posted
That was when I was 22 years old, am now 25 years old and have been in treatment since. Some stuff is better others are not. I was first diagnosed with MS, so lots of nuro crap. Put om rebif "MS med" and became very ill... Lately, lots of limping, difficult time with my legs, loss of strength and dragging my legs. Optic neuritis right now in right eye was the in left eye a month ago. Muscle twitching is coming back since being off ABX for almost a month now.
Have just been doing orals but they are not helping anymore so going to start IV doxy 400mg once a day next week. Hoping that helps!
Thanks so much for the reply Lymetoo!!!
Posts: 158 | From canada | Registered: Jan 2010
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I hope it works as well, would love to prove all the MS Canadian doctors wrong!!! I will keep you posted about how I am doing.
I take lots of probiotics already, I may go back to VSL #3 again while on IV. I don't really understand how IV could be harder on your gut than oral ABX?
Robin,
I have tried mangosteen juice when you posted the last time on one of my threads. However with no luck... . I think mine is different than yours. Mine is in the optic nerve. What kind of eye symptoms are you having?
Thanks again everyone,
Andy
Posts: 158 | From canada | Registered: Jan 2010
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posted
Did you have lesions on your MRI? Did your MS diagnosis come after a series of 'attacks'?
Posts: 306 | From NY | Registered: Sep 2010
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posted
Yes at the time of my MRI I had 15 lesions. I had 4-5 episodes of numbness and tingling in my legs then optic neuritis which led to the MRI.
I had other symptoms as well, and was bitten by a tick when I was 10 years old. Have never been the same since. Had good grades in school prior to Lyme bite, then dramatic decrease in my grades and attendance with years to come. Lots of flu like symptoms, fatigue, fevers and so forth.
Then did 15 months of rebiff and went from climbing mountains chasing a helicopter to having trouble climbing up stairs with a vast array of new symptoms...
Thanks for the reply NY!
Posts: 158 | From canada | Registered: Jan 2010
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posted
It definitely sounds like you have both MS and Lyme. My LLMD Nuerologist specializes in this and offers IVIG therapy for patients like you. He's had great success with it. Let me know if you want his information
Posts: 306 | From NY | Registered: Sep 2010
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posted
What does IVIG do? Thank you again for writing me!
Posts: 158 | From canada | Registered: Jan 2010
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Pinelady
Frequent Contributor (5K+ posts)
Member # 18524
posted
IV Immune Globulin. It is supposed to boost the immune system.
There are some having good-great success with stem cell treatment in other countries as well.
But they usually do it after many months to yrs of treatment.
-------------------- Suspected Lyme 07 Test neg One band migrating in IgG region unable to identify.Igenex Jan.09IFA titer 1:40 IND IgM neg pos 31 +++ 34 IND 39 IND 41 IND 83-93 + DX:Neuroborreliosis Posts: 5850 | From Kentucky | Registered: Dec 2008
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posted
Lyme can indeed cause lesions, although this is fairly rare. Your MRI results along with the classic first MS attack, optic neuritis, makes you the typical MS patient.
The lyme, however, can be progressing your illness. I messaged you a great doctor who deals with these types of patients.
Posts: 306 | From NY | Registered: Sep 2010
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. I think mine is different than yours. Mine is in the optic nerve. What kind of eye symptoms are you having?
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