posted
had to stop doxy on Friday. LLNP is sending me to Quest for one test, Lab Corp for other test and Brigham and Women's for Spect Scan. Prscribed Zithromax and Omnicef to start with - but does not want me to fill script until tests are done. And, must stop Doxy until tests are done. Does anyone know if you can get much worse in a week's time by stopping Doxy after only being on it for 2.5 months? I'm scared because I live alone and no family. So, I already have neuro issues and muscles are wasting away so house bound and can't even drive far due to head issues. LLNP is sure I've had Lyme, Bart, Babsiosa for longer than I thought maybe 15 years. But big surgery last Sept. turned immune system away from the Lyme stuff so that since then the Lyme bugs have taken over. Do you think stopping the Doxy could make me total bedridden before I get a chance to get to these Labs? Has anyone else had this kind of experience? So nervous I can't think of anything else.
Thanks,
Beagle
Posts: 348 | From MA | Registered: Dec 2010
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lululymemom
Frequent Contributor (1K+ posts)
Member # 26405
posted
Your LLNP must have a reason to discontinue abx. Usually if you do get worse within a week, it's due to co-infections.. Doxy does hit Bartonella, and erlichiosis so if either of those is an issue, you may get symptoms from that. I don't think that a week will cause too many problems but there are natural antibiotics you can try in the meantime.
Also if you have access to the Byron White formulas you may want to try those. I can give you contact info if you want to order those without a practioner.
Otherwise here is a link to some natural antibiotics.
Bartonella henselae 1:100 Posts: 2027 | From British Columbia | Registered: Jun 2010
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momindeep
Frequent Contributor (1K+ posts)
Member # 7618
posted
Beagle,
Please don't be afraid. You have an LLMD and that is terrific! Fear can make things worse and I know you think it is easy for me to say, but the truth is, it isn't.
I was scared for about seven years straight for my daughter...and I did not gain one thing from it...not one.
I have learned that putting the fear aside, use your head and force yourself into right thinking, will make things much easier for yourself.
Tell yourself, that even though you live alone, you are not alone at all. You have a LLMD, who you can call if things start to deteriorate...if you have trust in the Lord, then you know He is in charge of it all anyway.
It will be okay...
Posts: 1512 | From Glenwood City WI | Registered: Jul 2005
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posted
I don't think a week will make much difference, especially if you have been sick a very long time already.
Stopping probably has something to do with the drugs affecting the test results. You want to follow orders in order to have the best chance for a positive.
Posts: 8430 | From Not available | Registered: Oct 2000
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If so, she won't give me any abx either until some Lab Corp 'sticky blood' test is done. I begged her for a cephalosporin antibiotic, but she wouldn't do it. I'm currently awaiting the results on those Lab Corp tests.
-------------------- Urge Congress on EMF Safety, FCC Must Change Exposure Guidelines for Microwave Radiation Exposure: http://tinyurl.com/2cjq54y Halt Universal Broadband, A Public Health Hazard: http://tinyurl.com/3x7xrmq Posts: 495 | From USA | Registered: Mar 2010
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quote:Originally posted by elizzza811: [QB] Do you happen to see RK by any chance?
If so, she won't give me any abx either until some Lab Corp 'sticky blood' test is done. I begged her for a cephalosporin antibiotic, but she wouldn't do it. I'm currently awaiting the results on those Lab Corp tests.
Hope it's not the same NP. Lyme IS a clinical diagnosis.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
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no, it's not Rk. Mine did give me the scripts for Zithromax and Omnicef but says not to fill them until the tests are done. I do not need to wait for results of tests b/4 taking them, she just wants it on record that tests were done and also she says antibiotics might interfere with Spect Scan.
Beagle
Posts: 348 | From MA | Registered: Dec 2010
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posted
RK thinks I should have had more of a response to antibiotics than what I've had in the past, thus the 'sticky blood' test from Lab Corp before any more abx are tried. She tends to treat bart heavily, but she forgets that some of my flares seem Lyme-ish, and I barely had any treatment for babs, mostly because of the expense.
Would antibiotics interfere with the test? I'm a little ticked that she wouldn't give me any Ceftin and seems to be pushing herbals now. I have spent so much money on supplements, and half of them I can't even tolerate. Recently I spent $50 on Lumbrokinase because she is pushing enzymes now, and I feel a hundred times worse when I take it. My attitude...just give me the abx!
-------------------- Urge Congress on EMF Safety, FCC Must Change Exposure Guidelines for Microwave Radiation Exposure: http://tinyurl.com/2cjq54y Halt Universal Broadband, A Public Health Hazard: http://tinyurl.com/3x7xrmq Posts: 495 | From USA | Registered: Mar 2010
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posted
What is the 'sticky blood' test? Is it to determine clotting issues? Or is it looking at fibrin (i.e. biofilm)?
Posts: 57 | From VA | Registered: Feb 2010
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posted
Ellizzza, I can relate only because I believe natural or holistic medicine is a good thing and probaly just as good as antibiotics. But you need more paitence with holistic treatment, as it takes so much time and energy (& money) to stick with it.
I have never been a patient person, so I can understand how you would just want to stop the bull and "give me the antibiotics" Hopefully you can explain how you feel about it and she is willing to discuss!
Beagle
Posts: 348 | From MA | Registered: Dec 2010
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sutherngrl
Frequent Contributor (1K+ posts)
Member # 16270
posted
I don't think one week is anything to get that worried about. Sometimes a break can be a good thing.
Posts: 4035 | From Mississippi | Registered: Jul 2008
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