Bea Seibert
Posts: 7306 | From Martinsville,VA,USA | Registered: Oct 2004
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momlyme
Frequent Contributor (1K+ posts)
Member # 27775
posted
She was so young! This is so sad.
-------------------- May health be with you!
Toxic mold was suppressing our immune systems, causing extreme pain, brain fog and magnifying symptoms. Four days after moving out, the healing began. Posts: 2007 | From NY/VT Border | Registered: Aug 2010
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IckyTicky
Frequent Contributor (1K+ posts)
Member # 21466
posted
I just posted it on General not seeing it here.
Alex put up a long and hard fight. Having Lyme, Myco, Bart and other things along with it.
She was only 3 days older than my oldest who has Lyme and co.
May God bless and comfort her family. Praise Him that she is now free from the pain and fear.
-------------------- IGM: 18+, 23+, 30+, 31+++, 34+, 39IND, 41++, 58+++, 66+, 83-93IND IGG: 31+, 39IND, 41+ Also positive for Mycoplasma Pneumoniae and RMSF. Whole family of 5 dx with Lyme. Posts: 1014 | From Texas | Registered: Jul 2009
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lymeladyinNY
Frequent Contributor (1K+ posts)
Member # 10235
posted
I've been following her story for a long time. I am crying a lot of tears for her family, and I believe she is free now.
-------------------- I want to be free Posts: 1170 | From Endicott, NY | Registered: Sep 2006
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sammy
Frequent Contributor (5K+ posts)
Member # 13952
posted
It's heartbreaking that she suffered for so long. I wanted so much for her to pull through and completely recover. At least now she is free of sickness. We should keep her family in our prayers as they are surely missing her terribly right now.
Posts: 5237 | From here | Registered: Nov 2007
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map1131
Frequent Contributor (5K+ posts)
Member # 2022
posted
It breaks my heart to think about this family and the struggles. This madness has to stop.
Oh Lord hear our prayers!
Pam
-------------------- "Never, never, never, never, never give up" Winston Churchill Posts: 6495 | From Louisville, Ky | Registered: Jan 2002
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Tammy N.
Frequent Contributor (1K+ posts)
Member # 26835
posted
How terribly sad. What was her screen name? I'm wondering if I knew her. Very, very sad news.
My heart and prayers go out to her family.
Tammy
Posts: 2238 | From East Coast | Registered: Jul 2010
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feelfit
Frequent Contributor (1K+ posts)
Member # 12770
posted
May healing come to those who loved and fought for Alex...especially her Uncle Mike.
RIP Alex.
Posts: 3975 | From usa | Registered: Aug 2007
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lymednva
Frequent Contributor (1K+ posts)
Member # 9098
posted
Yes, as Bea noted above, Alex did have Lyme, Bart, and a few other diagnoses. However they never knew what caused her to lose the use of her body, completely. Such a sad story.
-------------------- Lymednva Posts: 2407 | From over the river and through the woods | Registered: Apr 2006
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posted
Oh that's so sad. My heart goes out to her family.
Kathy
-------------------- You never know how strong you are until being strong is the only choice you have. Posts: 807 | From South Dakota | Registered: Jul 2005
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RZR
Frequent Contributor (1K+ posts)
Member # 20953
posted
I never heard of Alex before this, but my heart goes out to her family.
Rest in peace Dear Alex.
-------------------- Tick bite May 2009 Diagnosed June 2009 Posts: 2329 | From SouthEast | Registered: Jun 2009
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posted
I haven't quit crying since I read her website and story. Alex was the same age as my daughter who struggles with Lyme.
Rest in peace dear one...
Posts: 333 | From Lyme Here Too | Registered: Mar 2010
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Pinelady
Frequent Contributor (5K+ posts)
Member # 18524
posted
I remember when cries for help first went out for Alex.
I place blame if I may with the CDC/IDSA for the lies and failures to protect the people by giving them the tools and information to find and treat.
And so very thankful that there are now thousands who are fighting for change to try as we may
to prevent this from happening anymore in our kids.
The CDC/IDSA/USDA were holding hands for profits--by giving cattle a tick vaccine made from the saliva of ticks for over 10 yrs.
And they did not care what the antigens did and even admitted they did not know and it was ignored by all in the circles of life they professed we need.
