posted
OMG lyme and six...three and four years of this? How did you tolerate it?
I will never get back to work. Been out nine months almost now and they will not hold me spot for that long a time. How did you work with this disease?
Did you get well enought to function sooner than 3 years? If I could get 70% back so I could live again I would be happy, but how long will that take?
I am now so depressed!!!
-------------------- Diagnosed with chronic neuro lyme 12/10 after 30 years of vertigo.2 tick bites in 3 yrs from upstate NY. Was on omincef for nine mths..zith and rifampin stopped.Remission~ All the pain and symptoms are back and I am not treating now with biaxin. Posts: 788 | From New york..queens | Registered: Nov 2010
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posted
I work full time right now and take a grad course ... but things are going downhill. I take about 25% longer to complete normal tasks. I have to work in chunks to dodge the worst of the neuro symptoms and sometimes in the dark. I can't stand the thought of going on disability and pray it doesn't come to that. The stories of people getting sicker when they start antibiotics terrify me. I can still walk and lightly exercise if I really force myself.
Piotr, to your original question--I am still waiting for test results and not officially diagnosed but my LLMD/ND thinks I have lyme (just a disclaimer). However, my cousin had lyme with the bullseye right away and everything. I just called her last week to ask about it. This was 20 years ago and doctors passed her around for nearly two years, even living in an endemic area. Several tested her for lyme but since it kept coming up negative they wouldn't treat. She was bedridden, on disability, and living back with her parents by the time she got her diagnosis. She was put on IV for 3 months, then another year of orals. She also saw an ND for herbal supplements. She said she began to feel better quickly but to this day has some trouble with memory and learning new information. However, she works in a high-stress, physically active job now and believes the disease is eradicated.
Her story gives me hope, but there are significant differences from my own. So I guess everyone's different is the bottom line.
-------------------- ------------ It took 20 years to find out I'm not crazy. New bite in 2010 pushed my body over the edge. Positive for lyme, babs, bart, and myco. I am not a doctor and happily offer only my own opinions. Posts: 357 | From The Beach | Registered: Feb 2011
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sutherngrl
Frequent Contributor (1K+ posts)
Member # 16270
posted
I'm not well yet, but much improved. Been treating almost 3 years. It is a very slow process so you must learn to be very patient.
Posts: 4035 | From Mississippi | Registered: Jul 2008
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sixgoofykids
Honored Contributor (10K+ posts)
Member # 11141
posted
I don't work outside the home, so that wasn't an issue for me. I did improve with treatment but had a big variation on how I would feel day to day or month to month. Sometimes when we'd do a med change, I'd feel like I backtracked.
I'd have weeks where I might feel 90% as long as I didn't get up early, then I'd crash back down when we changed meds.
it's tough.
-------------------- sixgoofykids.blogspot.com Posts: 13449 | From Ohio | Registered: Feb 2007
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