fflutterby
Frequent Contributor (1K+ posts)
Member # 28081
posted
I'm struggling with 3o hours too. I don't stop from 6 am to 10:30pm, housework, homework, activities. I need my stamina back !!! Lyme is too expensive not to work though. I feel better mentally now that I am back to work, really. Less time to dwell on it.
-------------------- Psalm 46 1 God is our refuge and strength Posts: 1367 | From North Jersey | Registered: Sep 2010
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posted
yea i suppose keeping busy doesn't allow you to dwell. but i got kind of obsessed with keeping a schedule and doing things the "right" way.
which includes EATING EXERCISE AND SLEEPING! AHH! I barely find time to make my meals, thank God for my family who is sensitive to what I can have and can't have.
OR..maybe if we tell ourselves it's super easy to get well again...it will be.
And maybe it's ok to not talk to many friends. I've always been a bit private, but now it's like there is a fortress around me. self built, for my protection and 'theirs'!
I just can't handle taking on conversations with people outside of work and my family. Work and getting better takes all my energy.
posted
I have this. It has taken me 8 months to be able to somewhat tolerate a massage and my therapist has to be very gentle. She does no deep tissue, I would not be able to handle it.
In the beginning I would feel horrible for 4 days afterward with a major increase in symptoms. Don't know if it is a herx or what to call it. But I do feel in the long run it will be helpful. I think it happens for the same reason we cannot tolerate exercise.
I go every 1-2 weeks. Hope you feel better.
Posts: 199 | From Niagara Falls | Registered: Dec 2009
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sixgoofykids
Honored Contributor (10K+ posts)
Member # 11141
posted
Some believe deep tissue is bad for Lyme patients. You might read about it to determine if that's the right type of massage for you. Stephen Buhner, author of Healing Lyme believes Swedish massage is right for Lyme patients. My massage therapist is also trained in lymphatic drainage and other techniques.
Second, massage releases a lot of toxins, so yes, it feels like a herx. We throw around the word herx to describe anything that increases symptoms. It's not quite accurate.
Be sure to drink lots of water to flush out all that massage stirs up.
-------------------- sixgoofykids.blogspot.com Posts: 13449 | From Ohio | Registered: Feb 2007
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posted
It may be from a clogged lymphatic system and that iswhy epsom salt baths help... SO keep detoxing and exrcicing, moving, drinking water, it should be helpful...
Posts: 723 | From Montreal | Registered: Oct 2010
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posted
i agreee it is a herx. i get massages regularly and it helps clear up a lot of fog. if i could afford it i would do it at least two times a week.
best thing to do is drink a lot of fluids following massage.
Posts: 107 | From new jersey | Registered: Dec 2009
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posted
i always drink alot of fluids after a massage and I even treat myself with the Lymphstar (helps liquefy clogged lymph)
I can handle a LOT of pressure during the massage. IN fact, its the only way to get my rock like muscles to release. but i pay for it later that's for sure.
posted
Mine feels great while I get it too, Have had deep tissue and also could handle it during, it is after that is torture. I guess its up to you if the aftermath is worth it.
Posts: 199 | From Niagara Falls | Registered: Dec 2009
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posted
Mine feels great while I get it too, Have had deep tissue and also could handle it during, it is after that is torture. I guess its up to you if the aftermath is worth it.
Posts: 199 | From Niagara Falls | Registered: Dec 2009
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posted
Mine feels great while I get it too, Have had deep tissue and also could handle it during, it is after that is torture. I guess its up to you if the aftermath is worth it.
Posts: 199 | From Niagara Falls | Registered: Dec 2009
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posted
yea definitely ...starting to feel like it's not worth the aftermath. but man, how else can we get our muscles to unlock? I'm 26, I should NOT be feeling like my bones are surrounded by cement! (none of use should feel like this)
posted
fryecracker, you're only 26!!! I'm 30 and feel this muscle tightness everywhere, but again, I'm pretty sure that us, women, suffer from that tension more than men... any chance you maye have endometriosis or some hormone imbalance?
Posts: 723 | From Montreal | Registered: Oct 2010
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posted
Definitely have hormone imbalance. Getting a consult from a neurologist, hoping the extensive blood work will offer more explanation. I don't think this is all Lyme/Babs/Bart. I know these can cause issues like this, but i just have a feeling there is some auto-immune disorder of some kind going on.
posted
I was told by several neurologists that didn't know much about lyme that it was autoimmune.
If i listened to them and didn't get on iv antibiotics, I would have been dead back in 1998.
Posts: 107 | From new jersey | Registered: Dec 2009
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