posted
If someone could send me an updated list for the Northern Virginia, DC, Maryland metro area, I could watch out for those posts, and send out PMs.
When I first came here, someone sent me a PM with names of doctors, cities, phone numbers. I included lots of comments about the specific doctors. If anyone can PM me about DC metro area experiences, I would be happy to put it all together and use it to reply to seekers.
-------------------- Son, 26, Dx Lyme 4/10, Babs 8/10 Had serious arthritis, all gone. Currently on Valtrex Daughter, 26,bullseye 7/11 arthritis in knees, cured and off all meds. . Self:Lyme, bart, sxs gone, no longer treating. Posts: 496 | From Washington, DC | Registered: Jul 2010
| IP: Logged |
Abxnomore
Frequent Contributor (5K+ posts)
Member # 18936
posted
Mary, I sent you a PM.
Posts: 5191 | From Lyme Zone | Registered: Jan 2009
| IP: Logged |
Abxnomore
Frequent Contributor (5K+ posts)
Member # 18936
posted
Please check in at "Seeking a Doctor" today and help out if you can.
I'd like to ask all of our members to please stop by "Seeking a Doctor" as often as you can to respond to those who are requesting help finding an LLMD.
Littlebit needs your help, too.
"I have been trying to keep up with all the lists. I kinda got thrown into this by myself. I was only meant to help. I am doing my best to get to the lists ASAP. I'm sorry for those who feel like I am not getting to it fast enough or whatever. Nothing can replace first hand experience with a specific doctor though. I've had many people ask me about specific doctors and I can't answer them because I have no personal experience with them."
Every, please participate in "Seeking a Doctor" and help out by sharing your first-hand experiences. New posts come in continuously throughout the day.
This needs to be a group effort. Posts: 5191 | From Lyme Zone | Registered: Jan 2009
| IP: Logged |
posted
Abx, I like your name. Are you in remission?
I'm newly diagnosed.
HH
-------------------- I'm glad to know I'm not alone Some peace of mind I somehow find Through folks like you with Lyme! Posts: 240 | From An infected state | Registered: Jan 2011
| IP: Logged |
Abxnomore
Frequent Contributor (5K+ posts)
Member # 18936
posted
Yes, for many years.
You are in the right place.
Posts: 5191 | From Lyme Zone | Registered: Jan 2009
| IP: Logged |
Abxnomore
Frequent Contributor (5K+ posts)
Member # 18936
posted
Please stop by "Seeking a Doctor" EVERY day and help out where you can.
Littlebit needs your help, too.
"I have been trying to keep up with all the lists. I kinda got thrown into this by myself. I was only meant to help. I am doing my best to get to the lists ASAP. I'm sorry for those who feel like I am not getting to it fast enough or whatever. Nothing can replace first hand experience with a specific doctor though. I've had many people ask me about specific doctors and I can't answer them because I have no personal experience with them."
Every one, please participate in "Seeking a Doctor" daily and help out by sharing your first-hand experiences.
New posts come in continuously throughout the day and there are many each day. Many requests have very specific needs that a list cannot address, only first-hand knowledge.
Let's all pitch in and make participating in "Seeking a Doctor" a true group/community effort. Posts: 5191 | From Lyme Zone | Registered: Jan 2009
| IP: Logged |
Need feedback on Dr. J. in PA. Got anything. I have a friend who thinks he's good. This friend, however, was very chronic lyme when he first saw Dr. J.
Thx.
-------------------- I'm glad to know I'm not alone Some peace of mind I somehow find Through folks like you with Lyme! Posts: 240 | From An infected state | Registered: Jan 2011
| IP: Logged |
quote:Originally posted by littlebit27: I have been trying to keep up with all the lists. I kinda got thrown into this by myself. I was only meant to help.
I am doing my best to get to the lists ASAP. I'm sorry for those who feel like I am not getting to it fast enough or whatever.
Nothing can replace first hand experience with a specific doctor though. I've had many people ask me about specific doctors and I can't answer them because I have no personal experience with them.
You are doing a great job, littlebit! We appreciate what you are doing! We're hoping everyone will begin helping out now!
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96223 | From Texas | Registered: Feb 2001
| IP: Logged |
lou4656
Frequent Contributor (1K+ posts)
Member # 10300
posted
Mary - Sending you a PM. Haven't been here in awhile. I'll help with the MD/DC/VA lists.
Hope everyone is doing well. LouLou
-------------------- LouLou Posts: 1276 | From maryland | Registered: Oct 2006
| IP: Logged |
posted
Hey LouLou!! Good to see you again! Thanks for helping out!
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96223 | From Texas | Registered: Feb 2001
| IP: Logged |
lou4656
Frequent Contributor (1K+ posts)
Member # 10300
posted
Good to be here. Just so very busy -- still working several jobs. I've been away from Lymenet for awhile, but I am willing to help where and when I can.
Will be away from a computer for the next week. Going hiking.
Hugs to you, TuTu!!
-------------------- LouLou Posts: 1276 | From maryland | Registered: Oct 2006
| IP: Logged |
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/
UBBFriend: Email this page to someone!
![[Smile]](smile.gif)
![[Razz]](tongue.gif)
( I was referring to what Ann said. )
![[group hug]](graemlins/grouphug.gif)
![[Cool]](cool.gif)
![[bow]](graemlins/bow.gif)
![[hi]](graemlins/hi.gif)
![[confused]](graemlins/confused.gif)
Printer-friendly view of this topic