-------------------------------------------- http://www.ncbi.nlm.nih.gov/pubmed/21211038 -a cow walking around with 121 different kinds of bacteria including Wolbachia-Dengue/Coxiella-Q Fever/Borrelia-MCIDS
They conducted these studies because they would not culture---
the same thing has happened in humans and is why we now have Autism being diagnosed at rates of 1@4mins., Alzheimers of 1@hr. , and MS at 1@min.
Now you must know they have also been giving this vaccine made from the saliva of these same ticks and as such are now suspected of transmitting borrelia-the most stealthy pathogen known to man.
And they should not have made any tick vaccines and in their arrogance have spread it around in humans and animals-including all of its proteins..
With the discovery of even more proteins they cannot shut it off just as in syphilis which is why to this day we still don't and won't ever have one and the persons responsible should go to jail...
Commercial tick vaccines for cattle based on the -(cattle tick)-Boophilus microplus Bm86 gut antigen have proven to be a feasible tick control method that offers a cost-effective, environmentally friendly alternative to the use of acaricides.-------((((((It is made from ticks, and they have proven the protein cannot be shut off.))))) There is no reason to believe if they cannot find the antigens now they could not and cannot find the proteins then!!!!
Commercial tick vaccines reduced tick infestations on cattle and the intensity of acaricide usage, as well as increasing animal production and reducing transmission of some tick-borne pathogens. Although commercialization of tick vaccines has been difficult
owing to previous constraints of antigen discovery,
the expense of testing vaccines in cattle,
and company restructuring,
the success of these vaccines over the past decade
has clearly demonstrated their potential as an improved method of tick control for cattle.
http://www.parasitesandvectors.com/content/3/1/103 ----------------------------------------------- http://www.mgel.msstate.edu/tick.htm Rhipicephalus microplus------ (formerly Boophilus microplus) ---------is the most economically-important tick parasite of livestock in the world. Commonly known as the cattle tick, R. microplus has numerous hosts including cattle, deer, buffalo, horses, dogs, pigs, donkeys, goats, and sheep. High level tick infestations decrease the fecundity of parasitized animals and damage host hides. Moreover, R. microplus is a vector for a number of endoparasites including the protozoans causing bovine babesiosis, the most damaging arthropod-borne disease of cattle.
AU was just one of the countries that used the vaccine....AU supplies McDonalds with most of their beef for international trade. Brazil and the US are 2 more. --------------------------------------- http://nar.oxfordjournals.org/cgi/content/full/gkp027#SEC5 The present studies extended characterization of the B. burgdorferi EbfC protein,
demonstrating that this small protein both specifically and
nonspecifically binds DNA,
can bind DNA independently of context
and alters DNA conformation. The organisms they have challenged with the protein so far bear no resistance to the folding of the protein... --------------------------------------------------- Please be aware that every country that can is working on this sans AU--no surprise---but AU does have many law suits forthcoming by citizens who have found borrelia by testing in other countries.
http://www.karlmcmanusfoundation.org.au/ Karl Mc Manus died because AU refused his Lyme diagnosis and refused to treat with antibiotics. ---------------- Prayers to the families and hopes they know they are not alone.
-------------------- Suspected Lyme 07 Test neg One band migrating in IgG region unable to identify.Igenex Jan.09IFA titer 1:40 IND IgM neg pos 31 +++ 34 IND 39 IND 41 IND 83-93 + DX:Neuroborreliosis Posts: 5850 | From Kentucky | Registered: Dec 2008
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tdtid
Frequent Contributor (1K+ posts)
Member # 10276
posted
Losing Alex shook me up very much. Her mom Lori came into my life when I opened my Caringbridge site for my own IV treatment. Alex's twin sister is named Jaci they were extremely close.
As someone else said, Uncle Mike is the one that use to post on Lymenet, although I do recall that Lori had atleast scanned here a few times in the past.
I can't even imagine the pain of losing your 17 year old daughter. No parent should ever have to bury a child.
Bea listed her Caringbridge page in the first note, so I won't repost it. This was an amazing family and I know they still would love to hear your heart felt messages on her above site.
Cathy
-------------------- "To Dream The Impossible Dream" Man of La Mancha Posts: 2638 | From New Hampshire | Registered: Oct 2006
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