posted
Finally got results of Brain MRI today. There was no contrast used and had been on Doxy for over 2 months. REsults show small white matter/spots. Am I correct in assuming this is more proof of late stage disemmenated Lyme? It was not an LLMD who ordered the MRI. It was another flipping "specialist" who said "you can't have Lyme because you have been on Doxycycline for 2 months and not better yet."
She told me today that the white spots in my brain were very small, spots are very big in people with Lyme."
Thank God, I just finally found an LLNP. Have not been able to reach her yet with this news. So am hoping for opinion from experienced Lymies here!
Beagle (again) :/
Posts: 348 | From MA | Registered: Dec 2010
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lululymemom
Frequent Contributor (1K+ posts)
Member # 26405
posted
This is what Dr. M. here in BC says about white lesions on the brain.
The typical lesions from Lyme disease are small multiple and superficial on brain MRI. MS lesions are typically deeper and larger but these are generalities with wide variations in the interpretations.
Yours sound like the typical lesions from Lyme that he is describing.
Bartonella henselae 1:100 Posts: 2027 | From British Columbia | Registered: Jun 2010
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karenl
Frequent Contributor (1K+ posts)
Member # 17753
posted
I was once told by a ND that 40 per cent of the population have these small white spots. Not sure if he is right.
Posts: 1834 | From US | Registered: Oct 2008
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posted
I just had my 3rd MRI with the same results. Luckily, I have had no changes since my first MRI in January of 2007.
The neurologist on both the first and second MRI's listed small white spots bilaterally in the frontal lobe and most likely caused from a vascular or spirochetal disorder. No one has ever described Lyme lesions being large in size, I have always heard they were tiny, like spots from migraines.
Lastly, from what I was told and have read MS lesions usually form in an area called Dawson's fingers, which is not in the frontal lobe. MS lesions usually form on the outskirts of the "fingers" area. Because my lesions were not in that area, the neurologist listed that the lesions were most likely not from MS.
I know I was very freaked out back in 2007 from this, but don't. Although I would be ecstatic if they had cleared, at least they haven't increased in size or amount. You need to find a good LLMD.
Posts: 157 | From connecticut | Registered: Feb 2007
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posted
I just had my 3rd MRI with the same results. Luckily, I have had no changes since my first MRI in January of 2007.
The neurologist on both the first and second MRI's listed small white spots bilaterally in the frontal lobe and most likely caused from a vascular or spirochetal disorder. No one has ever described Lyme lesions being large in size, I have always heard they were tiny, like spots from migraines.
Lastly, from what I was told and have read MS lesions usually form in an area called Dawson's fingers, which is not in the frontal lobe. MS lesions usually form on the outskirts of the "fingers" area. Because my lesions were not in that area, the neurologist listed that the lesions were most likely not from MS.
I know I was very freaked out back in 2007 from this, but don't. Although I would be ecstatic if they had cleared, at least they haven't increased in size or amount. You need to find a good LLMD.
Posts: 157 | From connecticut | Registered: Feb 2007
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bcb1200
Frequent Contributor (1K+ posts)
Member # 25745
posted
Beagle...I had two small spots pre treatment. I now have none and I'm 9 months in.
I know of a good Lyme Neuro in Mass who takes insurance. Suggest you see her. Send me a PM if interested.
-------------------- Bite date ? 2/10 symptoms began 5/10 dx'd, after 3 months numerous test and doctors
IgM Igenex +/CDC + + 23/25, 30, 31, 34, 41, 83/93
Currently on:
Currently at around 95% +/- most days. Posts: 3139 | From Massachusetts | Registered: May 2010
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posted
I had an MRI with mulitiple signal intensities and multiple white lesions. They wrote that they can be from MS, vasculitis or lyme disease.
This is what my LLMD used to clinically diagnos me with neuro lyme since my western only had 2 bands 41 and 58. He went by the MRI, high red blood cell count, very low body temp and symptoms?
I was told the lesions go away with treatment and leave no scarring.
-------------------- Diagnosed with chronic neuro lyme 12/10 after 30 years of vertigo.2 tick bites in 3 yrs from upstate NY. Was on omincef for nine mths..zith and rifampin stopped.Remission~ All the pain and symptoms are back and I am not treating now with biaxin. Posts: 788 | From New york..queens | Registered: Nov 2010
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posted
My MRI read "hyperintensities in the deep white matter." Are "hyperintensities" "spots"? Does anyone know? I'm assuming your MRI reports don't say "spots" and am wondering what the medical terminology is. I had docs write this off to age (43-44 at the time) and/or migraines. Weird, never known to have a migraine in my life, thankfully. Of course, several years and symptoms later, LD and company. TS
Posts: 566 | From West Coast | Registered: May 2008
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posted
I had the same MRI reading and it was dismissed as "nothing". I am so sick and over run with anxiety. May wind up in the ER because I don't think I can hold off until this appointment on Thursday.
Posts: 22 | From East Quogue, New York | Registered: Feb 2011
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posted
Yeah, I've never had a migrain in my life either.
Never even got headaches until the last 6 years.
Last time I stopped Doxy I spiked a fever. Went back on Doxy. Now I've been off Doxy again since Friday morning just to clear system for cd57 test and brain spect which hasn't been scheduled yet! Anyway, sure enough today I spiked a fever again. Does this make sense that Doxy might be helping even though since I began taking it symptoms progressively got worse, but never a fever. My temp is normally around 96. Normal for me is on the low side.
Thks
Beagle
Posts: 348 | From MA | Registered: Dec 2010
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