posted
With NeuroLyme and likely Bartonella, any chance an MRI of brain would show lesions or anything while being on doxy for 2.5 months? Don't have results yet. But I read things that say MRI won't show a thing if you have Lyme, and others say it will show white spots??
Thanks,
Beagle
Posts: 348 | From MA | Registered: Dec 2010
| IP: Logged |
Hambone
Frequent Contributor (1K+ posts)
Member # 29535
posted
I had white spots. They were dismissed as being nothing of importance.
This was 4 years before I was diagnosed with Lyme.
Posts: 1142 | From South | Registered: Dec 2010
| IP: Logged |
posted
Steven, are you being treated now? LLMD? or regular doc?
Beagle
Posts: 348 | From MA | Registered: Dec 2010
| IP: Logged |
Hambone
Frequent Contributor (1K+ posts)
Member # 29535
posted
quote:Originally posted by Beagle: OMG, Hambone! Dismissed as being unimportant?? you must have had symptoms that brought you to have the MRI....what did they say about that?
were you sick during the 4 yrs before diagnosed with lyme? this is horrible.
Beagle
I was very sick. Could not function. Anxiety out the wazoo. Head pressure/burning/pain.
It was discovered on a CT scan in the ER, and I was sent for an MRI follow up the next day.
The white spots were on the MRI, too, but it was dismissed by the doctor as "either an old migraine or simply from age". I'd never had a migraine or any headache in my life up until this point.
I had zero inclination at that time that this was due to Lyme. None. Lyme wasn't on my radar because I'd been told via a doctor who used a crappy CDC western blot that I didn't have it.
A year or so later, I got copies of the actual MRI films and my sister took them to her brother in law, who is a radiologist, to look at and get his opinion. He said, "Maybe MS if she's symptomatic". So I took that info back to my reg doc and he QUICKLY dismissed MS.
So I just put it out of my mind and chalked it up to "age" and that it had nothing to do with why I was sick.
I was ****ED when I later found out that Lyme can cause these white spots and it was ignored.
The ignorance in the medical community is frightening.
Posts: 1142 | From South | Registered: Dec 2010
| IP: Logged |
bcb1200
Frequent Contributor (1K+ posts)
Member # 25745
posted
Beagle:
I had two small spots on my pre lyme diagnosis MRI. I also had suggestions of some atrophy in my parietal lobes.
After 9 months of lyme treatment, my brain MRI is now NORMAL! My spect is still abnormal, but is improved.
I have contact info for the only lyme literate Neurologist in Massachusetts if you are intersted...AND she takes insurance!
-------------------- Bite date ? 2/10 symptoms began 5/10 dx'd, after 3 months numerous test and doctors
IgM Igenex +/CDC + + 23/25, 30, 31, 34, 41, 83/93
Currently on:
Currently at around 95% +/- most days. Posts: 3134 | From Massachusetts | Registered: May 2010
| IP: Logged |
posted
My MRI and MRA were perfectly normal. My SPECT scan, however, showed areas of reduced blood flow. And my neuro symptoms are severe...absence and partial seizures, ever-worsening OCD, etc...
I actually ran out of hot water today OCD-rinsing a lampshade, so it's pretty bad. And my house is a dirtier than most 'normal' people's, even though I spend hours upon hours cleaning every day.
-------------------- Urge Congress on EMF Safety, FCC Must Change Exposure Guidelines for Microwave Radiation Exposure: http://tinyurl.com/2cjq54y Halt Universal Broadband, A Public Health Hazard: http://tinyurl.com/3x7xrmq Posts: 495 | From USA | Registered: Mar 2010
| IP: Logged |
seekhelp
Frequent Contributor (5K+ posts)
Member # 15067
posted
Elizza, have you ever taken any meds for the OCD? I'm not sure which ones may help, but perhaps it may?? Any symptom relief is welcomed with these TBI messes. Posts: 7545 | From The 5th Dimension - The Twilight Zone | Registered: Mar 2008
| IP: Logged |
posted
my mri has mulitple signal intensities and many many white areas before I even saw my LLMD. THis is what he used to clinically diagnose me with neuro lyme. The results of the MRI state vasculitis, possible MS or LYME
-------------------- Diagnosed with chronic neuro lyme 12/10 after 30 years of vertigo.2 tick bites in 3 yrs from upstate NY. Was on omincef for nine mths..zith and rifampin stopped.Remission~ All the pain and symptoms are back and I am not treating now with biaxin. Posts: 788 | From New york..queens | Registered: Nov 2010
| IP: Logged |
bcb1200
Frequent Contributor (1K+ posts)
Member # 25745
posted
Just so everyone is aware, according to my lyme Neuro...the spect changes first. Blood flow is restricted and there is inflammation in the brian. This is picked up on a SPECT scan
If this occurs over a period of time, the brain's structure will physically change due to the long term inflammation and lack of blood flow. This is picked up on the MRI.
So..you can have cognitive issues and if they are early enough the MRI will still be normal. If you have had them for a while, the MRI may start to change.
-------------------- Bite date ? 2/10 symptoms began 5/10 dx'd, after 3 months numerous test and doctors
IgM Igenex +/CDC + + 23/25, 30, 31, 34, 41, 83/93
Currently on:
Currently at around 95% +/- most days. Posts: 3134 | From Massachusetts | Registered: May 2010
| IP: Logged |
posted
In 1998, I had white lesions in my brain, which were diagnosed as "probable MS."
I still have the white lesions, and I KNOW I have Lyme. Which, in my opinion, caused the MS.
So yes, Lyme/Bart, etc., can show white lesions in the brain.
-------------------- dx: MS in 1998 2007 - Lyme suspected 2009 - Positive Lyme, MS worse. Now: Copaxone shots for MS gall bladder out 7/09 Ceftin, Zith, Septra LDN Acyclovir Monolaurin, DHEA, Pregnonelon, Curcumin Posts: 243 | From New Mexico | Registered: Feb 2007
| IP: Logged |
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/
UBBFriend: Email this page to someone!
![[Frown]](frown.gif)
Printer-friendly view of this topic